Looks like I’m in trouble again.
I had my spinal MRI on Monday at Sunnybrook. I got home at 3:00 in the morning, even though my appointment was at 10:30. Three trauma patients that night. Not sure why the Odette Centre doesn’t have it’s own MRI for cancer patients like Princess Margaret. It’s not like they are going to have a shortage of cancer patients needing MRI’s. At PMH, my appts were at 7:00 a.m. and I was done by 7:45. I never got bumped. I guess they figure terminally ill people have nothing better to do at 2:00 in the morning, but sit in a waiting room for scans. Get home, and guess who’s in my bed?
My appointment with my radiation guy is on Monday at 9:30. However, my oncology nurse (from my benefits) got the report yesterday and sent it to me. It’s not looking too good.
There is still evidence of metastatic disease in C2 (neck where they zapped it), T3, a new one in T5 and a slight enlargement in T6, the sacrum and the iliac wings. C3, T1, T2, T8-9, T11-L5 are stable. The most pressing problem right now is C2 which is high in the neck. She said it could be a radiation flare that has made it look bigger, but she felt that was not the case because of the way the report was written specifying that there was metastatic disease evident.
That means they are going to have to radiate it again; but that may not be possible because of the radiation dosage he has already given me. Bones tend to get soft and mushy with a lot of radiation and may break or collapse. So if he is going to radiate my again, that means I may have to have surgery on my spine once again to stabilize it first. Two more titanium metal rods stretching from C1-C4 because C3 got zapped in January and was not strong enough to support the rod. She told me to get in touch with my surgeon to see if it was even possible.
So, of course, my brain is going fast forward and I asked her, “So if it’s not possible what does that mean?” They are going to let it keep growing until it compresses on my spinal cord and I become a quadriplegic? She didn’t answer. I know I’m right because I know someone that this happened to. She had to sell her home in the Beaches to get a condo for the inevitable wheelchair she was going to be in.
I went to bed thinking about how I was going to have to learn how to paint with my mouth.
If my oncology nurse is wrong, I’ll be doing this after my appointment on Monday.