I have an appointment with my family doctor today. This ought to be interesting. When she asks me if I’m on chemo, I will just say, “Why?” I’ve been stable on the German medicine for 8 months and my feet don’t burn. Why fix something that isn’t broken. It’s actually nice not shedding skin from my feet like a snake on a weekly basis (which was happening while I was on the Xeloda/Capecitabine).
If she tries to convince me to go back on conventional treatment, I will say….”Let’s see…my heart stopped dead when you gave me Taxol (during intravenous chemo…which my oncologist was thinking on putting me back on once the Xeloda didn’t work). I had heart failure because of the epirubicin, I had a stroke/TIA because of the tamoxifen. The approved FDA drugs I have been given from here are too toxic and are affecting my heart. Besides, I’ve already been told the chemo drug Xeloda is only temporary and would probably only be effective until June. Will chemo go after my mutant DNA? No. But the little piggy stem cell transplant might correct it.”
Besides, since I’ve been on the German medicine, my heart function has improved dramatically. Yes, my red blood cells/hemoglobin have been low because of the artesunat, but I just got a new shipment of really terrible tasting stuff to improve that. I’m feeling much better. My energy level is improving daily and my test results show no evidence of my cancer spreading. So guess what? I’m sticking to the thing that is working right now which causes the least amount of side effects and if and when that stops working, I may decide to go back on chemo or I may not. (There are other cancer alternative therapy options in Cuba and the USA).
Hmmm….wonder what she going to say about that.
My friend Cathy knows a person who had brain cancer and was told she had 3 months to live. She met a person with the same type of brain cancer who beat the odds and is still alive 5 years later. She asked him what he did and he told her about this clinic in Germany. She never told the doctors here what she did because she was afraid they would dump her as a patient and not allow her to participate in clinical trials. Three, six, nine, twelve months went by and she was stable. The doctors here were amazed that she was still alive because everyone else with this type of cancer was dead. She never told them about her treatment in Germany until 18 months later when small tumour was discovered in her brain. She had surgery to remove it. It’s been 2 years and she is still alive. She is currently doing chemo/radiation, but I heard she was currently not doing very well, which makes me sad. She has two teenage children and a husband who has been taking good care of her since her first diagnosis.
Unfortunately, there are no guarantees in life when you have cancer. You just have to make the best of whatever gets thrown your way.
When I went to Germany I met a really nice older italian man named Greg. He has been going to the clinic for 2 years and it has helped him greatly. I will tell you more about Greg in my subsequent blogs about my treatment. His story encouraged me. His story gave me hope and has made me question our health care system. It’s not all that it’s cracked up to be. But that’s just my opinion.