Feb. 13, 2015

I am NOT having a good day.

Find a cureWent to the oncologist today and got my shots in the stomach. When I left, I got the feeling he was not on board with my decision to continue doing the treatment in Germany which he claims is “quackery.”  Take a deep breath.  Too bad, so sad, it worked for 10 months and I’m going to keep doing it.  I’d rather do that, than have my feet burn off with chemo.  I also talked to him about going to the naturopath to get intravenous vitamin C.  He said, “It’s not proven to be effective”.  My husband said that there are lots of books and journals in Germany that say what they are doing works.  Doc. said there weren’t enough case studies done.  I asked him what it was going to take to do that.  He said it will never happen because you can’t patent something like vitamin C….it’s not profitable.  Bunny:snowmanYou need lots of money to do trials with lots of people.  If the big Pharma companies have nothing to gain, it will never happen because of the expense.  There you go folks.  Find your own medicine.  Plants aren’t profitable because you can’t patent them.  Synthetic drugs are the only one’s that “count” in our world even if they have toxic side effects.  Nothing else matters because someone is getting rich from this.  It is disheartening.  It is disgusting really.  Not a good day.

hairy cat fabioSo today I am itchy.  My neck is itchy.  My back is itchy.  And guess what… my pelvic region/crotch/groin is also very, very, itchy (and I don’t want to scratch there because I don’t want any weird looks from people).  There has been very little hair there since my chemo treatments five years ago and now I can safely say that what was left of my scarcely populated pubic hairs has now been successfully fried with radiation.  And my skin looks burnt brown.  Apparently I’m not suppose to have any kind of sun exposure on any of my newly “radiated” parts for at least a year; doubt that will happen any time soon (unless I decide to put nudist colony on my bucket list).  Nahhhh.   Well, at least I don’t have to worry about spending money on a brazilian wax job; it’s already been done for free thanks to medical care.  Had to buy some $50 medicated ointment for my newly parched skin.  Big pharma makes more money.  Argh!!!

Had to drag the kids to the hospital today because it was a P.A. Day.   Frick and Frack are used to it.  It’s happened before.  They refuse to go to the “Magic Castle” place where kids go while their parents have their treatments.  My kids prefer to play on their computer gadgets during my visits.  As long as I feed them pancakes from McDonald’s or buy them breakfast at Druxy’s, they are happy.

imgresdonating bloodI saw an old friend from Gilda’s Club who was getting blood work done and oddly enough, two other friends “found” me at PMH because they “recognized my white, furry, hat” and decided that, yes, that was really me.  One of them recognized “The Hat” from my Germany Pics.  I thought that was really funny.  I taught one of her children many years ago.  Another person I ran into was from my Thursday night Christian Cancer Support Group.  She said she spotted me from a mile away because of my “Hat”.  Glad I had it on!   My daughter told me that the elderly people in the waiting room at the blood lab were eying my hat too when we were in there.  Poor people.  They probably didn’t have any hair because of chemo. and needed a warm hat.  It was bloody cold outside today (- 18 or -32 with the wind chill or something like that).  My alpaca kept me toasty and warm!  I think it is quite possibly the best purchase I have ever made.  Especially today.  The city of Buffalo (just south of us) had  lots of snow earlier this week and now are experiencing this really cold, bitter weather, so the kids all got to stay home today.  They really should invest in some of these kinds of vehicles to get their kids to school! snow days

Wincrazy

Meanwhile some f*$#$ squirrel decided to jump into my chimney to keep warm last night and it cost me over $500 to pay someone to climb on my roof, install a trap door, and cover all the grates (5) up there.  Damn squirrel!   I could have bought him a couple of alpaca hats and thrown them on top of my roof for that much.  He’d have had his own cosy, furry nest.  Now I need to go back to the casino in Niagara Falls to win some more money on the slot machines.

When I got home I searched for today’s “blood work results” on my computer since they weren’t ready at the time of my appointment.  My platelets are low and white blood cell count is red flagged.  Everything else seems to be okay.  I suspect these new developments are because of my radiation treatments, although I’m not sure what to do about it except eat seaweed and soak in himalayan salts.

ebola flight

 

Guess I’m also going to have to protect myself from sick people at the moment.  Would this be considered extreme?  How ’bout I bag myself every time I go out ’til my counts go up?

 

Cat Scan

Gotta have a CAT scan in April.  Bit concerned about that since I couldn’t take my German injections while I was doing radiation treatments for 3 weeks.

 

I figure there may be some growth in my bones because of this.  My doctor however is thinking it may have spread to my liver, lungs, or brain because I’m not “on” conventional treatment.

I would like to prove him wrong….again.

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