Parasites

Well, I got most of my results today.  As expected things are not great.  I figured that anyway cause I’m feeling quite shitty.  Areas that are in trouble include my:

pancreas

gallbladder

liver

kidney

central nervous system

digestive system

thyroid

Hippothalamus/brain

cortisol levels

and I think my adrenal glands but I wasn’t sure what he said about that.   Basically my immune system has tanked.

Anyhow, he confirmed the parasites are what’s causing this problem and my amalgam fillings are feeding the worms.   My eight amalgams are decaying and I couldn’t fix them because I was taking a bisphosphonate to support my bones.  It causes necrosis of the jaw when having dental work done so I wanted to be off it for several months before I undertook the procedure. However, given the toxic state I am in, I cannot take them out as it could probably kill me.  Also my mouldy house didn’t help matters.

I guess the only real good news is when I asked him if my fluid filled lungs are because of cancer he said, “No, it’s because of the parasites.”   “Good”, I said, “That’s what I thought because my oncologist wants me to go on chemo because my lungs are full of cancer and my radiation dr told me if I start to see double to phone him so he can radiate my brain.   Oh and my family dr thinks those aren’t worms but my intestines are coming out of me.”

He just looked at me and didn’t say a word.

Sometimes it’s best to say nothing, I guess.

Today, I had a colon hydrotherapy which made me feel better.  Then 8 minutes with a biophoton machine on my brain and 8 minutes on my lungs.  I must say my asthmatic lungs felt much better after that.

Tomorrow I’m going to have my Global Diagnostic test which is when they hook me up to a very expensive Swiss computer that checks the frequencies of each body part and organ and tries to fix whatever deficiencies it finds.  It also gives you a readout of what is and is not working.  It’s very elaborate and I can’t wait to see the results..

They are also going to oxygenate my blood through an ozone IV where my blood is taken out, irradiated, and then brought back to me.  That will help all my cells get the oxygen it needs.  My blood is thick and black and that’s not good.

Getting stem cells injected in my butt.  They are putting other stuff I need in my other IVs because I had a problem with Bobo giving me needles in the wrong spot.   Looks like I have some nerve damage as a result   I’m having difficulty lifting up my left leg.   Sometimes I literally have to pick it up to move it when getting in and out of the car.  But I drive a Jaguar now and I must do it.  Fuck my leg.  It needs to behave so I can have some fun.

Anyhow, I’m really tired and must go now because I have to be at the clinic by 8:30.

Diagnostic Testing… Now Waiting for Results

Dear friends,

Today I did most of my diagnostic testing (eye photo, blood work, hands/feet photos, urine and saliva tests).   Tomorrow I will find out if they can help me.

I’m worried.  I am in bad shape.  Hard to sleep at night when I’m constantly coughing and spitting up mucus.  Don’t know if that parasite cleanse was a good or bad idea.  Don’t know if my gut is reparable as so many food items are causing me grief and I don’t know if my body can handle the treament protocol given my drastic weight loss.  Also worried that my cancer may be active again and what do I do about it if it is in my lungs (as my oncologist keeps insisting).  One thing for sure.  Not enough oxygen in my blood as it was black when I glanced at it in the vial.   Shit.

I told Dr Mariam that I stopped taking the injections they gave me since January because I thought my husband hit a nerve a couple of times and I was having trouble lifting up my left leg as a result.  She told me I was probably right and that she would try to put some of the injections they were going to give me in my IV instead.  However, some of the stem cell ones had to be injected in the butt.  That concerns me.

Its 1:30 in the morning   Time for bed.  I see Dr Sommer and Dr Mariam at 2:00 tomorrow so I can sleep in.

🙏Needing some prayers🙏

Koln (Cologne, Germany)

 

Sunday, May 21, 2017

One of my former church choir directors, Steven Handrigan, told us about this fabulous Cathdral in Cologne, Germany after he took his students from the St. Mikes Choir School to sing there.  You could tell it was a church that really impressed him by the gleam in his eyes every time he talked about it.  So I decided it would have to be on my bucket list.  So off I went with Maria and Falitza.

Here is some of what we saw.

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It was enormously tall and black.  A stark contrast from the Duomo in Milan that was also very intricate, but pristine white.

