Parasites

Well, I got most of my results today.  As expected things are not great.  I figured that anyway cause I’m feeling quite shitty.  Areas that are in trouble include my:

pancreas

gallbladder

liver

kidney

central nervous system

digestive system

thyroid

Hippothalamus/brain

cortisol levels

and I think my adrenal glands but I wasn’t sure what he said about that.   Basically my immune system has tanked.

Anyhow, he confirmed the parasites are what’s causing this problem and my amalgam fillings are feeding the worms.   My eight amalgams are decaying and I couldn’t fix them because I was taking a bisphosphonate to support my bones.  It causes necrosis of the jaw when having dental work done so I wanted to be off it for several months before I undertook the procedure. However, given the toxic state I am in, I cannot take them out as it could probably kill me.  Also my mouldy house didn’t help matters.

I guess the only real good news is when I asked him if my fluid filled lungs are because of cancer he said, “No, it’s because of the parasites.”   “Good”, I said, “That’s what I thought because my oncologist wants me to go on chemo because my lungs are full of cancer and my radiation dr told me if I start to see double to phone him so he can radiate my brain.   Oh and my family dr thinks those aren’t worms but my intestines are coming out of me.”

He just looked at me and didn’t say a word.

Sometimes it’s best to say nothing, I guess.

Today, I had a colon hydrotherapy which made me feel better.  Then 8 minutes with a biophoton machine on my brain and 8 minutes on my lungs.  I must say my asthmatic lungs felt much better after that.

Tomorrow I’m going to have my Global Diagnostic test which is when they hook me up to a very expensive Swiss computer that checks the frequencies of each body part and organ and tries to fix whatever deficiencies it finds.  It also gives you a readout of what is and is not working.  It’s very elaborate and I can’t wait to see the results..

They are also going to oxygenate my blood through an ozone IV where my blood is taken out, irradiated, and then brought back to me.  That will help all my cells get the oxygen it needs.  My blood is thick and black and that’s not good.

Getting stem cells injected in my butt.  They are putting other stuff I need in my other IVs because I had a problem with Bobo giving me needles in the wrong spot.   Looks like I have some nerve damage as a result   I’m having difficulty lifting up my left leg.   Sometimes I literally have to pick it up to move it when getting in and out of the car.  But I drive a Jaguar now and I must do it.  Fuck my leg.  It needs to behave so I can have some fun.

Anyhow, I’m really tired and must go now because I have to be at the clinic by 8:30.

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Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

Everything Tastes Better When You Can’t Eat It

Friday, December 15 (Photos of Frankfurt, Germany)

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Nice Tie Sculpture!

I’m home now and we have had quite a bit of snow here in Toronto.

It’s beginning to look a lot like Christmas.

My Lufthansa flight last week went as planned…wasn’t sure whether the pilots would still be on strike, but they must have settled because all was good.

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Bobo has been watching too many of those Border Patrol shows late at night, because when the declaration note came for us to write down what we were carrying, he told me to mark “YES” under “Are you carrying any type of food, dairy, seeds, nuts, blah, blah, blah.” He said they were going to confiscate my stuff anyway, but at least I wouldn’t get charged and go to jail.  Really?  Really?  Do ya really think I’m going to jail because of some cake?  I figured I could talk my way out of it, so I told him stay quiet behind me while I spoke to the customs officer. 

 

img_4542I think the customs guy got a kick out of dealing with me because he was laughing his head off after our brief little discussion about what I was bringing into the country (I think they are paid to look very mean with no hint of a smile so you’d crack under pressure).  I told him I bought some Christmas Cake (Stollen) and I was sure it had nuts and seeds in it and I also had a package of stuff for my Gluhwein.  With a twinkle in his eye, he asked, “And What Exactly is Gluhwein?”.   “Oh, it’s amazing,” I said.  It’s like mulled wine and you have to put some seasoning things in there like cinnamon, cloves, and cardamon seeds”.  It’s delicious.  Those are the seeds I brought back.  He chuckled and said, “Is that all you have to declare?”  I thought for a second and said, “Yup” and he let us go on our merry little way.  Was going to tell him we also hauled a big antique clock for my dad half way across the world in an extra suitcase, but thought better of it.  The less said, the better.  If he was going to let me keep my Christmas Stollen and Gluhwein kit, I was happy.

