St. Anne’s Spa

Our Trip to St. Anne’s Spa

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One of my favourite cousins, Franca, was visiting from Italy recently and we decided to go to St. Anne’s Spa overnight with her sister, Nora, her children Daniella and Josie and my sisters.

 

IMG_6772Our adventure began as soon as we got there. The oxygen tanks, pillows, suitcases, etc. were piled high on a large cart. Josie told everyone she would take me in the wheelchair. Unfortunately, the regular pathway had 4 steps and it was strewn with large flat rocks. The wheelchair would probably get stuck in between the cracks. So Josie said she had an idea. She saw some of the staff using an adjacent, smoother pathway at the end of the driveway. “Good, Let’s go that way then!”, I said. Josie asked me if I wanted to wear the seatbelt in the wheelchair. I said, “No”, I didn’t want to bother. That’s great foreshadowing for what’s coming up.

So she took me to the path, or rather hill, at the end of the drive and down we went faster, and faster and faster. Josie held me tight with her left hand, fearing I was going to topple over, driving the wheelchair with her right hand screaming, “Oh My God, Oh My God, Oh MY GAWDD!!! as we flew recklessly down the hill at neck break speed. “Let go!” I yelled at her. “LET GO” I repeated, laughing so hard I couldn’t breathe. The ground started levelling off. We made it. The two of us were laughing hysterically. We turned around to see what happened to Pina who was behind us with the cart full of oxygen tanks. All I saw was her butt sticking up in the air and the cart in a bush at the side of the path. That got me and Josie laughing even more. Then Angie came down the hill screaming “I told you guys to wait for me! I could have had this all on video if you listened to me!” Pina did not look happy. I imagine it wasn’t easy to go down a hill with a cart full of stuff chomping at the back of your calves. All I can say is that it’s a darn good thing one of the tanks didn’t land on its top or she would have been catapulted into space.

When we got to the reception room we were still laughing and told everyone about our nice trip down the hill. One of the kind reception workers said, “There is a sign in the parking lot that says we offer assistance, if needed”. I laughed and said “Are you kidding me? And miss that adventure. No way!”

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We had a wonderful time. So nice to be with everyone and the staff there were exceptional. Food was fabulous and I even managed to gain some much needed weight! So glad I got this break. Felt so much better after breathing the country air and eating good food.

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Problems in July.

July 2017

Dear friends

I’m really not doing so hot right now and weird things are happening to me again. Remember when I had the stroke/TIA and started running backwards and I became hypersensitive to sounds? Well, now I’m hypersensitive to Wifi/EMFs. It’s really bizarre. If I go anywhere near wifi, I can’t breathe and violently cough out a lung. Phlegm spews out of me big time. I can’t even research it to find out why this is happening to me because I can’t get near a computer. Decided to try writing on notes on my iPad and then fire it up on the wifi at my sisters house when I’m outside and they turn it on.

Frack is unhappy because I had to turn off our Bell Router (internet and TV). He broke his foot playing soccer and is in an air cast. Frick sprained her elbow and was in a sling. And I’m in a wheelchair sporting an oxygen tank. The three of us look like we’ve been in an accident.

I’m living at my younger sisters house with the kids right now because I really can’t take care of myself. Preparing meals is not happening right now as it’s hard enough for me to get in the kitchen and make some toast for myself. Besides, I can’t even turn on the gas stove to heat anything up (should I blow myself up with the oxygen tank). CCAC has offered me a Personal Support Worker at 3:00 for 1 hour, three times a week. It’s kind of useless cause I really need someone to feed me at breakfast, lunch, or dinner. They are only allowed to reheat meals, give me a bath (but not if I can’t get out of the tub on my own), and light house-keeping (but only in the rooms I use and only my dishes can be washed). If I didn’t have my sisters to help me, I’d be dead by now. I don’t know what people do in my condition if they don’t have family and friends helping them.

So I didn’t fair well on my last trip to Germany. I was 105 lbs when I left and 94 lbs when I got back. It’s hard to live gluten, dairy and nut free and its so restrictive. Germany has lovely breads, pizza, pasta and sandwiches which I couldn’t eat. And I could only take so much of salads.

I have mould issues at home, leaching dental amalgams, Lyme disease and cancer. The last few minutes months have been difficult and I don’t seem to be bouncing back. I’m worried.

