Managed to get a copy of my bone marrow biopsy from my LTD oncology nurse (still waiting for my oncologist to phone me and give me the news).
So guess what they found in my bone marrow?
NOTHING. Absolutely Nothing!
(well okay, 1% fibrous tissue); but not EXTENSIVE METASTATIC DISEASE in my skull and vertebrae like my last MRI report stated.
Can’t wait for my next oncology appointment…so what’s in my bone marrow? What? What? Well, we KNOW what it is NOT now don’t we? It’s NOT CANCER in my bone marrow. Yes, the MRI indicated that there was something funky going on in my bone marrow…I maintained it was because my hemoglobin was ridiculously low and I’m anemic; but my doctor looked me straight in the eye and said, “We know what it is. Right? We know what it is? “I only ordered the test to humour you.” Honestly, I think he thought I was delusional for not accepting/believing the MRI report.
Damn it, I knew I should have bet him $50 bucks.
So now I have a hole in my backside to prove I was RIGHT. But boy was it worth it. You have no idea how GOOD THIS FEELS. (Maria O’Kane always told me not to listen to the doctors whenever I got bad news. “What do the doctors know”, she would say. “They know Shit”).
I can’t WAIT for my next appointment with my oncologist. I think I will do the “Happy Dance” for him. Gotta bring my ipod and do a victory dance or something. Anyone know some good tunes I could play?
And then I will say …. so I guess my little piggy stem cell transplant is working.
And I guess I didn’t WASTE my money looking for an alternative either as my cancer hasn’t spread since I came back from Germany. (Oh, and, by the way, I was told by a resident last Fall that had I been one the chemo drug capcitabine/xeloda, the cancer probably would have started spreading again by June…and it’s September and I’ve been good on the German stuff. No signs of mets. Hurray! The whole MRI report just didn’t make sense to me. If I had extensive metastatic disease in my bones, wouldn’t the 5-6 tiny tumours in my spine be growing too? Yet they were stable.
The angels told me I would be fine. (I really think Michelle Baskie and Maria O’Kane may have had something to do with that).
Angels 1: Doctors 0.
I’m so happy! And no, I still really like my oncologist and would not trade him in. We just interpreted the MRI results differently. However, I have opted not to go to my radiation doctor’s hospital for MRI’s anymore because they are always between 1:00-4:00 a.m. and this is the second time I had bad news from there (in June, they told me I had a tumour in my neck which turned out to be nothing significant when they rescanned it). I guess that mistake prepared me somewhat for this one.
Oh, and my hemoglobin is starting to improve because I stopped taking the artesunate for a while to see if it would make a difference and it did (I temporarily went back on the “foot burning” chemo). The artesunate has been effective stopping my cancer from spreading, however, it is doing something to my red blood cells. I’m not too worried about this because my doctor from Germany has sent me something to help me with that. The German pharmacist told me in broken English. “I’m not to sure I know how to explain this medicine to you. Oh, I know. It will kick ass.” “Great”, I told her. “Ship it right over; here’s my VISA number”. I’ve been tracking my package which was shipped on Monday and it has just arrived in Canada (Wednesday). However, I’m waiting for customs to approve it. Last time I had to wait over a month because for some reason it went through Customs twice. I hope it gets to me faster this time.
I will be writing and showing photos of my trip to Germany in February soon, so stay tuned.