I went to see my oncologist yesterday for my 2 shots in the stomach and my much anticipated x-ray of my lungs.
Last month when I ended up in the ER with chest pains/breathing problems, I had a CT scan. The technician reported that there was “probable evidence” of metastatic breast cancer invading my lungs. My oncologist said that within 3 weeks it would most likely spread and I would probably have to have my lungs drained of fluid. My family doctor, foreshadowing my steady demise, told me she thought I should get back on chemo. (like my oncologist said I should). My benefits team of doctors also warned me that there were mets in my lungs and told me to get back on Tamoxifen to see if that would make a difference. Meanwhile, I was sitting tight thinking that they were all wackos (my husband concurred). I mean, I know that they are concerned that I’m not doing conventional treatment, but boy they really jump on the cancer bandwagon when something looks different on a scan. I mean, it can’t be something ordinary. It has to be cancer! How about allergies or some other explanation? Nope. Cancer. Three against one.
I felt better after seeing my radiation oncologist last week. My spirits were buoyed when he told me there was no evidence of mets progression in my spine. It now became three against two because he was impressed that I was doing so well and he wanted to know what I was doing in Germany. I told my family doctor that it didn’t make sense that my spine was fine and all of the sudden there was metastasis growing in my lungs. She said cancer can go anywhere it wants. That’s fine and dandy lady, but isn’t it probable that it would be advancing in my spine too? I decided my family doctor is really not too bright. I mean, I didn’t go to medical school or anything like that, but really? This whole thing seriously did not make any sense to me. And besides, I’m still shaking my head at her last stupid comment when I had an ear infection (in February) and she told me I should get my face x-rayed because the cancer may have spread to some bone near my ear. My oncologist practically had a heart attack suppressing a burst of laughter when I told him that one! I could see tears in his eyes and even he told me that maybe it was time to a get a new family doctor because cancer doesn’t work that way.
So as I was waiting to see my oncologist for my x-ray results, I got an email from myUHN account (a new program which informs you when your test results are in). Bonus! Now I get to know what’s going on before he even comes into the room. Scanned it quickly.
The cardiac pericardial silhouette is normal. There is a small nodular opacity in the right lower lung better visualized in the chest CT.There is mild linear fibrosis in the lung apices. (that’s scarring from radiation)
There is no other significant abnormality seen in the lungs.
There is no significant abnormality seen in the mediastinum.
There is no pleural effusion.
SMIRK! So there is nothing really going on my lungs. “Oh, this is going to be a good appointment,” I chuckled to myself.
Now, do you think he would admit that I was stable and that whatever I was doing in Germany was working for me? Nope! He just picked up the box of zolada (shot that stops my periods/estrogen which I’ve been on for years and I still had progression while on it) and said, “Oh this must be working for you and you must have a really slow growing cancer”. “Yeah, sure,” I thought. “I’ve been diagnosed with a very aggressive form of DCIS and it magically has disappeared. I haven’t been on conventional medication for a good 1 1/2 years and I’m doing okay! A big part of me wanted to tell him that the snake venom was doing the trick, but I kept my big mouth shut. However, one day it’s going to come out! And I can’t wait to see his face when I tell him that! I will need some sort of video recording device to capture the moment. And I want my husband there so we can laugh about it for many years to come.
And then my onc. burst my little bubble some more by saying that this test wasn’t as good as the CT Scan (which shows more). Hang on there bud. Wasn’t I told that I suppose to be chock full of mets in 3 weeks and shouldn’t I be having my lung drained by now?
“So what do you want to do now?” he asked me. “Nothing”, I told him. I’m having some issues with my heart which I need to address. Right now, I’m staying off everything. He told me the tamoxifen may have contributed to the fluid build up around my heart. I really don’t think it was that…I’m quite certain it’s from the overdose of stuff that naturopathic dr gave me a week before the heart problems started. I’m having an echo done on Monday and I’ll be sporting a 24 hour holter monitor on Monday. I investigated everything I was taking (vitamins/supplements) and have come to the conclusion that everything I was on was interacting with each other. So now I’m off pretty much everything until things settle down.
I feel much better today and my new shipment of injections/drugs have arrived from Germany. My oncologist nurse told me I lost too much weight (10 pounds due to gluten-free, sugar free, dairy free crappy diet) and there was not much stomach fat to stab me with the needles. I told her that I like seeing my toes when I look down. She shook her head at me and told me to be careful, cancer patients need all the nutrients they can get from food.
So I went to an All You Can Eat Buffet after that appointment to celebrate! Food, here I come!
I started juicing more at home too. Still can’t walk up a flight of stairs without huffing and puffing…will know what my heart’s ejection fraction is some time next week. I know it’s not normal, but I hope it rebounds for the better soon… I’ve got places to go and people to see!
P.S. Frick came in 4th place for Javelin throwing in the East Toronto Finals at Birchmount Stadium and will be going on to the City Finals on Tuesday. That girl’s got a good throwing arm.
I met someone at the Naturopathic clinic who has breast cancer and was basically told she was incurable and was going to die. Like me, she is not doing conventional treatment. She went to Tijuana and The Issel’s Foundation ($70,000) and managed to shrink her tumour from about 8 cm to 0.7 cm. However, her disease is now progressing. Told her about Germany. Guess where she is today? Yup. Flew to Baden-Baden and begins treatment Monday. I really hope Dr. Sommer can help her as her oncologist here is the same as mine.
Wouldn’t that be something? More arsenal for alternative treatment in Germany when two of us are sporting good results, don’t you think?. Wonder if I can find and ship some more of his patients to Germany.
By the way, I think I should give you his address in case any of you are in a pickle and need alternative treatment.
Cell Vital Clinic (firstname.lastname@example.org (or) email@example.com) Telephone: 011 49 7221 39 19 49
Dr. Daniel Sommer
Lange Strasse 72
Todays paintings were created by our grade 1 students (with the help of the grades 7/8’s because they were having trouble cutting out their fish with scissors) in the style of Eric Carle. I have tremendous respect for grade 1 teachers because I think it’s one of the hardest grades to teach.