Problems in July.

July 2017

Dear friends

I’m really not doing so hot right now and weird things are happening to me again. Remember when I had the stroke/TIA and started running backwards and I became hypersensitive to sounds? Well, now I’m hypersensitive to Wifi/EMFs. It’s really bizarre. If I go anywhere near wifi, I can’t breathe and violently cough out a lung. Phlegm spews out of me big time. I can’t even research it to find out why this is happening to me because I can’t get near a computer. Decided to try writing on notes on my iPad and then fire it up on the wifi at my sisters house when I’m outside and they turn it on.

Frack is unhappy because I had to turn off our Bell Router (internet and TV). He broke his foot playing soccer and is in an air cast. Frick sprained her elbow and was in a sling. And I’m in a wheelchair sporting an oxygen tank. The three of us look like we’ve been in an accident.

I’m living at my younger sisters house with the kids right now because I really can’t take care of myself. Preparing meals is not happening right now as it’s hard enough for me to get in the kitchen and make some toast for myself. Besides, I can’t even turn on the gas stove to heat anything up (should I blow myself up with the oxygen tank). CCAC has offered me a Personal Support Worker at 3:00 for 1 hour, three times a week. It’s kind of useless cause I really need someone to feed me at breakfast, lunch, or dinner. They are only allowed to reheat meals, give me a bath (but not if I can’t get out of the tub on my own), and light house-keeping (but only in the rooms I use and only my dishes can be washed). If I didn’t have my sisters to help me, I’d be dead by now. I don’t know what people do in my condition if they don’t have family and friends helping them.

So I didn’t fair well on my last trip to Germany. I was 105 lbs when I left and 94 lbs when I got back. It’s hard to live gluten, dairy and nut free and its so restrictive. Germany has lovely breads, pizza, pasta and sandwiches which I couldn’t eat. And I could only take so much of salads.

I have mould issues at home, leaching dental amalgams, Lyme disease and cancer. The last few minutes months have been difficult and I don’t seem to be bouncing back. I’m worried.

Diagnostic Testing… Now Waiting for Results

Dear friends,

Today I did most of my diagnostic testing (eye photo, blood work, hands/feet photos, urine and saliva tests).   Tomorrow I will find out if they can help me.

I’m worried.  I am in bad shape.  Hard to sleep at night when I’m constantly coughing and spitting up mucus.  Don’t know if that parasite cleanse was a good or bad idea.  Don’t know if my gut is reparable as so many food items are causing me grief and I don’t know if my body can handle the treament protocol given my drastic weight loss.  Also worried that my cancer may be active again and what do I do about it if it is in my lungs (as my oncologist keeps insisting).  One thing for sure.  Not enough oxygen in my blood as it was black when I glanced at it in the vial.   Shit.

I told Dr Mariam that I stopped taking the injections they gave me since January because I thought my husband hit a nerve a couple of times and I was having trouble lifting up my left leg as a result.  She told me I was probably right and that she would try to put some of the injections they were going to give me in my IV instead.  However, some of the stem cell ones had to be injected in the butt.  That concerns me.

Its 1:30 in the morning   Time for bed.  I see Dr Sommer and Dr Mariam at 2:00 tomorrow so I can sleep in.

🙏Needing some prayers🙏

Koblenz

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Decided to visit a place called Koblenz before we head off to Cologne or koln.

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It was really something.  We took a cable car to the Ehrenbreitstein Fortress and saw the most magnificent view of the Rhine River overlooking the German Corner (Deitsches Eck).  That is where two rivers join.  It was neat watching huge boats get swept away at the corner trying to get up the next river.

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The fortress was quite grand too but it required a lot of walking which I am not in the best of health to do right now.  It took a lot out of me and I had to take a painkiller by the time we got to a restaurant where we could rest and eat.

I’ve come to the conclusion that there are really no gluten free options at any restaurants in Germany. I’m stuck pretty much just eating salad and the odd soup if I can find one with no milk, cheese, tomatoes or wheat.  However the view we had from the outside, then the inside (it was cold and we moved) was awesome.

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Maria had her pint of German beer (she claims she will have one everyday until her treatment starts and then she will be good).

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The fortress was immense.  It guarded the waterways and railway lines.  Here are some pics.