Parasites

Well, I got most of my results today.  As expected things are not great.  I figured that anyway cause I’m feeling quite shitty.  Areas that are in trouble include my:

pancreas

gallbladder

liver

kidney

central nervous system

digestive system

thyroid

Hippothalamus/brain

cortisol levels

and I think my adrenal glands but I wasn’t sure what he said about that.   Basically my immune system has tanked.

Anyhow, he confirmed the parasites are what’s causing this problem and my amalgam fillings are feeding the worms.   My eight amalgams are decaying and I couldn’t fix them because I was taking a bisphosphonate to support my bones.  It causes necrosis of the jaw when having dental work done so I wanted to be off it for several months before I undertook the procedure. However, given the toxic state I am in, I cannot take them out as it could probably kill me.  Also my mouldy house didn’t help matters.

I guess the only real good news is when I asked him if my fluid filled lungs are because of cancer he said, “No, it’s because of the parasites.”   “Good”, I said, “That’s what I thought because my oncologist wants me to go on chemo because my lungs are full of cancer and my radiation dr told me if I start to see double to phone him so he can radiate my brain.   Oh and my family dr thinks those aren’t worms but my intestines are coming out of me.”

He just looked at me and didn’t say a word.

Sometimes it’s best to say nothing, I guess.

Today, I had a colon hydrotherapy which made me feel better.  Then 8 minutes with a biophoton machine on my brain and 8 minutes on my lungs.  I must say my asthmatic lungs felt much better after that.

Tomorrow I’m going to have my Global Diagnostic test which is when they hook me up to a very expensive Swiss computer that checks the frequencies of each body part and organ and tries to fix whatever deficiencies it finds.  It also gives you a readout of what is and is not working.  It’s very elaborate and I can’t wait to see the results..

They are also going to oxygenate my blood through an ozone IV where my blood is taken out, irradiated, and then brought back to me.  That will help all my cells get the oxygen it needs.  My blood is thick and black and that’s not good.

Getting stem cells injected in my butt.  They are putting other stuff I need in my other IVs because I had a problem with Bobo giving me needles in the wrong spot.   Looks like I have some nerve damage as a result   I’m having difficulty lifting up my left leg.   Sometimes I literally have to pick it up to move it when getting in and out of the car.  But I drive a Jaguar now and I must do it.  Fuck my leg.  It needs to behave so I can have some fun.

Anyhow, I’m really tired and must go now because I have to be at the clinic by 8:30.

Diagnostic Testing… Now Waiting for Results

Dear friends,

Today I did most of my diagnostic testing (eye photo, blood work, hands/feet photos, urine and saliva tests).   Tomorrow I will find out if they can help me.

I’m worried.  I am in bad shape.  Hard to sleep at night when I’m constantly coughing and spitting up mucus.  Don’t know if that parasite cleanse was a good or bad idea.  Don’t know if my gut is reparable as so many food items are causing me grief and I don’t know if my body can handle the treament protocol given my drastic weight loss.  Also worried that my cancer may be active again and what do I do about it if it is in my lungs (as my oncologist keeps insisting).  One thing for sure.  Not enough oxygen in my blood as it was black when I glanced at it in the vial.   Shit.

I told Dr Mariam that I stopped taking the injections they gave me since January because I thought my husband hit a nerve a couple of times and I was having trouble lifting up my left leg as a result.  She told me I was probably right and that she would try to put some of the injections they were going to give me in my IV instead.  However, some of the stem cell ones had to be injected in the butt.  That concerns me.

Its 1:30 in the morning   Time for bed.  I see Dr Sommer and Dr Mariam at 2:00 tomorrow so I can sleep in.

🙏Needing some prayers🙏

Koblenz

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Decided to visit a place called Koblenz before we head off to Cologne or koln.

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It was really something.  We took a cable car to the Ehrenbreitstein Fortress and saw the most magnificent view of the Rhine River overlooking the German Corner (Deitsches Eck).  That is where two rivers join.  It was neat watching huge boats get swept away at the corner trying to get up the next river.

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The fortress was quite grand too but it required a lot of walking which I am not in the best of health to do right now.  It took a lot out of me and I had to take a painkiller by the time we got to a restaurant where we could rest and eat.

I’ve come to the conclusion that there are really no gluten free options at any restaurants in Germany. I’m stuck pretty much just eating salad and the odd soup if I can find one with no milk, cheese, tomatoes or wheat.  However the view we had from the outside, then the inside (it was cold and we moved) was awesome.

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Maria had her pint of German beer (she claims she will have one everyday until her treatment starts and then she will be good).

