Koblenz

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Decided to visit a place called Koblenz before we head off to Cologne or koln.

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It was really something.  We took a cable car to the Ehrenbreitstein Fortress and saw the most magnificent view of the Rhine River overlooking the German Corner (Deitsches Eck).  That is where two rivers join.  It was neat watching huge boats get swept away at the corner trying to get up the next river.

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The fortress was quite grand too but it required a lot of walking which I am not in the best of health to do right now.  It took a lot out of me and I had to take a painkiller by the time we got to a restaurant where we could rest and eat.

I’ve come to the conclusion that there are really no gluten free options at any restaurants in Germany. I’m stuck pretty much just eating salad and the odd soup if I can find one with no milk, cheese, tomatoes or wheat.  However the view we had from the outside, then the inside (it was cold and we moved) was awesome.

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Maria had her pint of German beer (she claims she will have one everyday until her treatment starts and then she will be good).

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The fortress was immense.  It guarded the waterways and railway lines.  Here are some pics.

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Really could have used my heating pad after that long walk but I kind of blew it up in Weisbaden the night before.  I plugged it in and put it in my pillow to warm it up as I went to the bathroom to brush my teeth.  When I got back the thing was melting on my pillow.   Didn’t know the voltage was so high in Europe that even with a converter, it would overheat the heating pad.  The metal coils were protruding through the plastic cover. I was lucky I didn’t plug it in and take a bath because it would surely have caused a fire by the time I got back.  I didn’t know what to do with the smelly burning plastic thing.  I ended up shoving it on the shower floor so it would cool and disposed it in the morning.

Good thing I didn’t burn the hotel down.

 

 

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Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

How I Fried My Face

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Oh I did a really stupid thing yesterday.

After Christmas celebrations at my sister and then my brother-in-laws house’s, my daughter Frick decided she wanted to do something about the blackheads on her nose.  I said, “Oh Good, now look on the internet and see if you can find something natural to get rid of them”.  “Okay”, she said and quickly came up with a web-site with 12 different recipes.  I read them.  One treatment recommended making a baking soda paste, but she didn’t want to do that.  I thought the honey and cinnamon essential oil looked good.  I like the smell of cinnamon and wanted to try that.  She decided on just putting lemon juice on her nose for 10 minutes. 

Did I tell you I bought some essential oils for only $3 at the Christmas Markets on my recent travels to Germany.  That foreshadows what is yet to come.  They had a whole bunch of symbols on the bottle of Zimt (cinnamon) which I didn’t recognize, nor could read.

So I made a little concoction with some honey and my new German cinnamon oil and stuck it on my nose.  More drops came out than I expected, but I wasn’t worried.

Within 30 seconds of applying the paste on my face I was running around like a lunatic trying to sedate the GROWing Red, Red, REDNESS on my nose (and half my cheeks).  My face was on FIRE!  

I ran to the kitchen and started putting coconut oil on it to dilute it with carrier oil (that was a little trick I learned when I put peppermint oil on my temples to relieve a headache and my eyes were crying because I put it too close to them). 

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The oil helped my burning face a bit.  Then I kept washing my face with really cold water.  I was horrified at how red my face was getting.  I would never be able to leave my home and go out like this.  Was I scarred for life?  What if its permanent?  What have I done?  I need my face?  HELP!

I called my cousin in Australia.  She is my go to person when everyone else in sleeping on this side of the world. 

crazyShe calmed me down while Bobo and Frick went to Shoppers Drug Mart at 11:30 at night, (on Christmas), to find me some aloe moisturizer to calm my frying face down.  They could only find stuff with chemicals in them like dyes, parabens, phthalates, parfums, PEGS, etc, etc and I didn’t want to put that on my face.  So I put some calamine lotion on it which relieved some of the pain.  But then that white stuff was going inside my blackhead pores and it was looking kind of like white holes in a really red face.  Scary.  So I took it off and put on some more coconut oil.

Frick said later that next time we should read the instructions first.  You think?  A budding Einstein, I’ve got here.  She googled one of the words on the cinnamon bottle…  something about sensitive skin.  I need to learn German, really I do.

Here is my bottle of Zimt.

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Not sure what the Big X stands for.  Do you?

The other picture below the X looks like a dead fish. 

What is that suppose to mean.  The stuff in this bottle kills the environment?  How ‘bout my face?


The next day….