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If they took my Christmas Cake, I wouldn’t have been too upset ‘cause I can’t eat it anyway because it probably has wheat in it.  I am truly bummed out about all the foods I have to stay away from for 3 months.  It’s been a difficult week scrounging recipe books for things that have no dairy products, eggs, nuts, and is gluten free,  I made some muffins and cookies according to this new criteria and they tasted like shit.

Don’t you know, everything tastes better if you can’t eat it.  Sigh.

img_4560Two more things I wanted to tell you.  When I was hooked up to the Global Diagnostic Computer in Germany, it indicated that I have traces of Lyme Disease in my body.  May have been there for a long time.  Lyme Disease comes from a Deer Tick and screws up your hormone balance and immune system (so your body doesn’t recognize cancer is a threat).  Wondering if this could be the root cause of my problem.  Sent a blood test express post for analysis (which I was told may or may not be accurate…sometimes it reads a false negative).  Waiting for the results.  Dr. Mariann told me if it does come up as a positive reading, not to worry about it because she can cure it in two years.

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Going to have an MRI next Thursday and will be seeing my radiation doctor on the 28th.  That should be fun.  Especially when it will look like my bone marrow is completely full of cancer again and I tell him the thing in my neck is not cancer.  I’m not doing anything for at least 3 months until the dust settles and I have another MRI.  Then I will have a clear picture of whats going on, if anything.

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I’m reaching my limit on my free wordpress blog space.  I’m at 85% capacity.  Not sure what I want to do.  Don’t really want to pay $18 a year for my own domain, so I may open up a new blog soon.  We shall see.  

Hoping my followers will keep following me! 

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Tubingen (Chocolate Market)

Friday, Dec 2

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It’s Friday. Convinced Bobo that he needed to have a colon hydrotherapy session today given that he only goes to the bathroom once every 4 days and plugs up the toilet. I told Pamela, the lovely therapist from London to watch out, he may break the machine!

 

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Yesterday I had my colon washed out. My brain and eyes received an 8 minute photon treatment which I am getting every day. I think my eyesight is getting clearer. Four injections in the butt yesterday, one today plus two in the neck. Now that really hurts but if it prevents me from having neck radiation treatment at home, I will do it.

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Last night Bobo and I went to a Spanish tapas place called Monte Christo which I heard rave reviews about from two of the locals. We had a assortment of cold and hot food platter. Too much food! Wasn’t too crazy with the meat dishes (lamb and ox tail…blah!). Dessert was nice…almond cake and Vanilla Brûlée.

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We are going to attempt to go to Tublingen soon because they have a four day special chocolate market with vendors from all over the world. Thought Bobo, my chocolate affectionato would enjoy it.

Nuts!  The damn rental GPS took us for a ride….a very long one.  Through mountain back streets and a closed road.  What should have taken us 1 1/5 hours ended taking us over 3 hours.  We saw fog, rain, cows and sheep!

Finally got to Tubingen!  What a treat!

Stunning chocolate art!

This one looks like a chocolate turd!  Line up galore…price for one?  $8!

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And samples, samples everywhere!  Gotta go to bed now cause I have to get to the clinic by 8:30 a.m.  Taking Bobo somewhere special tomorrow for his birthday which was on the 28th.

God Help Me

Friday, November 4, 2016

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Today I am out of sorts.  This generally happens to me when I have to go see my oncologist and today was no different.

Bobo came to me.  Together we try to figure out the insanity that transpires during my appointments.  My 9:45 appointment began at 11:15.

trust-e

He, my oncologist, sent me his newest guppy to figure out what I was doing.  She was a real b#*@! and I didn’t like her.  I actually argued with her and I’m proud of myself for sticking up for myself. She was telling me I’m fine and my oncologist wouldn’t have to see me for 6 months.

“Hang on,” I said.   “I have a report saying I have cancer in my neck which should be radiated in a clinical trial and some new spots in my pelvis from L2-S3.   How is it I am fine?”  I think they are trying to get rid of me.

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She also said that they wouldn’t be doing my monthly injections at the hospital any more.  Go to CCAC.  “Well that’s nice,” I responded.  “Find me someone who knows how to inject the needle in Scarborough and I will go.  And good luck with that….I don’t enjoy being tortured.”  Asked her who I go to to complain about this.  I think she was shocked I said this.  Too bad.  I tired of explaining my life to new people every time to go there.

I told her I wanted to see my oncologist because I wanted a second opinion of an MRI from another hospital.    She told me he was busy.  I insisted.  She left us for a bit.