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The fortress was immense.  It guarded the waterways and railway lines.  Here are some pics.

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Really could have used my heating pad after that long walk but I kind of blew it up in Weisbaden the night before.  I plugged it in and put it in my pillow to warm it up as I went to the bathroom to brush my teeth.  When I got back the thing was melting on my pillow.   Didn’t know the voltage was so high in Europe that even with a converter, it would overheat the heating pad.  The metal coils were protruding through the plastic cover. I was lucky I didn’t plug it in and take a bath because it would surely have caused a fire by the time I got back.  I didn’t know what to do with the smelly burning plastic thing.  I ended up shoving it on the shower floor so it would cool and disposed it in the morning.

Good thing I didn’t burn the hotel down.

 

 

Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

A Tale From My Irish Friend, Maria O’Kane

Several years ago I had the pleasure of meeting a very special friend named Maria O’Kane. She told me the funniest tale about a trip she made on the subway and had me, my kids, and her daughter in stitches crying in the car.  She was a great storyteller and her beautiful Irish accent always commanded attention by all.   She was fascinating.

Maria has since passed away from esophageal cancer but she will never be forgotten by her family, relatives and friends.  She was a force to be reckoned with.  The following excerpt is worth a repost, I’d say.

I Never Learn….by Irish Maria

May 21, 2011

Subject: I never learn

(an email sent from my Irish friend Maria)

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Here is one for you.  Real life no joke!  I am on the subway just a few days ago and this bald lady in a white cap with head bent rocking back and forth is sitting opposite me, so I put 2 and 2 together and get 7.  In my head I know what no one else understands she is a cancer patient, feeling nauseous and on her way to treatment probably.  She is with another slim Asian lady, her chemotherapy buddy, I suppose.   So, me being me, I stick my big beak in and I say “Excuse me, I am a recovering cancer patient too my dear.  It will get easier.  I had my last treatment two years ago and people don’t believe me when I say I am in recovery.”

To which she replies, very angrily, with almost a screech ” NOT cancer patient, no sick, I follow BUDDA this why I shave head, no need cancer treatment if believe in BUDDA.  Budda crush cancer LIKE PEANUT”, like sooooooohhhhhhhh as she brandishes her fist at me.  Holy shit the ground could have opened up and swallowed me.  I said “Very sorry, I should mind my own business, glad you are not sick”.  I could feel her eyes on my back as I walked away.   I kept thinking for a religious woman, you sure are f*****g angry!  Teach me to reach out and help anytime soon, I’d rather pick every one of my nose hairs out with a tweezers.

God has a bad sense of humour….. loves to humiliate me!

I’m off to bed just thought I’d share that!~  Irish Maria

Never A F**n Dull Moment

So today I went to see my radiologist all ready to hear the words that my bone marrow was full of cancer (because that’s what usually happens when I come back from having treatment in Germany).

But that wasn’t what he said.  He said everything is stable but your BRAIN IS BLEEDING!

Really?  Seriously?  WTF?

Do you have headaches?  Well, yes, actually I had one this morning.

I’m going to send you to have an urgent brain MRI.  Hopefully you will get one some time next week.  But if you have any more headaches, call me.

Forget that shit.  If I wake up and have another headache I’m going to check myself into Emergency where I will have a scan done right then and there.  And what if I don’t wake up?  Should I be telling my daughter that if I don’t wake up tomorrow, to call for an ambulance.  That will probably freak her out.

My radiation Dr. had me do some tests to see how coordinated I was.  Hey, this reminds me of when I had a stroke”, I told him.  “Let me guess, is the area I’m bleeding in happen to be in the right cerebellum?”  “Yes,” he answered, a bit shocked.  “Well, that’s where I have a hemangioma”, I told him.  “Where did you have that scan done?” he asked.  “Right here”, I told him, “In April 2010”.  He disappeared for a moment and found my scan on the computer and said that made him feel a little bit better.  But then he also asked why wasn’t this picked up before?

I sure don’t have the answer to that.  But here is my question. If my scan was done on December 23rd and it was now December 28, why the heck didn’t anyone phone me and tell me before now?  Honestly if my brain was bleeding all that time, I probably should have been dead by now.  But I’m not dead.  I am very much alive.  And therefore I am not going to panic about it because that serves no purpose.  When this passes, this is going on record as another time there was a mistake.   That will be mistake #6.  But who’s counting?

So is my brain bleeding or is this something that’s been there a while?  Tune in to the saga next week when I go for my MRI.