I smiled all the way to my doctors appointment today, so happy that I was okay. This is after the scare I had after being told and reading my last MRI report that I had extensive metastatic breast cancer disease throughout all my bones (including my skull). Who wouldn’t have thought they had one foot in the grave after that conversation? Anyhow, I got my test results from my LTD two weeks ago and found out there was NO metastatic disease in my bone marrow. I’ve been on a high every since.
I couldn’t wait to go to the doctor to see what he was going to say about that! Not often you have the opportunity to be smug about being right.
As soon as he entered the room, with a smirk on my face, I quite cheekily said, “So WHAT is in my bone marrow?”
Me: REALLY? Nothing?
Dr: Alright, alright. So you were right and I was wrong. Not good for the ego, you know!
I just burst out laughing. He said he was glad I was right; it was the more favourable outcome. And the bone marrow biopsy said it was a drug ‘causing all the fuss, not cancer.
He then said, “So tell me now what are you going to do?”
“What do you mean?” I said. “Do you care?”
“Of course, I care”. I just want to know what you are doing so I can write it down. How long have you been off the Capecitabine (chemo drug).
“Two weeks”, I told him.
“How did you manage to get your hemoglobin up?”, he asked after looking at todays “normal” blood test results.
“Easy”, I told him. “I picked up the phone and called Germany and said, “Hey, ya got something to jack up my hemoglobin” and they sent me some liquid stuff.”
“What was it?”, he asked. “Gelum”, I answered. He rolled his eyeballs wondering what the hell I was on. “Hey, it’s working, isn’t it?”, I told him.
“How long have you been on that?”, he asked.
“Two weeks…soon as I figured out there was nothing in my bone marrow”, I answered.
“You do realize that cancer always comes back. What are you going to do then?” he asked me.
(That wasn’t exactly a very positive thing to say, don’t you think?)
Plan A is to stay on the German medicine because it’s working and I’m stable. I don’t want to go on the chemo drug because it burns my feet. Besides, my kids are sick and if I’m on chemo I have to stay away from them and everyone else who’s sick, and you trying doing that.
So the plan is, if the tumours in my back start growing again, I will revisit the option to go back on chemo, but I FEEL GREAT and I’m sticking to it because it works.
Well, at least he didn’t say I was crazy. I think he’s watching his tongue now that I was right. He’s just puzzled, that’s all. Brainwashed by the FDA. But he is a good guy and I really like him.
He told me he wasn’t going to have me go through another CT scan (organs) in November, just another MRI and we’ll go from there. That made me happy.