U know Ur in Trouble When the Dr Calls!

So early this morning before I even got out of bed, I got a phone call from my family doctor. Oh.., that can’t be good I thought when I heard her voice. It’s not the secretary.

“Ahhh, I got your blood work back and it looks like you need a blood transfusion,” she said. “However, the problem is that every place where you can get this done is closed today and I don’t even think they can do it for you if you went to emergency.”

“It’s my lucky day,” I thought. I’m not going to emerg today. Happy New Years!

“So how low does your hemoglobin have to be when you need a transfusion?”, I asked.

“The low 80’s,” she answered.

“What am I at?, I questioned her.

“78…. I’m surprised you are still walking.” she responded.

“Well I wasn’t walking last week and I turned yellow, but I’m better now.”

“What do you want to do?”, she asked me.

What can I do? I’m going to party? Everything is closed until Monday and that’s when I’m suppose to have a CT Scan. So I’m going to do nothing right now. I don’t really care anyway. I’ll send Germany an email and tell the dr to send me something. This happened to me before.
“Just don’t get cut until then,” she said, “And get into hospital if you start bleeding for any reason”.

“Even a hemorrhoid?”, I asked.

“Even a hemorrhoid”, she answered.
WTF? Now I’m going to be shitting blood too? I don’t think so!  Holy crap!

By the way, did you happen to get the results of my latest MRI?, I asked her.

“No,” she said.

Well, apparently I have extensive metastatic disease throughout my bone marrow again.

She didn’t say much after that. I think my doctors are more worried than I am.

I had a nice burger yesterday hoping to get my hemoglobin up. I’m eating more now, but I now weigh the same amount I did when I was in university. Bobo says I’m getting pretty skinny. My scale says so too.

The conversation in the car went really well on our way to the market.
Who wants to give me some blood?, I asked.

Aughhhhh! No way, cried my brood in the back.
“I will”, said Bobo, my universal O type donor husband.
“Good”, I said. We just need two needles and a tube and we can attach ourselves to one another! True love!

Happy New Year Folks. I need to drink some blood tonight. I’m turning into Dracula’s wife tonight!
Cheers to 2016!

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Pompeii

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One of the things on my bucket list was to go to Italy and go to Pompeii which I find fascinating. Fat chance I’m getting there any time soon as having cancer has a point of killing you financially.  I really hope to go there though.  One day.

imageSo Buba bought me and the kids tickets today to go to the Royal Ontario Museum to see their Pompeii Exhibit. It was really neat but difficult to handle because Frack was in charge of pushing my wheelchair around and he is nuts. I barely had time to read the information cards before he would whip me around to see something else. Boys! I tell you. A different breed. He wanted to know what all the plaster casts were about but was too impatient to read about it himself. Lazy bum. So I would speed read the excerpts and tell him a story about it in hopes that he would remember something about what he saw. It was hard work!

Here are the models of how the archeologists painstakingly found the bodies buried under the ash.

  1.  Very hot ash and pumice bury the victim early in the eruption of 79.
  2. The body lies buried underground.
  3. The body slowly decays creating a hollow, still including skeletal remains.
  4. Archeologists fill the hollow with plaster.
  5. The plaster hardens.  The cast of the body is carefully excavated.  The ash is chipped off.

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There was a dog tied to his leash and a family who hid in their wine cellar and ran for it when they thought the coast was clear (briefly of no ash). Unfortunately for all 13 of them from that cellar, they were caught running through their garden and died of a flash of intense heat from the volcano.

Apparently there were approximately 12,000 inhabitants in Pompeii at the time of the eruption, but they only found about 1,550 bodies. There is still 1/3 of Pompeii that needs to be excavated near the shoreline. Wonder if and how many escaped by sea? I imagine running in a metre of ash after a couple of hours after the first mushroom volcanic explosion would have been close to impossible. By the next day Pompeii was buried under 4 metres of ash. As big as my house.  From what I understand wouldn’t most of the people die right away from the initial gas explosion? No oxygen. Wouldn’t they have been cooked from the immense heat? How about being pelted by huge rocks dropping from the sky as they were trying to run to get on a ship by the sea?

