Update

Not sure if this will confuse you more!  But this is what I got.

Born with hole in heart.  Never knew it.  May be source of clots, if my heart slows down.

Cavernous hemangioma in the right cerebellum – a blob of veins in back of head.  May bleed.  Needs to be monitored yearly (supposedly not the cause of any of my newest symptoms/problems).  Was told if I am having balancing issues or can’t pick up a pencil, come into the hospital to get checked.

MRI lighting up – unknown – maybe because I had a vision of the Mother Mary and Brother Andre when I was in the machine?

Need to be tested (EEG) for seizures (appt. in June).

Haven’t had any “seizures” caused by sounds lately since taking magnesium.  Balance seems to be returning slowly.  Still a bit unsteady on my feet.  Seem to be getting better every day.

Should be okay as long as I don’t have another TIA/mini stroke within the next 3 months.  I am currently taking a daily dose of aspirin to thin my blood.

Thyroid results – not cancerous – I have a 5 mm cyst in my right side and a 3 mm cyst on the right.  My sister researched it on the net, said it may be due to lack of iodine (salt).  I have been on a NO SALT/caffeine/chocolate diet since taking the drug Carvedilol in November because that is what my cardiologist told me to do.  I really want to get off this drug A.S. A. P.  My heart function has improved to my almost normal (43%).  60% would be ideal.

The chemo drug (Epirubicin) is the cause of my heart failure in October (heart function was less than 32%).

The cancer drug that I’m on for 5 years (Tamoxifen) -side effect – strokes.  Taken off this drug.

Ovaries/Uterus may have to be taken out to stop the estrogen hormone from returning because my type of breast cancer feeds off it.  If it spreads, it would go to my brain, bones, or liver.

My family doctor wants me to have a chest x-ray to see if there are clots in my lungs.

More tests mean more radiation.  I am seriously considering not having it done.  At this point I want to get off all the medication I’m on and go to a naturopath.  However, I’m not sure my LTD coverage will allow me to do so.   They are going to want me to stick to conventional medicine, which at this point is doing more harm than good.

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Pity Party

Sorry I didn’t write yesterday, but  I was having a pity party for myself.  Still experiencing strange head ticks when I hear certain sounds.  And I’m still bopping to music, although it seems a bit less exaggerated today.  However, my head has been jiggling side to side sometimes when I walk.

But at least I’m not holding my arms in front of me when I walk, which is something I was doing previous to today.  I am much more balanced today then I have been in 5 days.

My father decided to come over the my house right now and mow the lawn and my head is shaking, shaking, shaking because of the noise.   I would really like to tell him to stop, but then he’d come inside and drive me nuts.  So I went and lay down.  Interesting enough, my head stopped shaking, but an area in my brain above the left ear started throbbing.

I’m going to get the veins in my legs checked out today.  I asked for this test because a side effect for Tamoxifen is deep vein thrombosis.  I had a massage recently, and I figured I’d better check that out because my Aunt had vericose veins and when she had her husband massage her leg, he dislodged a blood clot and she had a stroke.

I’m going to see my oncologist, family doctor, and cardiologist tomorrow.

I hate doctors.

As you can tell, I’m having anger management issues with my health care professionals.  But I’m going to have to be civil with my cardiologist at least, because she is going to be shoving a camera down my throat tomorrow.

I think I hate her the most.

I spoke to my oncologist nurse from LTD.  She said the report she received about my condition from the ambulance driver clearly states that I had a stroke.  “That’s nice,” I told her, “Then why did that doctor at emergency tell me to go see a psychiatrist?”  She said, “So I wouldn’t worry so much”.   Are you kidding me.  That makes it even worse.  He probably didn’t want to look dumb in front of all those interns.  Gee whiz, we haven’t figured out what caused your stroke, so it must all be in your head.  I’m not as clever as Dr. House… but I want to impress my students, so I’m going to send you to a shrink before you bother us again at emergency.

 

Ta ta.

 

 

The Stroke

I’m Blogging again.  I just had to tell my sordid tale.  For some reason, writing about my wacky experiences it makes me feel better.

Sunday, May 1

The Stroke

So the weirdest thing happened to me after I ate my lunch.  “Phone 911”, I told Bobo.  “I’m having a stroke.”  My left side of my face was paralyzed, my tongue felt huge, and then I started slurring my words.  Frack started laughing.  “Why are you talking like that mommy?”, he asked.  Bobo asked me if I was serious and I said, “Yes.”  So he called for an ambulance.  I didn’t want to go to my local hospital so I told Bobo to drive me to my downtown hospital where all my medical/cancer records are kept.  However, when I got to the hallway, my left arm and leg collapsed.  Bobo called for an ambulance again.  When the paramedic arrived, he asked me what was wrong.  “I’m having a stroke,” I told him.  “You’re too young to be having a stroke”, he replied.  “Stick your tongue out”.  It deviated to the left. Say “You can’t teach an old dog new tricks”.  “Blah blah blah blah blah,” I responded like Donald Duck.  “Yup, you are having a stroke. 

So off I went on my very first ride in an ambulance with the sirens wailing!  All the way to A Trauma Centre Hospital, the closest Heart Attack Central Station.  They had a team waiting for me when I got there, but I think I disappointed them because I could start feeling my face again while I was still in the ambulance.  The T.I.A (trans ischemic attack) was resolving itself.  Apparently, you have 4 hours to get to a hospital to get some blood-thinning drugs when you have a stroke.  I didn’t need that, but they did put me on Warfarin to prevent another clot from forming. 

I was sent for a CT Scan, but they didn’t find any big clots.  Because I didn’t need a more aggressive treatment, they decided to kick me out.  They ordered me another ambulance to take me to my local hospital.  I was not thrilled about that, let me tell you.  But they said there was nothing they could do.  It took almost 5 hours to get transportation.  I spent the night in a cubby hole at my local hospital with my younger sister.  No pillows.  No food either because it was about 9:00 at night by then.  But at least I could feel my face.  The next day, I was sent for a Doppler and an Echo test.  Nothing showed up, so they sent me home.  They told me not to take Tamoxifen (for breast cancer) because it thickens the blood and can cause clots.  I get to take aspirin instead.  I went home at around 3:00 on Monday.

At 3:00 a.m.  I had a bad headache in the back of my head and couldn’t walk very well.

At 6:00 a.m. I had a sharp pain behind my right eye.

At 9:00 a.m. I called my family doctor and the secretary said, don’t mess with that, get to emergency.  So I went back to Heart Central Station.  My eyesight got a little blurry, I had a hard time focusing on my finger and my tongue was deviating to the left again.  Although it wasn’t nearly as bad as Sunday, some of my symptoms were returning.  They sent me home and told me I probably had a migraine headache.  I told him I have had migraine headaches for over 30 years and it never felt like that!