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Really could have used my heating pad after that long walk but I kind of blew it up in Weisbaden the night before.  I plugged it in and put it in my pillow to warm it up as I went to the bathroom to brush my teeth.  When I got back the thing was melting on my pillow.   Didn’t know the voltage was so high in Europe that even with a converter, it would overheat the heating pad.  The metal coils were protruding through the plastic cover. I was lucky I didn’t plug it in and take a bath because it would surely have caused a fire by the time I got back.  I didn’t know what to do with the smelly burning plastic thing.  I ended up shoving it on the shower floor so it would cool and disposed it in the morning.

Good thing I didn’t burn the hotel down.

 

 

Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

How I Fried My Face

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Oh I did a really stupid thing yesterday.

After Christmas celebrations at my sister and then my brother-in-laws house’s, my daughter Frick decided she wanted to do something about the blackheads on her nose.  I said, “Oh Good, now look on the internet and see if you can find something natural to get rid of them”.  “Okay”, she said and quickly came up with a web-site with 12 different recipes.  I read them.  One treatment recommended making a baking soda paste, but she didn’t want to do that.  I thought the honey and cinnamon essential oil looked good.  I like the smell of cinnamon and wanted to try that.  She decided on just putting lemon juice on her nose for 10 minutes. 

Did I tell you I bought some essential oils for only $3 at the Christmas Markets on my recent travels to Germany.  That foreshadows what is yet to come.  They had a whole bunch of symbols on the bottle of Zimt (cinnamon) which I didn’t recognize, nor could read.

So I made a little concoction with some honey and my new German cinnamon oil and stuck it on my nose.  More drops came out than I expected, but I wasn’t worried.

Within 30 seconds of applying the paste on my face I was running around like a lunatic trying to sedate the GROWing Red, Red, REDNESS on my nose (and half my cheeks).  My face was on FIRE!  

I ran to the kitchen and started putting coconut oil on it to dilute it with carrier oil (that was a little trick I learned when I put peppermint oil on my temples to relieve a headache and my eyes were crying because I put it too close to them). 

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The oil helped my burning face a bit.  Then I kept washing my face with really cold water.  I was horrified at how red my face was getting.  I would never be able to leave my home and go out like this.  Was I scarred for life?  What if its permanent?  What have I done?  I need my face?  HELP!

I called my cousin in Australia.  She is my go to person when everyone else in sleeping on this side of the world. 

crazyShe calmed me down while Bobo and Frick went to Shoppers Drug Mart at 11:30 at night, (on Christmas), to find me some aloe moisturizer to calm my frying face down.  They could only find stuff with chemicals in them like dyes, parabens, phthalates, parfums, PEGS, etc, etc and I didn’t want to put that on my face.  So I put some calamine lotion on it which relieved some of the pain.  But then that white stuff was going inside my blackhead pores and it was looking kind of like white holes in a really red face.  Scary.  So I took it off and put on some more coconut oil.

Frick said later that next time we should read the instructions first.  You think?  A budding Einstein, I’ve got here.  She googled one of the words on the cinnamon bottle…  something about sensitive skin.  I need to learn German, really I do.

Here is my bottle of Zimt.

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Not sure what the Big X stands for.  Do you?

The other picture below the X looks like a dead fish. 

What is that suppose to mean.  The stuff in this bottle kills the environment?  How ‘bout my face?


The next day….

I’m glad to report that my red face is much better today, with very few visible blackheads.  Thats because the German cinnamon oil burned them to death. 

I would have taken a picture of my flushing face because I knew I would blog about it today, but I was too busy screaming to find my phone. 

I will never look at cinnamon the same again.

Merry Christmas, Now Bend Over

Monday December 5

Got to sleep in until 10:00 today because I didn’t have an appointment until 11:00. My eyes and brain got the usual 8 minute dose of a bio photon machine. Then I had 5 shots in the butt (combination of stem cells and some things to help my liver, spleen, gallbladder, eyes and brain.

I also got retested (hand prints and nose & forehead prints on special dark room paper) to see how my systems are functioning. Results tomorrow.

Then I had to come back to the clinic at 3:30 for a colon hydrotherapy session.