Gotta go see the real Pompeii for myself and blog it!
There were lots of beautiful Roman frescos and marble statues/busts to see, but this exhibit is only open in Toronto until Jan 3, so your days are numbered if you want to go.  But buy your tickets online before they are sold out and skip the lines.

I lost my cell phone and it’s dead.  I know  it’s in the house somewhere but I can’t find it. So if you are trying to message me, it ain’t happening. I hope this isn’t like the time I lost my engagement/wedding rings. It took me over 8 years to eventually find them.

My iPhone 6 will be ancient history if I don’t find it in 8 years. Sigh.

When I got to the ROM and requested a wheelchair, all 10 were out. The guy at the coat check told me to leave my number and they would call me when one was available. Ha!  No phone.

Had to go back every once in a while to see if someone returned a wheelchair. Eventually I got one.

I really miss my phone. Where r u?  I miss u so much.  Pls come back.

Another Year Without Christmas Shoes

Well, I survived another Christmas. My husband asks me every year if he needs to run out to buy me Christmas slippers yet. Ha ha. He’s got Christmas Slippers part one and two if you want to watch it. Just don’t ever return them.

Unfortunately I have been sick for about 3-4 weeks. The wet, damp mouldy weather we’ve been having is making me cough up a lung as I’m allergic to mould. Today is the first day it’s actually snowed which I’m hoping is going to help. Either that or I’m going to have to go somewhere hot where there is salt water. I’ve got to find a way to dry up my lungs.

I had a blood test over a week ago and got some really bizarre results. (low wbc and rbc, low hemoglobin, low hemocrit, high LD, high B12 and high ferritin. I’ve been getting cramps in my legs and I cant walk up a flight of stairs without being out of breath and having fast heart beats. The nurse at my Drs office told me to go back and redo the blood tests because my blood coagulated and it probably wasn’t accurate. I asked her to put the requisition into the lab and I would go the next day. I went, the requisition wasn’t there. They called up to the office. The secretary said she didn’t know anything about it and the nurse wasn’t coming in until the afternoon. I left. Got a phone call from the nurse later telling me she forgot to put in the requisition but she would do so now. Too late been there twice. Didn’t feel well enough to go back again. So I don’t know what’s going on with my blood work.

On Christmas Eve I had my family coming over at 4:00. I also had to get my two shots in the stomach by CCAC at 2:40. I figured I had plenty of time to pick up the sushi dinner I ordered at Niji’s and the halibut and chips from Fish Joy. But I was wrong. I spent 2 1/2 hours running from one clinic to another one and back to the first one because they lost my file and none of the nurses could give me the shots. I was so desperate I told them I would shoot them into myself… just tell me how to do it. “I can’t do that,” I was told. I was pissed. Spoke to the supervisor on the phone who told me to return to clinic #1 one because that was the only place that had an experienced nurse who could give me the Zoladex (40 degree angle, 16 gauge large metal needle with a hollowed out inside with a pellet). And you know who the experienced nurse was? The same goof I had in clinic #2 I was trying to avoid because he needed two try’s to get it in me in September. Are you kidding me??? I told him, “Please don’t take this the wrong way, but I think that before Princess Margaret Hospital outsources its patients to get these needles, they should train you to do it first. This is ridiculous. I don’t want to be tortured.

My oncologist is going to get an earful when I see him. I never want to deal with this Nursing (?) company ever again. I’m certain that this clinic was the same bunch of idiots who sent a nurse to my house 5 years ago to change my picc line with bloody gloves!

And I now I find out from a friend of mine that they can give you one three month shot of Zoladex. If my oncologist only wants to see me every 3 months, then why can’t his nurse (who knows what she is doing), give it to me? I told him the problems I had been having trying to get this shot. Why didn’t he suggest the 3 month needle instead or something else that the CCAC is equipped to deal with? WTF?

And now to my next problem. Decided I’d better try and get the results of my MRI from Carepath in case I ended up in the hospital. I was feeling pretty rotten. So rotten that I didn’t make it to rehearsal or Christmas Eve service at my church which I have been singing for over 25 years.

