Results are In

Thursday April 28

imageIt’s rainy again. I’m back at the clinic. This morning I had my lampadina. Feeling great. Lots of energy.

WisteriaMary and I spent the evening at the Caracalla Spa. It was way less crowded than in the day time. I’ve been trying to convince her to go to Friederichbach spa with me (only women on Thursday), but I’m not sure she is going for it!  No clothes allowed.

imageThis morning I had 2 shots in the butt (stem cells) and ozone therapy. My vein collapsed 1/2 way through the ozone treatment and Mariann asked me if I was Catholic. I said, “Why? Are you going to give me my last rites?  She said, “No, if you are Jehovahs Witness we can’t restart the IV in the other arm”.

imageSo we had to call Dr Sommer to try to get another IV deep in a vein in my other arm (which I’m not really suppose to use because I have no lymph nodes there due to a mastectomy). It worked. I’m now having Vitamin B17 (amygdalin) and C therapy.

imageI told NDr Christina I had a vegan chocolate bar for her, but only if she got the IV in my arm right the first time. She was unhappy my vein collapsed. She really wanted the chocolate bar (luckily I had 2 chocolate bars in my purse, one for her and one for Dr Sommer too).

imageAt least I didn’t have to get stabbed nine times in one day like last week. The big bruise on my hand has gone away after using some type of wound healing cream called Traumeel. It works so well, I bought it at a pharmacy so I could use it at home.

imageSo I got my test results on Tuesday. Everything appears good at this time. My energy is up. My brain/hypothalamus is now working, however my pituitary gland is still struggling a bit. The cancer is dormant. My immune system is operating at 80%. And I need to detox (it’s at 38%, down from 45% when I came). So I’m getting some medicine to take home with me to help me with that, plus injections because my lymph node system is not up to snuff either.  Otherwise, I think I’m doing really well.

imageDon’t think I’m going to tell my oncologist I’m here in Germany again. I don’t need the added stress. Dr Sommer told me it would not be necessary to get tested at home for another 6-9 months. That’s good enough for me.

image image imageI’m suppose to be arriving in Canada on Saturday night, but apparently some of the airport workers are on strike yesterday and today. Good thing I have insurance! They may be footing the bill for food and accommodations if I need to stay longer!
imageAfter my treatment tomorrow morning, Mary is making me breakfast and then we are heading to Frankfurt.  I went to pick up the rental car on the side of the road near a castle where our apartment landlord said it was free.  Well guess what?  It wasn’t free. I got not one but two parking tickets.  Mary said it was too bad I have to come back, otherwise we could just not pay them!

On the bright side, at least they didn’t tow us.  I would have had to phone up the rental car company and tell them it was stolen and a darn good thing I paid $600 extra for car insurance!

Finally got to see the Baden Baden Roman Ruins yesterday.  See pics below.  This is where Roman Soldiers set up shop to recuperate in the healing thermal waters.

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No News and Ford Fest at the Hospital Today

So I went to PMH to get my 2 shots in the stomach and find out my Bone Marrow Biopsy results.  Got my shots, but not results….they are still pending.

However, my doctor said,” Well, you know what the results are going to be, don’t you?”  (insinuating “Extensive Metastatic Disease” in the bone marrow like the MRI said).

But truthfully, do I know that?  No.  No I don’t.  That’s why I asked for the Bone Marrow Biopsy.  He just ordered it to humour me.  And yes, my ass is still killing from it.  But I really don’t care because I need to know what is going on in there so I can make a rational decision about what treatment I am going to pursue.

Maybe all the hype is about the little piggy stem cell transplant I had in Germany.  I don’t think my oncologist is rather receptive to that.  I don’t know what his religion is, but I don’t think he eats pigs.  Nor do I think he would allow anyone to stub him with a stem cell from a pig either.  I asked him if it was possible for my bone marrow to get all crazy because of the artesunate drug I was on (which I emailed a pharmacy in Germany and they told me that yes, it does cause anemia).  He said that was “possible”, but he’s pretty convinced it’s breast cancer in the bone marrow.  However, I have all my blood test results and my hemoglobin went wacky ever since I went from 50mg of Artesunat to 200mg in July.  My tumours have not got any bigger; my CT Scan showed nothing in my organs.  Something does not make sense.  If the disease was taking over, do you not think the existing tumours would be having a field day and be growing exponentially?

Damn I hope I’m right.  Don’t think I could convince him even with the story I had about the two angels who visited me the other night and told me I’d be fine either, so I never bothering telling him that.

I have to go back to PMH on Friday and do another blood test to see what my hemoglobin is doing.  I’m at 84 right now and if I get in the 70’s, I’m going to need a blood transfusion…but don’t worry, only 1 out of 250,000 may get HIV or Hepatitis from it.  My husband looked at me and laughed and said, “It’ll be you.  It’ll be you”.  (Kind of like the time the doctors told me the chances of having heart failure because of the chemo was .004 per cent and that was me…and because my former oncologist didn’t believe it, I was sent to no less than 3 cardiologists who all verified the chemo killed my heart, including one of his friends).  Offered to bring in one of my sisters to get their blood, but he said he doesn’t know if they do that and if their blood would even match.  I stopped taking the artesunat and started on chemo (Xeloda) once again.  Awaiting the burning feet/peeling syndrome in 2 more days.

Guess what awaited me today when I got to the hospital?   The paparazzi, that’s who.  They are stationed all over the road behind the hospitals (PMH/Mount Sinai) to get the latest scoop on Rob Ford.  I bet you he doesn’t have to wait 2 weeks to find out his test results for MRI’S.  In fact, they must of told him right on the spot this morning because he dropped out of the mayoral race and his brother is now wanting to take the helm.  Well, if he does have colorectal cancer, they will probably be removing the tumour first and then he will most likely have chemo and perhaps radiation depending on how bad it is.  Hopefully, I won’t be joining him any time soon hooked up to a chemo chair.  Atlas, I believe he will opt for chemo at Mount Sinai because it is a lot less crowded and he would have more privacy.

My friend, who has colon cancer and I were discussing the situation and have come to the conclusion that something doesn’t make sense.  Testing for colon cancer is usually done first by an x-ray/ultrasound and then to zero in there, they use a CT Scan.  Why would he be needing an MRI today (said the media) which is usually used for bones?  Unless, it has already spread to his bones or  he is getting a Cardiac MRI, in which case he jumped the queue which I have been on since April!  Very fishy.

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