The stain glass windows inside were most colourful and bold depicting pictures of Mary, Christ and the apostles.  They were quite beautiful.

Street painters.

And a homeless duck… with a pint of German beer of course!

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Koblenz

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Decided to visit a place called Koblenz before we head off to Cologne or koln.

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It was really something.  We took a cable car to the Ehrenbreitstein Fortress and saw the most magnificent view of the Rhine River overlooking the German Corner (Deitsches Eck).  That is where two rivers join.  It was neat watching huge boats get swept away at the corner trying to get up the next river.

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The fortress was quite grand too but it required a lot of walking which I am not in the best of health to do right now.  It took a lot out of me and I had to take a painkiller by the time we got to a restaurant where we could rest and eat.

I’ve come to the conclusion that there are really no gluten free options at any restaurants in Germany. I’m stuck pretty much just eating salad and the odd soup if I can find one with no milk, cheese, tomatoes or wheat.  However the view we had from the outside, then the inside (it was cold and we moved) was awesome.

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Maria had her pint of German beer (she claims she will have one everyday until her treatment starts and then she will be good).

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The fortress was immense.  It guarded the waterways and railway lines.  Here are some pics.

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Really could have used my heating pad after that long walk but I kind of blew it up in Weisbaden the night before.  I plugged it in and put it in my pillow to warm it up as I went to the bathroom to brush my teeth.  When I got back the thing was melting on my pillow.   Didn’t know the voltage was so high in Europe that even with a converter, it would overheat the heating pad.  The metal coils were protruding through the plastic cover. I was lucky I didn’t plug it in and take a bath because it would surely have caused a fire by the time I got back.  I didn’t know what to do with the smelly burning plastic thing.  I ended up shoving it on the shower floor so it would cool and disposed it in the morning.

Good thing I didn’t burn the hotel down.

 

 

Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

Never A F**n Dull Moment

So today I went to see my radiologist all ready to hear the words that my bone marrow was full of cancer (because that’s what usually happens when I come back from having treatment in Germany).

But that wasn’t what he said.  He said everything is stable but your BRAIN IS BLEEDING!

Really?  Seriously?  WTF?

Do you have headaches?  Well, yes, actually I had one this morning.

I’m going to send you to have an urgent brain MRI.  Hopefully you will get one some time next week.  But if you have any more headaches, call me.

Forget that shit.  If I wake up and have another headache I’m going to check myself into Emergency where I will have a scan done right then and there.  And what if I don’t wake up?  Should I be telling my daughter that if I don’t wake up tomorrow, to call for an ambulance.  That will probably freak her out.

My radiation Dr. had me do some tests to see how coordinated I was.  Hey, this reminds me of when I had a stroke”, I told him.  “Let me guess, is the area I’m bleeding in happen to be in the right cerebellum?”  “Yes,” he answered, a bit shocked.  “Well, that’s where I have a hemangioma”, I told him.  “Where did you have that scan done?” he asked.  “Right here”, I told him, “In April 2010”.  He disappeared for a moment and found my scan on the computer and said that made him feel a little bit better.  But then he also asked why wasn’t this picked up before?

I sure don’t have the answer to that.  But here is my question. If my scan was done on December 23rd and it was now December 28, why the heck didn’t anyone phone me and tell me before now?  Honestly if my brain was bleeding all that time, I probably should have been dead by now.  But I’m not dead.  I am very much alive.  And therefore I am not going to panic about it because that serves no purpose.  When this passes, this is going on record as another time there was a mistake.   That will be mistake #6.  But who’s counting?

So is my brain bleeding or is this something that’s been there a while?  Tune in to the saga next week when I go for my MRI.

How I Fried My Face

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Oh I did a really stupid thing yesterday.

After Christmas celebrations at my sister and then my brother-in-laws house’s, my daughter Frick decided she wanted to do something about the blackheads on her nose.  I said, “Oh Good, now look on the internet and see if you can find something natural to get rid of them”.  “Okay”, she said and quickly came up with a web-site with 12 different recipes.  I read them.  One treatment recommended making a baking soda paste, but she didn’t want to do that.  I thought the honey and cinnamon essential oil looked good.  I like the smell of cinnamon and wanted to try that.  She decided on just putting lemon juice on her nose for 10 minutes. 