The good news is that the tumours I got zapped at T8, T9 are stable (you could have fooled me because I still wake up in pain like someone shot me in the back every morning). There is also evidence of 2 cysts in my neck at C7, C8. But the bigs news of the day is that the technician wrote that there is metastatic cancer throughout my bone marrow OR I have developed something called myleofibrosis….which when I checked on the internet is some sort of blood cancer/leukaemia brought on from too much radiation. In other words, my spinal cord may have been fried and I have some sort of scar tissue which is causing me not to produce enough red and white blood cells.

Now I have been down this road before when I came back from treatment in Germany and I was told I had cancer throughout my bone marrow and I didn’t. I’m not about to have another bone marrow biopsy to prove them wrong again. I will just wait it out.

I’m betting the technician has never seen little piggy stems cells at work and doesn’t know what to call what he is seeing in my bone marrow. My appointment with the radiation guy is at 3:00 on Wednesday. Maybe I’ll get some real answers then.

Things Are Looking Up

Yesterday I was a wreak because I had to go get an abdominal ultrasound. I think I was having an anxiety attack. I was aggravated because I didn’t want to go and my appt was in the afternoon and I wasn’t suppose to eat & drink before this test. I don’t want to lose more weight. When I got there, I was given a new technician to do the test (with her supervisor in the back ground).

I stewed about it all the way home, in tears, having doubts about everything and wishing I could call Michelle or Maria to talk to them. Oh how I wished they were still alive. And then the strangest thing happened. The new Adele song came on the radio. I always associate Adele with Maria O’Kane because one time when I was over at her house her daughter Sam did a song/dance routine to one of her songs. I had to smile because I know Maria I would have said, “The Drs here know shit.”  Then the song “Don’t you worry Child, Cause Heavens Got A Plan For You” which I took as a message from Michelle who was the most religious person I knew. So I stopped letting my mind go to the dark side and just concentrated on driving, singing, and praying. My friends in heaven were communicating from the dead. Call me crazy. I don’t care. I felt them with me.

Today I had to go to my onc. for my shots and to discuss further treatment plans for me (i.e.  chemo). I did not want to go. I had some really bizarre dream last night….something about if my oncologist dumped me as a patient, it would be a good thing because my oncologists wife was doing something wrong and was evil ( I don’t even know his wife). I dunno it was really weird. Took Bobo with me for morale support.

My onc. dr was unusually quiet. Didn’t say one word about going back on chemo. He knew I went to Germany. He handed me a paper with my abdomen results which indicated there was nothing abnormal….no sign of metastatic cancer in any of my organs (liver, gallbladder, kidneys etc). “What a minute”, I said. “What about the thing that was growing at the head of my pancreas? I questioned.  What happened to it! “It’s gone” he said. “What do you mean it’s gone? I asked. “Oh there must have been something wrong with the last CT scan when they did it”, he replied.

However, it wasn’t just one CT scan that showed this thing on my pancreas, it was two. I have records on two scans that there was something there. And now, since I came back from Germany, I have one record that shows it’s gone since.

Bobo said he is puzzled. He doesn’t know what to think.

I told him I needed to get off the tamoxifen for a while because I think that was giving me the pain I was getting on my side, breathing problems, and blurry vision. He told me that was fine and if I wanted to go on it again, even 1/2 dose, I knew where to find him.

I also told him my Dr in Germany told me not to get my lung examined for 6-8 weeks because it would take time for the medicine to work. My onc said, “Sure, when do you want him to book it?”  I said after December 25th because I didn’t want to wreak my Christmas! So I have a chest CT scheduled for some time in early January.

Glad that appointment was over. Getting my shots at PMH next month, then I have to get CCAC to give them to me Christmas Eve because the hospital is closed.

So happy today! That appt wasn’t bad at all. Things are looking up!

So yah think in January if this thing on my lung is gone that he is going to believe in alternative medicine!?

Nah!

