Tuesday, January 5
Would you believe that I still have no results pertaining to my lung yet? I was checking all day, scared of what I might find.
Saw my surgeon. He is a good guy. Asked me how I was doing. I’m okay, I told him, but it looks like I have mets in my bone marrow again… although I don’t really believe it because this happened to me before when I came back from my cancer treatment in Germany.
Oh? Why did you go to Germany?
Now there’s a loaded question. This is what I told him. Hmmm…it might be because they almost killed me three times here. Or maybe it was because the hormone treatments stopped working and they told me they couldn’t do anything for me anymore except manage the pain. That’s when I decided to high tail it outta here because at least over there they thought they could keep me alive for many years to come.
“Well it looks like Dr Sahgal is happy with your progress,” he said. “Nothing going on in your spine. Your bones are growing back and your hardware is good.”
“Yes but my oncologist is not happy with me right now because I’m not doing what he is telling me to”, I replied.
“How did you find out about this place?”, he asked.
“My friend knew someone who went there”, I told him.
Short and sweet and I was out of there with an appointment scheduled for next year.
Before I saw him, I was talking to the nurse in the room by myself (she was the one that nicknamed me “The Screamer” after my surgery). I asked her if she would mind looking for my chest CT scan on her computer because it wasn’t appearing on myUHN. I had results for my pelvis and abdominal scans, but nothing has been reported about my lungs. I was worried because I have been coughing lately and I was told in August that I had a tumour at the bottom of my right lung. She checked.
Thank heavens PMH actually did the scan which included the lungs. That was a relief because I would have gone on some kind of Italian rampage if someone messed that up and I had to go do this again. I really don’t need more radiation considering I’m maxed out. The nurse went through the slides and said, “I’m no technician or anything but I don’t see anything”. Meanwhile, I was peering over looking for white spots on my lung scans too and didn’t see anything either.
Now wouldn’t that be something if the 1.9mm tumour they found in August and spots on the fissure line disappeared just like the thing on my pancreas?
Miracles do happen, right?
That afternoon….I decided to try something new today to alleviate my bronchial asthma problem. I visited a salt cave.
Several years ago when I experienced this same yearly nagging cough in the fall (rain + leaves = mould), my allergist told me the only way to get rid of it is to go to somewhere hot with a beach and breathe in the salt water air. Sounds enticing.
Well although I would love to escape right now, it ain’t happening due to the fact that my family dr seems to think I need a blood transfusion and I’m not exactly rich. Btw, I phoned Germany for some hemoglobin help and it should be on its way. Plus I stopped taking my German drugs temporarily until my white/red blood counts improve. There was also some mention about giving me a neupragena (sp?) shot ($3,000-4,000 a pop) on my Sunnybrook blood test results but no one has phoned me about that one yet. That prescription certainly will give me lots of air mile points for my next trip, as a patient usually needs 3-4 shots to get their counts up. Although I think I would decline that proposed strategy because I’m sure it comes with some interesting side effects which I could do without. I get to visit my family dr next week. Can’t wait to discuss the sudden disappearance of “my baby.”
The salt cave was wonderful on my lungs. I spent the first 1/2 hour coughing up a storm. I felt rather bad for the gentleman in the cave with me and my older sister. He certain didn’t get a quiet session because I was coughing up a lung. Felt really good. Salt is so healing. Wish I had know about this before when I suffered with bronchial asthma. I can’t use a puffer because I’m allergic to ventolin, alupent and its whole medicinal family including it’s cousins. The cave was a little bit cool so I wore my white alpaca babushka hat which I bought from Germany. My friend Doug calls me the Snow Queen whenever I where it. The cold weather lately sure warranted it.
Wednesday, January 6
Still no lung news. I phoned the CT Scan place….got a recording, what else. Maybe if I’m in a bad mood, I’ll nag them and call them every 5 minutes tomorrow. Fill up their answering machine with 20+ calls.
Today I went to The Art For Cancer Foundation and made the winter scene above. It was challenging. I enjoyed painting it, but my back sure could use a rest. Time for bed.
Below are the benefits of going into a salt cave, should you ever decide to go. The one I went to was in Mississauga. There is one near York University, in Niagara Falls, and The Windsor Arms Hotel. I didn’t realize it increases your hemoglobin level too! Next time you’re sick or have a respiratory ailment you may want to check it out. Prices range from $17 (Groupon) to $50 for an hour session depending where you go.