Did I tell you I bought some essential oils for only $3 at the Christmas Markets on my recent travels to Germany.  That foreshadows what is yet to come.  They had a whole bunch of symbols on the bottle of Zimt (cinnamon) which I didn’t recognize, nor could read.

So I made a little concoction with some honey and my new German cinnamon oil and stuck it on my nose.  More drops came out than I expected, but I wasn’t worried.

Within 30 seconds of applying the paste on my face I was running around like a lunatic trying to sedate the GROWing Red, Red, REDNESS on my nose (and half my cheeks).  My face was on FIRE!  

I ran to the kitchen and started putting coconut oil on it to dilute it with carrier oil (that was a little trick I learned when I put peppermint oil on my temples to relieve a headache and my eyes were crying because I put it too close to them). 

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The oil helped my burning face a bit.  Then I kept washing my face with really cold water.  I was horrified at how red my face was getting.  I would never be able to leave my home and go out like this.  Was I scarred for life?  What if its permanent?  What have I done?  I need my face?  HELP!

I called my cousin in Australia.  She is my go to person when everyone else in sleeping on this side of the world. 

crazyShe calmed me down while Bobo and Frick went to Shoppers Drug Mart at 11:30 at night, (on Christmas), to find me some aloe moisturizer to calm my frying face down.  They could only find stuff with chemicals in them like dyes, parabens, phthalates, parfums, PEGS, etc, etc and I didn’t want to put that on my face.  So I put some calamine lotion on it which relieved some of the pain.  But then that white stuff was going inside my blackhead pores and it was looking kind of like white holes in a really red face.  Scary.  So I took it off and put on some more coconut oil.

Frick said later that next time we should read the instructions first.  You think?  A budding Einstein, I’ve got here.  She googled one of the words on the cinnamon bottle…  something about sensitive skin.  I need to learn German, really I do.

Here is my bottle of Zimt.

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Not sure what the Big X stands for.  Do you?

The other picture below the X looks like a dead fish. 

What is that suppose to mean.  The stuff in this bottle kills the environment?  How ‘bout my face?


The next day….

I’m glad to report that my red face is much better today, with very few visible blackheads.  Thats because the German cinnamon oil burned them to death. 

I would have taken a picture of my flushing face because I knew I would blog about it today, but I was too busy screaming to find my phone. 

I will never look at cinnamon the same again.

Everything Tastes Better When You Can’t Eat It

Friday, December 15 (Photos of Frankfurt, Germany)

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Nice Tie Sculpture!

I’m home now and we have had quite a bit of snow here in Toronto.

It’s beginning to look a lot like Christmas.

My Lufthansa flight last week went as planned…wasn’t sure whether the pilots would still be on strike, but they must have settled because all was good.

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Bobo has been watching too many of those Border Patrol shows late at night, because when the declaration note came for us to write down what we were carrying, he told me to mark “YES” under “Are you carrying any type of food, dairy, seeds, nuts, blah, blah, blah.” He said they were going to confiscate my stuff anyway, but at least I wouldn’t get charged and go to jail.  Really?  Really?  Do ya really think I’m going to jail because of some cake?  I figured I could talk my way out of it, so I told him stay quiet behind me while I spoke to the customs officer. 

 

img_4542I think the customs guy got a kick out of dealing with me because he was laughing his head off after our brief little discussion about what I was bringing into the country (I think they are paid to look very mean with no hint of a smile so you’d crack under pressure).  I told him I bought some Christmas Cake (Stollen) and I was sure it had nuts and seeds in it and I also had a package of stuff for my Gluhwein.  With a twinkle in his eye, he asked, “And What Exactly is Gluhwein?”.   “Oh, it’s amazing,” I said.  It’s like mulled wine and you have to put some seasoning things in there like cinnamon, cloves, and cardamon seeds”.  It’s delicious.  Those are the seeds I brought back.  He chuckled and said, “Is that all you have to declare?”  I thought for a second and said, “Yup” and he let us go on our merry little way.  Was going to tell him we also hauled a big antique clock for my dad half way across the world in an extra suitcase, but thought better of it.  The less said, the better.  If he was going to let me keep my Christmas Stollen and Gluhwein kit, I was happy.