I’m glad to report that my red face is much better today, with very few visible blackheads.  Thats because the German cinnamon oil burned them to death. 

I would have taken a picture of my flushing face because I knew I would blog about it today, but I was too busy screaming to find my phone. 

I will never look at cinnamon the same again.

St Nick Via Hot Air Balloon & My Results!

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St Nicolas came to Baden Baden today in a hot air balloon. Actually, it was a bit cloudy and probably dangerous to be flying in this weather, so they skipped him across the field.

img_4364Then all the kids sang Christmas carols to him and were rewarded with a dough boy and prize. I remember the last time we were here with my own kids two years ago and  I made them sing “Up on the Rooftop” in English.

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Didn’t get a chance to see the Christmas Angel on stilts because I had some gluhwein and needed some food in me pronto!

So today’s results are in. No cancer!  Liver is operating much better now.  However I now need to be vigilant about what I eat because some of the food I’m eating is toxic for me. This is what I have to stay away from for around 3-4 months

Bread
Dinkel (Spelt)
Wheat
Rye
Gluten (a bit)

Almonds. *highly Allergic (?) right now
Hazelnuts (crap!  bought lots of that at the chocolate market)
Casein *all milk and cheese products
Green beans

And I need to eat eggs sparingly

All of these food products are causing me grief/inflammation in my lungs, neck and intestines.  He said once things begin to improve, these problems will disappear.  There is no cancer evident at this time.

Ha!  Ha  ha!

Can’t wait to talk about this with my radiation dr who wants to zap my neck because “there is cancer” in there.

I talked to Christina today (naturopathic dr at my clinic who administers my injections/IVs) about how chemo stopped my heart, induced heart failure, and how I had a stroke on Tamoxifen.  I also told her that I was told I have cancer in my neck and needed radiation.   She told me about 80% of the time, they are wrong.  Pamela, my colon hydrotherapist thinks our Drs in Canada are barbarians.

Christina said that she has a 45 year old friend with breast cancer who went the allopathic route who had a double mastectomy and removed her ovaries.  Chemotherapy caused neuropathy in her feet and she is now deaf because of the treatment she endured.

Christina went to medical school and got out because all she was learning was how to administer drugs that didn’t help people.  She wanted to get to the root of the cause for patients medical conditions and help people get better.  Here she can make a difference.

I asked Dr Sommer about the problems with customs in Canada not allowing his medicine to go through.  He said the same thing has now happened in Italy and that the world is going insane.

Not sure if it’s a free trade problem or Big Pharma is stopping anyone from using anything that is not sanctioned by them.  I know there was literature about a petition signing at the Robert Shadd Naturopathic Clinic because Big Pharma wants to regulate supplements.  If I have to come here every three months to pick up my medicine, I’ll go broke.

Bobo said I should send the bill to Justin Trudeau or get him to pick up my medicine for me since he seems to love travelling so much.  How many countries has he been in signing free trade agreements?

Sigh.

Merry Christmas, Now Bend Over

Monday December 5

Got to sleep in until 10:00 today because I didn’t have an appointment until 11:00. My eyes and brain got the usual 8 minute dose of a bio photon machine. Then I had 5 shots in the butt (combination of stem cells and some things to help my liver, spleen, gallbladder, eyes and brain.

I also got retested (hand prints and nose & forehead prints on special dark room paper) to see how my systems are functioning. Results tomorrow.

Then I had to come back to the clinic at 3:30 for a colon hydrotherapy session.

Pamela told me I was getting better. As for Bobo, he needs about 4 more sessions to clean out all the years of ancient rocks of poo embedded in the pockets of his colon. The warm water cleans out the lower section first and the stuff stuck in the upper and middle part of the colon comes down. Unfortunately Pamela has no more times available to give him another hydrotherapy session and he isn’t exactly cooperating or chomping at the bit to bend over and do it again.  Every time I mention having a colon cleanse he says, “Merry Christmas, now bend over”.

Bobo and I went shopping in a mall that looks like a space ship close by. I found some really nice clothes.

Santa Claus is coming to town tomorrow in a hot air balloon! And an angel on stilts (Christkindel angel) will be there too giving out marbles!  Stay tuned!

I cracked my iPad screen today into a zillion pieces and doing these blogs on my phone might become an issue.  Just so ya know.

