Treatment Plan

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Treatment Plan

Got very little sleep last night.  Hopefully I will recuperate soon from the jet lag.

Spoke to Dr Sommer and Mariam this morning and started therapy right away.

 

 

He basically said my kidneys need to detox, something is wrong with my lymphatic system and nervous system and my blood needs more oxygen.  I saw it was black in the test tube yesterday, so that was no big surprise.  Not enough oxygen.  Need to breathe more!

imageSo today I had a little piggy stem cell shot in the ass to reboot my DNA like a computer, had an artesunate IV (to kill cancer cells…apparently 95% effective in my case…I had this before), and two sessions with a bio photon machine (infra red rays?) to stimulate good cells.

Oddly enough I don’t need colon hydrotherapy this time.  My colon is good.

Felt much better after the ozone therapy…. Breathing better too.

imageHe thinks that the pain I’ve been getting may be my gall bladder, although there is no indications of a problem in any of the tests I’ve had.  Ever since I had the treatment today I’ve been farting like crazy (and I’m not generally a farter).   And these are very loud honking farts! Thank heavens no one has been around me when they erupted! I went on a very long walk to Lichtenthal Abbey.  Farted all the way and still my tummy is doing some fine gurgling noise. Maybe the pain on my right side was built up gas and it’s ready to blow!  I think it may have been the air plane food.  I don’t do well with that.  Aren’t  you glad you aren’t here ? 😄. Mind you, they aren’t the silent deadly farts like the ones my husband dishes out. Mine don’t smell. They are just embarrassing and painstakingly loud.

Anyhow that’s the scoop for today. Ill be posting pics of my long walk when I get out of the shower. Booked a massage at the Caracalla spa on Thursday. That’s going to be nice.

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The #1 thing to do in Baden Baden on Trip Advisor was walk through Lichtentaler Allee.  I wanted to go see the rose garden and stumbled upon the Allee.  Here are some of flowers I saw…they have rose and dalia gardens.

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I walked to the Lichtental Abbey, which was really very far.  But I was determined to see if I could spot any nuns in there.  My aunt is a nun.

 

 

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The scenery was so incredibly beautiful.  Several months ago I saw an amazing picture of a road that had the most magnificent trees lining the street (on Pinterest) and I thought WoW, I would love to be there and see that.  A tunnel made of giant trees and its in Germany too.  Well, low and behold, there is  one in Baden-Baden and I was walking through it.  So neat!  I almost quit when I got to the Rose garden because my back was getting sore.  But I forged ahead to the Abbey and was so glad I made it there because I never would have seen those oak trees if I didn’t keep going.  Was well worth it!

 

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My Slumpy Day

Dark SideMy Slumpy Day

After getting my head out of a bad space before my awesome trip to British Columbia, I am back in the gutter once again.  Having cancer it’s like being on a roller coaster and I’m on the downside right now.

restaurant serviceIt started on Friday at my oncologist appointment.  He was being followed by two new recruits.  Told my nurse that having shots at a Scarborough clinic instead of PMH was not going well.  The first guy didn’t get it right and I didn’t like being stabbed more than once.  And the next time when I asked for someone who knew how to administer this kind of shot in the stomach, they gave me a nurse who told me she was shocked at how big the needle was. She said she gave large needles to pregnant women in the hospitals before but this needle was much bigger than that and she didn’t really know what to do with it. That really made my confidence soar.  Anticipating disaster before a needle is always fun.  She took her time inserting it in me which was torture and apologized profusely throughout the procedure.  Not going back.  I need someone who knows what they are doing.  Basically was told too bad because they are doing needles at PMH anymore. 

I wasn’t sure I needed that shot anyway because now that I’m taking tamoxifen once again, that should stop my periods from coming back. My onc. agreed and I have one less shot going in my stomach..the big needle with the hollowed out center for a pellet to go shooting in there.  Unfortunately tamoxifen is the drug that once gave me a stroke, so I’m not exactly happy to be on this drug again.  However it does help your bones, not like the other hormone drugs that wreck your bones and give you osteoporosis.  And guess what?  Since PMH is no longer doing my needles, my husband is now going to learn how to give me the other shot in the stomach.  Do you believe this?  Cutbacks.  We can no longer provide you with someone to do your needles, so guess what, you are on your own!  Bullshit.  That is what it is. 