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So in he waltzed, late, with a parade of young hopeful oncologists (3 from Brazil, 1 from some other country).  “Oh this is going to be fun”, I thought.  “I have an audience, students…my specialty.”   I told him the reason why I wanted another MRI at a different hospital was that I wasn’t convinced about what I was told about my neck.  After all, they messed up before on a tumour on C5 and then told me it wasn’t what they thought it was during the pre-op. radiation treatment.  I went to a chiropractor and had my neck painfully adjusted and maybe it’s just inflammation.  He downplayed the previous C5 neck error.  I must say I had the students hooked though.  They laughed when I told them I wasn’t going to be zapped for nothing.

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My oncologist told me that the hospital MRI machines were different and what specific part my radiation dr was looking at may be different then theirs and what was the point in doing it again?   He said if I wasn’t symptomatic (feeling pain), so it didn’t matter if I decided not to do anything right now.  He then told me that my cancer was slow growing and even if I did nothing (which apparently the treatment in Germany counts as nothing to him), it would be slow.  He is in complete denial that my “alternative” treatment is slowing the progression of the disease.  Grrrr.

I find his explanation of my condition fascinating as I am young, pre-menopausal (spreads faster than in older patients), and was diagnosed with a INVASIVE DCIS breast cancer.  Invasive.  Hmmm.  What does this word mean?  The Oxford Dictionary describes it as Tending to spread VERY QUICKLY and undesirably or harmfully.  For example:  ‘patients suffering from invasive cancer’.

Enough of the bullshit.  Bobo said my onc is having difficulty accepting the truth that the treatment I’m doing in Germany works.

So essentially the appointment concluded with…. no MRI or monthly shots at PMH.   And he doesn’t want to see me for quite a long time.  He is going to Mexico for a few weeks (and not to check out cancer treatments in Tijuana because he doesn’t believe in that “stuff”) and I’m not scheduled to see him until Feb.  But when I got home my appointment was emailed to me and now I’m not scheduled to see him until March.  That’s 5 months away. That’s a long time.  

On a positive note…no appointment anxiety.  That could be a good thing.  Right?

So how do I feel about this?  I feel like trash.  Taken out to the curbside.  No one is monitoring my monthly blood work.  Some gumba in Scarborough that doesn’t know how to stab me in the stomach properly to give me my 16 guage needle will be administering it for 5 months.  I have no idea what is really going on in my body (neck, lungs and lower back) and if I should be alarmed.  One guy says I’m fine.  The other one wants to zap me.  I think I’m going to get Bobo trained to give me the shot in the stomach if this CCAC thing doesn’t work out.  Help!

At this point, I just want to run to Germany.  

I booked one night in a castle on one of the week-ends I’m there!  

The way I see it.  You Gotta have Fun while you still have a neck and can walk.

God help me.  I’m really feeling tired of dealing with this crappy disease.

Results are In

Thursday April 28

imageIt’s rainy again. I’m back at the clinic. This morning I had my lampadina. Feeling great. Lots of energy.

WisteriaMary and I spent the evening at the Caracalla Spa. It was way less crowded than in the day time. I’ve been trying to convince her to go to Friederichbach spa with me (only women on Thursday), but I’m not sure she is going for it!  No clothes allowed.

imageThis morning I had 2 shots in the butt (stem cells) and ozone therapy. My vein collapsed 1/2 way through the ozone treatment and Mariann asked me if I was Catholic. I said, “Why? Are you going to give me my last rites?  She said, “No, if you are Jehovahs Witness we can’t restart the IV in the other arm”.

imageSo we had to call Dr Sommer to try to get another IV deep in a vein in my other arm (which I’m not really suppose to use because I have no lymph nodes there due to a mastectomy). It worked. I’m now having Vitamin B17 (amygdalin) and C therapy.

imageI told NDr Christina I had a vegan chocolate bar for her, but only if she got the IV in my arm right the first time. She was unhappy my vein collapsed. She really wanted the chocolate bar (luckily I had 2 chocolate bars in my purse, one for her and one for Dr Sommer too).

imageAt least I didn’t have to get stabbed nine times in one day like last week. The big bruise on my hand has gone away after using some type of wound healing cream called Traumeel. It works so well, I bought it at a pharmacy so I could use it at home.

imageSo I got my test results on Tuesday. Everything appears good at this time. My energy is up. My brain/hypothalamus is now working, however my pituitary gland is still struggling a bit. The cancer is dormant. My immune system is operating at 80%. And I need to detox (it’s at 38%, down from 45% when I came). So I’m getting some medicine to take home with me to help me with that, plus injections because my lymph node system is not up to snuff either.  Otherwise, I think I’m doing really well.