Berg Reichenstein and Mannheim

Woke up to a misty, foggy morning.  This is what it looked like from my castle room.  The Rhine River was “smoking”.

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img_4193Bobo and I went to the lovely dining where a beautiful table was set just for the two of us.

 

 

I think my treatments are working as Bobo told me I was sweating profusedly last night and appeared to have a fever.  That has happened to me each time I’ve come to Germany and means my immune system is working.

img_4209Tomorrow I will get retested to see if the treatment I had this week has helped.  If not, they send you home.  I get my results on Tuesday.  I’m not worried.  They tested  me in the beginning to see if I  was strong enough to do the treatment and if it would help.  I was.

After breakfast we explored the rest of the castle.  The man who made the castle had a business in ironworks.  Clearly it was a success as he could afford a castle.  He made iron stoves, fountains, and knight apparel.  Prosperous trade indeed.

The only thing that troubled me is that he had an unbelievable number of deer trophy heads all over the castle.  It was a bit unsettling to see so many Of Bambi’s friends!   There were over 1,500 of them in various sizes.  I think the hunter was very proud of himself.  They must have had venison every night.

The grounds were beautiful and it was fun taking pictures of the place.

We later headed towards Mannheim to see another Christmas market, but got lost (GPS sucks) and ended up in Bad Durkheim instead.  Saw an interesting tradition where you barbecue some dough and eat it!

We decided to get back in the car and find Mannheim shortly thereafter.

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Our GPS kept malfunctioning.  Piece of shit. Told us to keep driving straight… literally into the Bahnhofstrasse (train station).  That was fun.

We kept going in circles around the Christmas Market and the GPS took us to the opposite side of the city where there was no highway to get on to go back home.  So we turned on my phone and used up all the gigabytes I had just to get home. 😕

Adventures abroad.  What can I say?

 

Tubingen (Chocolate Market)

Friday, Dec 2

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It’s Friday. Convinced Bobo that he needed to have a colon hydrotherapy session today given that he only goes to the bathroom once every 4 days and plugs up the toilet. I told Pamela, the lovely therapist from London to watch out, he may break the machine!

 

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Yesterday I had my colon washed out. My brain and eyes received an 8 minute photon treatment which I am getting every day. I think my eyesight is getting clearer. Four injections in the butt yesterday, one today plus two in the neck. Now that really hurts but if it prevents me from having neck radiation treatment at home, I will do it.

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Last night Bobo and I went to a Spanish tapas place called Monte Christo which I heard rave reviews about from two of the locals. We had a assortment of cold and hot food platter. Too much food! Wasn’t too crazy with the meat dishes (lamb and ox tail…blah!). Dessert was nice…almond cake and Vanilla Brûlée.

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We are going to attempt to go to Tublingen soon because they have a four day special chocolate market with vendors from all over the world. Thought Bobo, my chocolate affectionato would enjoy it.

Nuts!  The damn rental GPS took us for a ride….a very long one.  Through mountain back streets and a closed road.  What should have taken us 1 1/5 hours ended taking us over 3 hours.  We saw fog, rain, cows and sheep!

Finally got to Tubingen!  What a treat!

Stunning chocolate art!

This one looks like a chocolate turd!  Line up galore…price for one?  $8!

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And samples, samples everywhere!  Gotta go to bed now cause I have to get to the clinic by 8:30 a.m.  Taking Bobo somewhere special tomorrow for his birthday which was on the 28th.

Looks Like I May Not Need to Fry My Neck After All

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My test results are in and it looks like I’m not going to have to fry my neck after all.

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I told Dr Sommer my radiologist wanted to do 2 high dose treatments on my neck and showed him my test results.  He read the report and said they do not know what’s in there.  Just like what my friend Karin (who is a nurse) said.

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He said my intestines are toxic and if we get that under control the inflammation/problem in my neck should disappear and so should the problems I’m having with my eyes.  It’s all connected to the intestines.

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I asked if it was my cavities in my teeth that was causing the toxicity.  He said no it was something I’m eating.  Later Bobo put two and two together (I essentially eat only organic food at home) and came up with the fact that I’ve been eating smoked salmon every week and that might be the cause.  Other than that, maybe I should get our water tested when I get home.  I need to figure this out.

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So today I had 4 shots in my butt to help my liver, spleen, gallbladder, intestines and brain.  Then I had to drink something akin to Alka Seltzer to soften my stool for my first of four colon hydrotherapy cleanses.   Once again I’m full of (toxic) shit!