12109198_10207750090212940_1271571996916088075_nI asked my oncologist if he would mind writing me a letter so that I could get immunotherapy treatment in Germany.  He gave me a letter all right. It’s stated quite in emphatically in BOLD that he did not support what I was doing in Germany, that there was no scientific proof that it works, nor did he recommend the treatment.  In other words getting support from OHIP for my medical costs is not going to happen.  Immunotherapy treatment is about $50,000.00, but it can cure me while everything else can just stunt the lousy cancer until it finds its way to grow back again.  There are ZERO per cent studies being done on my type of cancer…apparently only 7 per cent of cancer research funds are allotted to metastatic cancer patients….guess they figure we are going to die anyway, so what’s the use?  Instead the goofballs use the stupid money they get for ads telling people to check their breasts for lumps.  Idiots.  And what really pisses me off about the Pink Ribbon Campaigns is that they keep touting they are so close to finding a cure.  Really?  I don’t think so.  How many years have they been searching for a cure?  Still using the same drugs developed in the war to kill soldiers to kill cancer (and the patients too).  The FDA is making too much money…something like $270,000 for 5 years per patient.  Do they really want to find a cure?  Really?  Sorry for my skepticism…. I’m on a whirl.

11254572_10206274324069706_4652111085599174120_nOn top of all this, I’m currently battling Revenue Canada who is not acknowledging my medical costs from the last two times I went to Germany. I don’t know if you have ever dealt with Revenue Canada but trying to call them on the phone is hell. Unless you phone between 8:15 to 8:30 in the morning you will NOT get through. However if you go to a nearby government office you can pick up one of their phones and get a direct line. So this is exactly what I did. I finally talked to a human being to see if they received my family doctor’s note and if they could re-examine my claim. She couldn’t do anything because it was on my husband’s taxes and she couldn’t give me any info information about it. I told her it was ridiculous because it was my medical claims that they were disputing. So she said my husband would have to phone Revenue Canada (at 8:15 am) and maybe he will get through. Like he has time to keep dialing Revenue Canada all day while he’s at work.  It’s so frustrating. Been 3 days.  Didn’t get through.  Nearest person to talk to us is in Sudbury which I would be happy to drive over there and do a sit in, but you better believe it will be fortified against intruders like me. 

Dealing with Revenue Canada is kind of like dealing with Bell Canada…..you get the runaround. I have also been after them (Bell) for the last four months for telephone and Internet service. I told them I was paying too much money for my Internet service for what I was getting, so they offered me a new modem. After the worker left, a new nightmare began because he cut the cord to my telephone line and disappeared for the day.  I had no phone and then had to call them on my cell phone for 1 1/2 hours to get them to send someone else to fix my new problem. Then I had an ugly temporary wire hanging between my house and my next-door neighbors house. I had to phone Bell about 65 times to ask them to bury the wire.  Finally it’s been done, but only after relentlessly calling them.  I thought I was going to lose my mind.

Further woes include our fairly new fridge which is doing some strange things…it’s still under warranty but they can’t send someone to fix it until I’m back from Germany. 

11703365_1087861577909176_5585447011518671387_nAnd I am heart-broken because one of my friends (Lynn Manwar) with metastatic breast cancer passed away.  She also refused chemo when she got METS and felt it would have killed her sooner if she had done it.  I was supposed to go with her to a lunch gala on Sunday in support of breast cancer.  She was a part of the unveiling of calendar in which she was dressed in a beautiful gala dress as she was one of the models.  She invited me to go with her, but I told her that I wasn’t sure it would be a good idea to go because I was returning from British Columbia at 11 o’clock Saturday night and I might be too tired.  She told me not to worry because there were plenty of other events like this and I could go to the next one with her.

I was shocked when I went on Facebook to look for postings of the luncheon I missed and there was nothing.  Instead of seeing her smiling face, what I saw was a posting from her brother informing us on Facebook that she had died.  Her aunt told me at the visitation that they were all putting on their dresses on for the event when they got a call from the hospital telling them to get there fast.  Needless to say, there was an empty table at the event. 

This all really sucks.  It’s so painful to see people we know and like die of this dreaded disease.

Hope your day is better than mine.

I’m glad I went away, however it’s hard to come back to this.