imageDon’t think I’m going to tell my oncologist I’m here in Germany again. I don’t need the added stress. Dr Sommer told me it would not be necessary to get tested at home for another 6-9 months. That’s good enough for me.

image image imageI’m suppose to be arriving in Canada on Saturday night, but apparently some of the airport workers are on strike yesterday and today. Good thing I have insurance! They may be footing the bill for food and accommodations if I need to stay longer!
imageAfter my treatment tomorrow morning, Mary is making me breakfast and then we are heading to Frankfurt.  I went to pick up the rental car on the side of the road near a castle where our apartment landlord said it was free.  Well guess what?  It wasn’t free. I got not one but two parking tickets.  Mary said it was too bad I have to come back, otherwise we could just not pay them!

On the bright side, at least they didn’t tow us.  I would have had to phone up the rental car company and tell them it was stolen and a darn good thing I paid $600 extra for car insurance!

Finally got to see the Baden Baden Roman Ruins yesterday.  See pics below.  This is where Roman Soldiers set up shop to recuperate in the healing thermal waters.

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Neuschwanstein Castle Week-End

Tuesday, April 26

imageWhy is it always raining here? We had good weather last week, but this week doesn’t look so hot.

Currently having ozone IV, detox IV and, of course, I had my daily lampadina earlier this morning. They cranked up the heat and now I’m getting a tan! I knew I should have gone to Cuba or Florida in the winter. I need those feel good sunshine rays.

imageOn the week end Mary and I decided to go to Linderhof Castle (where Ludwig lived until his castle was built). But we didn’t make it there. There was a sign on the road. I thought it meant it was closed, but Mary said, who cares, let’s go around it. She was driving and it didn’t matter to me.

imageThe GPS said we were 24 kms away. So we threw caution in the wind and went for it. The scenery was really beautiful and Mary was loving it. We saw the Bavarian alps behind a gorgeous emerald lake. I felt like I was in British Columbia again. At 21 km, we came to an abrupt halt. We could drive no longer. There was a baracade. Nuts. Back we went, another 21 kms.

Arrived at a gas station. The young girl told us the only way to Linderhof was to go around the entire lake which would take about an hour. It was already 3:30 and we figured we probably wouldn’t get there before it closed. What a disappointment.

imageWe rerouted the GPS to Villa Toscana in Fussen where we ate at a very cool medieval type restaurant equipped with honey wine in ale horns. Delicious! I know the guy in the lampadina machine said not to have any alcohol, but I had to do it. He also said not to bath and put creams on, but I kind of had a shower with gel and shampoo/conditioner ’cause I wasn’t too clear on that.

imageThe next day we went directly to Neuschwanstein hoping to beat the crowds there. Imagine our surprise when we looked out the next morning to see snow! Wasn’t expecting that.

imageWalt Disney modelled his castle in Disneyland after visiting Neuschwanstein. I think Ludwig was only 17 years old when he became King. He was a bit of a recluse and didn’t like servants hovering over him, so he had a table built on some sort of a pulley system where it would disappear down a floor to the kitchen, food would be placed on it by the servants, and up it went back to the dining hall for him to eat.

 

imageLudwig was betrothed to a princess from Austria but he called it off after 9 months. That didn’t sit well with the people who were expecting an heir. They were also not happy that all their King was interested in was building elaborate fairytale castles rather than govern public affairs. It didn’t help that he was gay. So the people protested and tried to have him committed. He had a brother named Otto who was a whack job and was deemed mentally ill. That certainly didn’t help. Inbreeding? Ludwig and his psychiatrist were discovered dead in a nearby lake. Both drowned under mysterious circumstances.

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imageOnly 10 rooms out of 104 were finished and opened to the public which is really too bad.  It would have been very interesting to see what Ludwig had visioned for the rest of his castle.  The views from the upper floors were spectacular.  Unfortunately, you couldn’t take photos inside the castle.

 

 

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imageMary decided the best way down was via horse and carriage. I wholeheartedly agreed, so off we went!

 

Those horses sure could have used some diapers!  It was everywhere!