Trying to con Paul into having one too on Friday.  Let u know how that goes!

Btw, Santas coming to town in a hot air balloon on December 6!

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God Help Me

Friday, November 4, 2016

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Today I am out of sorts.  This generally happens to me when I have to go see my oncologist and today was no different.

Bobo came to me.  Together we try to figure out the insanity that transpires during my appointments.  My 9:45 appointment began at 11:15.

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He, my oncologist, sent me his newest guppy to figure out what I was doing.  She was a real b#*@! and I didn’t like her.  I actually argued with her and I’m proud of myself for sticking up for myself. She was telling me I’m fine and my oncologist wouldn’t have to see me for 6 months.

“Hang on,” I said.   “I have a report saying I have cancer in my neck which should be radiated in a clinical trial and some new spots in my pelvis from L2-S3.   How is it I am fine?”  I think they are trying to get rid of me.

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She also said that they wouldn’t be doing my monthly injections at the hospital any more.  Go to CCAC.  “Well that’s nice,” I responded.  “Find me someone who knows how to inject the needle in Scarborough and I will go.  And good luck with that….I don’t enjoy being tortured.”  Asked her who I go to to complain about this.  I think she was shocked I said this.  Too bad.  I tired of explaining my life to new people every time to go there.

I told her I wanted to see my oncologist because I wanted a second opinion of an MRI from another hospital.    She told me he was busy.  I insisted.  She left us for a bit.

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So in he waltzed, late, with a parade of young hopeful oncologists (3 from Brazil, 1 from some other country).  “Oh this is going to be fun”, I thought.  “I have an audience, students…my specialty.”   I told him the reason why I wanted another MRI at a different hospital was that I wasn’t convinced about what I was told about my neck.  After all, they messed up before on a tumour on C5 and then told me it wasn’t what they thought it was during the pre-op. radiation treatment.  I went to a chiropractor and had my neck painfully adjusted and maybe it’s just inflammation.  He downplayed the previous C5 neck error.  I must say I had the students hooked though.  They laughed when I told them I wasn’t going to be zapped for nothing.

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My oncologist told me that the hospital MRI machines were different and what specific part my radiation dr was looking at may be different then theirs and what was the point in doing it again?   He said if I wasn’t symptomatic (feeling pain), so it didn’t matter if I decided not to do anything right now.  He then told me that my cancer was slow growing and even if I did nothing (which apparently the treatment in Germany counts as nothing to him), it would be slow.  He is in complete denial that my “alternative” treatment is slowing the progression of the disease.  Grrrr.

I find his explanation of my condition fascinating as I am young, pre-menopausal (spreads faster than in older patients), and was diagnosed with a INVASIVE DCIS breast cancer.  Invasive.  Hmmm.  What does this word mean?  The Oxford Dictionary describes it as Tending to spread VERY QUICKLY and undesirably or harmfully.  For example:  ‘patients suffering from invasive cancer’.

Enough of the bullshit.  Bobo said my onc is having difficulty accepting the truth that the treatment I’m doing in Germany works.

So essentially the appointment concluded with…. no MRI or monthly shots at PMH.   And he doesn’t want to see me for quite a long time.  He is going to Mexico for a few weeks (and not to check out cancer treatments in Tijuana because he doesn’t believe in that “stuff”) and I’m not scheduled to see him until Feb.  But when I got home my appointment was emailed to me and now I’m not scheduled to see him until March.  That’s 5 months away. That’s a long time.  

On a positive note…no appointment anxiety.  That could be a good thing.  Right?

So how do I feel about this?  I feel like trash.  Taken out to the curbside.  No one is monitoring my monthly blood work.  Some gumba in Scarborough that doesn’t know how to stab me in the stomach properly to give me my 16 guage needle will be administering it for 5 months.  I have no idea what is really going on in my body (neck, lungs and lower back) and if I should be alarmed.  One guy says I’m fine.  The other one wants to zap me.  I think I’m going to get Bobo trained to give me the shot in the stomach if this CCAC thing doesn’t work out.  Help!

At this point, I just want to run to Germany.  

I booked one night in a castle on one of the week-ends I’m there!  

The way I see it.  You Gotta have Fun while you still have a neck and can walk.

God help me.  I’m really feeling tired of dealing with this crappy disease.