I’ve been in this hospital now for 18 days and I’m beginning to go batty. I want out of here. I’m hooked up to oxygen on my nose and I feel like Frankenstein with bolts(drains) coming out of both sides. They are connected to chambers to collect the fluid coming out of my lungs. So far 5 litres have come out of my left lung. I can’t sleep on either side and my tailbone is taking the brunt of the pressure of me lying on it.
I wasn’t sent home because I got an infection after my procedure. I knew something was wrong because I started spitting brilliant yellow saliva and previously it had been clear. I was put on antibiotics. The first batch didn’t work so they had to give me something stronger. That new antibiotic ruined my stomach and I started throwing up what little food I could get in my stomach. One day I puked was green bile and pus. So much for trying to keep my weight stable while being in hospital. The hospital food has been awful. Dessert is those sugary fruit cups from China and there is no English translation on the top. Who knew how much sugar was in it? Was so glad when the week of antibiotics was over so I could try eating again. I still have an appetite but I can eat very little cause my stomach has shrunk. Luckily people have been bringing me a variety of food when they come to visit me so I’m hanging in there.
The first week here my roommate was Tom Jakobek’s (previous MP for the beaches) mother. We got along well. I was really sad when she left.
That night they sent me a snorer and it was pretty bad. I couldn’t sleep. The nurse gave me ear plugs but I was begging to move rooms even though I had a window spot. I needed to sleep. They found me another room and it was the corner suite (10B). Not only did it have more windows and counter space, it was bigger too. There also is a recliner for those poor people that stay with me overnight.
Nights are the worse for me. If I slide down my bed (which happens frequently on this air pressure mattress I’m on to prevent bed sores), I could suffocate on the fluid build up. I can’t get myself up on my own and feel better if someone is with me, helping me when I get into trouble.
On October 4, I had a really bad night. I knew something was really wrong and I thought I was going to die. My friend Deborah was with me and I called my husband in the middle of the night to come to the hospital.
The next day the thoracic team came into my room to tell me the X-ray from yesterday indicated that my left lung collapsed and they would have to do surgery now to drain some fluid out of there and get it working again (even though I had an infection). And they were going to put in a needle to aspirate me right in my room.
The left side has been draining well but the stuff coming out now is quite bloody.
The right side hasn’t been draining at all despite having blood thinners put in there twice to try to dislodge whatever was blocking the tube. The drs can’t move the tube and have been x-raying me to death daily (plus 3 ct scans). They couldn’t figure out why it wouldn’t work. So last night a respirologist came to check my drains. I told her the left drain was fine but the right was a problem. She looked at it and said sometimes this blue saline connector prevents the liquid from draining especially if the fluid is thick. She removed the blue connector and voila the damn thing started draining. I told her it was a miracle. I’ve had respirologists come 3 times a day and no one figured it out. How come she knew that? She said she’s been here a while. The people who work here look like they are 12. Guess that happens when you get to be my age.