A woman recommended we eat at a nearby restaurant after she heard us talking about where we should go to eat.  She said a nearby restaurant made a goulash soup that was the best she ever had. I ordered it and I say it was disgusting. And our waitress was slow and rude (no tip for her).  Mary had the sausages with mash potatoes which I’m not allowed to eat (pork= too many free radicals).  Why is it that when I’m with someone their food is always better than mine? She ordered wine.  I was jealous until I saw there was Gluhwein on the menu and then my eyes just  lite up with joy.  Too bad that the man in the lampadina machine said I wasn’t suppose to have wine!  Sometimes, you just have to live on the edge!  Christmas fruity hot wine! Yum! I was so excited. That was the best part of my meal!

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We then meandered off to Hohenschwagau Castle which was Ludwig’s Parents summer home. It was a beaut. Can’t take pics inside there either.  Just outside.

It was really cold over there and we went shopping briefly so I could buy some warmer clothes.

Mary and I flew home at 200 km/hr and it wasn’t me driving either!

Here are some great hats I tried on earlier in the day.

Una vaca espanole (for Biagia), a beer hat and a Viking one too!

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Day 4 Karlsrhue

Day 4 Thursday

This morning I was somewhat concerned to see that I had a little bit of a rash on both my arms. I thought I may have been reacting to an IV allergy, but Mariann told me it was just my body detoxing.

So under the lampadina (Italian word for lamp) I went again. This time I caught the words, “I advise you NOT to use creams while using this ultraviolet treatment”. Then I’m thinking, “Or you may turn green by the end of the day”. That Italian guy in the machine is making me crazy.

Today I had ozone therapy, a detox IV, and amygdalin. Christina poked me four times to get the IV started. No luck. So they had to call Dr Sommer to dig in there and get one of my deep veins. It was rough. Mariann and Christina don’t like to do it. I don’t blame them because I wouldn’t want to do it either.

So you get the guys to do the dirty work! Jam it right it there! No problem. Was done by twelve, so Mary and I decided to go to Karlsrhue to see the palace and gardens. Here’s some pics.

We were about to go to Stuttgart too, but there was a lot of traffic and the GPS kept bringing us to a “closed for maintenance road.”   Asked two young guys for help after we circled the place.  We were getting no where in a hurry. Luckily they told us an alternate route to get to the highway. It was so backed up with traffic, we figured we would be better off just going home. And that is just what we did.

We decided to eat tapas at a Spanish restaurant in Baden Baden. We ate about 9 different appetizers/tapas before we thought to take a picture of our decadent meal.  Peppers in pastery, mushrooms, pollo my croquettes (like a mortzarella cheese stick), olives,  churrasos, calamari, chorizo, etc.  Appetizer heaven. Sorry I didn’t take a pic of it.  All I can say is that it was really quite good. May have to go there again for some seafood paella.

 

Day 3 “1,000 Ways To Die”

Wednesday – Day 3 Treatment

imageOne lampadina Treatment at 8:30 this morning.  I’m catching some more things from that Italian guy.  Forgot he said not to have alcohol yesterday.  Maybe that’s why I had a rip roaring headache today.

imageMary made us a lovely meal of curried chicken, roasted potatoes and salad for dinner.  I had to have some German wine from this region after trying all those wines from Italy!  Da vino is much better in Italy, hands down.  Sorry Germany!

imageSome key phrases I picked from the Italiano on the machine today included…”I beg of you, DON’T open your eyes unless you want to damage your corneas”.  “Great,” I thought.  And,  “I warn you DON’T fall asleep”. (My thoughts…unless you want to wake up a crispy critter, you’d better keep on rotating like a Swiss Chalet rotisserie chicken!).

imageWhile lying there,  I kept envisioning being a victim on the next episode of Bobo’s favourite show “1,000 ways To Die”.  Quite frankly,  I don’t think I followed the instructions to a tee.  I thought I was on my pancha (stomach) too long and flipped over to my back (Dorso?) prematurely.

imageAfter that I had 4 shots in the ass and then had a colon hydrotherapy treatment.  The things you have to do to stay alive, right?  Well, at least I got some of the shitters out of me.  I’ve got 3 more to go.  Stomach is getting flatter.  I like those results!

imageMary and I went shopping a bit and then walked down Lichtentaler Allee.  It is spring and quite beautiful.  These pics are some of the sights we saw on our walk.

 

 

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Later  we  went to the Lowenbrau Beer Garden so Mary could have some real German Beer.  It’s such a nice place to go to.  And no I didn’t really drink that beer…the Italian man in the lampadina machine told me I wasn’t allowed!

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