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If they took my Christmas Cake, I wouldn’t have been too upset ‘cause I can’t eat it anyway because it probably has wheat in it.  I am truly bummed out about all the foods I have to stay away from for 3 months.  It’s been a difficult week scrounging recipe books for things that have no dairy products, eggs, nuts, and is gluten free,  I made some muffins and cookies according to this new criteria and they tasted like shit.

Don’t you know, everything tastes better if you can’t eat it.  Sigh.

img_4560Two more things I wanted to tell you.  When I was hooked up to the Global Diagnostic Computer in Germany, it indicated that I have traces of Lyme Disease in my body.  May have been there for a long time.  Lyme Disease comes from a Deer Tick and screws up your hormone balance and immune system (so your body doesn’t recognize cancer is a threat).  Wondering if this could be the root cause of my problem.  Sent a blood test express post for analysis (which I was told may or may not be accurate…sometimes it reads a false negative).  Waiting for the results.  Dr. Mariann told me if it does come up as a positive reading, not to worry about it because she can cure it in two years.

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Going to have an MRI next Thursday and will be seeing my radiation doctor on the 28th.  That should be fun.  Especially when it will look like my bone marrow is completely full of cancer again and I tell him the thing in my neck is not cancer.  I’m not doing anything for at least 3 months until the dust settles and I have another MRI.  Then I will have a clear picture of whats going on, if anything.

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I’m reaching my limit on my free wordpress blog space.  I’m at 85% capacity.  Not sure what I want to do.  Don’t really want to pay $18 a year for my own domain, so I may open up a new blog soon.  We shall see.  

Hoping my followers will keep following me! 

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Ulm and Stuttgart

 

Wednesday

img_4388Short day today. Five needles in the butt (stem cells + medicine to help liver, spleen etc). Did my bio photon machine and I was good to go.

Planning on visiting Ulm and hopefully Stuttgart. Ulm is where they make Teddy Bears so it’s going to be a unique Christmas market bonanza (I hope). Can’t say I’ve been disappointed in any of the places I have visited. Such a very beautiful country.

It’s snowed outside of Baden-Baden. Beginning to feel like Christmas. Already got my Christmas present this year…I’m not dying or have to get zapped! Nothing better than dat!

Dr Mariann said hopefully I will just have to come once a year for maintenance now. That is a good feeling. Just got to stop eating all the food that’s aggravating my intestine.

Discovered another thing I’m having difficulty tolerating and that’s CHICKEN. Holy. Like really? I always felt so sorry for my cousin Bru because she also had to stay away from fowl beasts. My report said the meat I need to stay away from includes chicken, duck, and lamb. Meanwhile I’ve been drinking chicken bone broth to help aid my gut and give me more nutrients! Damn! I hope that doesn’t mean no Christmas Turkey Dinner!!! No Stuffing? Bread? Mash potatoes with milk? Ahhhh life is over. No gravy either because of the flour?

Nope! Not doing it on Christmas Day or all I’ll be eating is beets! My intestines, lungs, neck will just have to suffer one day while I enjoy my food.

Crap if I’m only eating vegetables and fruit all day, I’m really going to become a skinny mini! On the other hand, maybe I’ll lose the rest of my Buddha belly.

Getting snowier as we get closer to Munich.

img_4382This is so funny. So when you are driving in Germany on the highway the overhead signs in each lane warn you about what’s coming up. If there is an accident it slows you down from 120 to 100, 80, 60 km and so on. We just saw a triangle sign with an exclamation mark inside that said, what looked like SHIT! 60. Bobo said does that mean that the next sign indicating a slower speed is going to say F*#k?

Long 2 hour drive to Ulm. I asked Bobo if I found a place in Toronto to do the colon cleanse if he would go to get the rest of the rocks out of there. He said no, they were his friends. How do you deal with that? Dr Mariam said his liver and cell metabolism needs help so they will be sending him home with injections.  Ha now I’m not the only one with needles every day!

Stopped for gas. It’s green on one side on the highway and snowy on the other.  Bizarre.

We then stopped off in Stuttgart but almost left because our GPS was giving us trouble again.  We passed the same circus  tent 3 or 4 times.  Maddening!

We have a nice walk meandering through the town.