Pamela told me I was getting better. As for Bobo, he needs about 4 more sessions to clean out all the years of ancient rocks of poo embedded in the pockets of his colon. The warm water cleans out the lower section first and the stuff stuck in the upper and middle part of the colon comes down. Unfortunately Pamela has no more times available to give him another hydrotherapy session and he isn’t exactly cooperating or chomping at the bit to bend over and do it again.  Every time I mention having a colon cleanse he says, “Merry Christmas, now bend over”.

Bobo and I went shopping in a mall that looks like a space ship close by. I found some really nice clothes.

Santa Claus is coming to town tomorrow in a hot air balloon! And an angel on stilts (Christkindel angel) will be there too giving out marbles!  Stay tuned!

I cracked my iPad screen today into a zillion pieces and doing these blogs on my phone might become an issue.  Just so ya know.

Berg Reichenstein and Mannheim

Woke up to a misty, foggy morning.  This is what it looked like from my castle room.  The Rhine River was “smoking”.

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img_4193Bobo and I went to the lovely dining where a beautiful table was set just for the two of us.

 

 

I think my treatments are working as Bobo told me I was sweating profusedly last night and appeared to have a fever.  That has happened to me each time I’ve come to Germany and means my immune system is working.

img_4209Tomorrow I will get retested to see if the treatment I had this week has helped.  If not, they send you home.  I get my results on Tuesday.  I’m not worried.  They tested  me in the beginning to see if I  was strong enough to do the treatment and if it would help.  I was.

After breakfast we explored the rest of the castle.  The man who made the castle had a business in ironworks.  Clearly it was a success as he could afford a castle.  He made iron stoves, fountains, and knight apparel.  Prosperous trade indeed.

The only thing that troubled me is that he had an unbelievable number of deer trophy heads all over the castle.  It was a bit unsettling to see so many Of Bambi’s friends!   There were over 1,500 of them in various sizes.  I think the hunter was very proud of himself.  They must have had venison every night.

The grounds were beautiful and it was fun taking pictures of the place.

We later headed towards Mannheim to see another Christmas market, but got lost (GPS sucks) and ended up in Bad Durkheim instead.  Saw an interesting tradition where you barbecue some dough and eat it!

We decided to get back in the car and find Mannheim shortly thereafter.

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Our GPS kept malfunctioning.  Piece of shit. Told us to keep driving straight… literally into the Bahnhofstrasse (train station).  That was fun.

We kept going in circles around the Christmas Market and the GPS took us to the opposite side of the city where there was no highway to get on to go back home.  So we turned on my phone and used up all the gigabytes I had just to get home. 😕

Adventures abroad.  What can I say?

 

Tubingen (Chocolate Market)

Friday, Dec 2

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It’s Friday. Convinced Bobo that he needed to have a colon hydrotherapy session today given that he only goes to the bathroom once every 4 days and plugs up the toilet. I told Pamela, the lovely therapist from London to watch out, he may break the machine!

 

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Yesterday I had my colon washed out. My brain and eyes received an 8 minute photon treatment which I am getting every day. I think my eyesight is getting clearer. Four injections in the butt yesterday, one today plus two in the neck. Now that really hurts but if it prevents me from having neck radiation treatment at home, I will do it.

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Last night Bobo and I went to a Spanish tapas place called Monte Christo which I heard rave reviews about from two of the locals. We had a assortment of cold and hot food platter. Too much food! Wasn’t too crazy with the meat dishes (lamb and ox tail…blah!). Dessert was nice…almond cake and Vanilla Brûlée.

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We are going to attempt to go to Tublingen soon because they have a four day special chocolate market with vendors from all over the world. Thought Bobo, my chocolate affectionato would enjoy it.

Nuts!  The damn rental GPS took us for a ride….a very long one.  Through mountain back streets and a closed road.  What should have taken us 1 1/5 hours ended taking us over 3 hours.  We saw fog, rain, cows and sheep!

Finally got to Tubingen!  What a treat!

Stunning chocolate art!

This one looks like a chocolate turd!  Line up galore…price for one?  $8!

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And samples, samples everywhere!  Gotta go to bed now cause I have to get to the clinic by 8:30 a.m.  Taking Bobo somewhere special tomorrow for his birthday which was on the 28th.