 

GcMAF and Visit to Another Cancer Clinic

October 23

I’m at the airport waiting for my flight that Toronto. This is an enormous airport and I had to go to 3 tax free centres to try to reclaim the 19% sales tax on the very little I bought while I was over here. Prices are steep here, especially for clothes.

Just wanted to tell you a little bit about another Clinic I went to in a very, very small town. When I arrived at the train station, there was no one there. And I mean no one. Empty, boarded up train station building that looked like something out of a ghost town movie.

I went there to discuss other treatment options which are not available at my clinic like dendritic cell vaccine, immunotherapy, and GcMAF. It’s a private clinic with a large price tag attached. We’ll see what comes out of my $300 consultation fee. I sent my pertinent medical information in August. I was planning on hiring a taxi when I arrived, but there is no one at the train station to hire. Thank heavens I had my phone and I called the clinic to ask them to call a cab for me. It arrived pretty quickly. Cost me $3.70 (around $6) just to get into the taxi. I ended up paying $30 euros ($45) return. That’s a lot for a 8 minute ride. Nothing but green pastures and a couple of houses to see.

The clinic was pristine. Brand spanking new, but I only saw one patient there when I toured the place. I think I would go nuts if I had to stay there one or two weeks. No one in the cafeteria. No one in the apartments or the weight/fitness room. Just people who worked there. Where are all the patients? Very strange.

According to the taxi driver, there are very few restaurants in town (and I bet you they aren’t open late either).

I spoke to a woman Doctor who had only been there for 2 months and couldn’t answer all of my questions. That cost me $300 (amount will deducted if I do treatment there). From what I understand the immunotherapy treatment may only put me in remission for 6 months – year…not necessary a cure, but a possibility? I told her that my oncologist told me I was nuts to do it because it could attack my healthy cells. First she said, “I don’t know why he would say that. Perhaps he is old and doesn’t understand the newest technology available.” Later when I asked about side effects she did say in a round about way, that it could make you immune system not turn off. I’m guessing that means you can get a fever that doesn’t go down and kills you.

I think I’ll be sticking to the little piggy stem cells.

She didn’t seem to think dendritic cell vaccines and GcMAF was terribly effective. And she couldn’t tell me the costs (although I know a person from London who is doing this treatment and she said it was roughly $50 000 cdn dollars just to get the tumour analyzed for markers.

The next day, I spoke to the oncologist in charge of my case by phone. He basically started to go on a roll about check point markers. I know I have a mutant pathway called P13k so he may have a shot/vaccine to get that one shut down. However, cancer may have many pathways. He said if I had the PD1 pathway I would probably need 4 shots at $10,000 each. That’s $60,000 cdn dollars.  Like how crazy is that? So basically, I would need to give them an open cheque book for them to treat me. Different shots for different pathways.

Meanwhile, the spice turmeric/curcumin can shut down about 53 different pathways and costs a fraction of the price at your nearby grocery store and as far as I know, no one has ever died from it.

While I was there I got my blood tested ($225) for Nagalase, something your body needs to improve your immune system and turn off cancer cells. It looks like the vaccines we get from the doctor (measles, mumps, tetanus, etc) turns it off. GcMAF puts it back in. I figured there must be something to this treatment since 6 doctors from Florida that were successfully treating autistic children and cancer patients all died mysteriously a few months ago. One of them, a prominent naturopath, was found dead in a river with a gun shot wound in the chest three days after the FDA went to his clinic and took his computers/files. Another doctor mysteriously died suddenly in his clinic of heart problems, when he was never know to have any. Not sure how the others died, but then the Company in Europe where they made the GCMAF was quickly shut down.

However this clinic I went to knows where to get it because its also manufactured somewhere in Germany. I should get my results by mail in a few weeks.

Ludwigsberg Castle and the Pumpkinfest!

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Sunday, October 18 (p.m.)

Wasn’t  allowed to take pics inside, but Ludwigs Residential Palace was quite ornate and well kept.

Went for a 90 min tour.  Baroque style on the old part of the first building and later addition in a Neo- classical style.  Ludwig became King because of Napolean (in exchange for 16,000 soldiers to fight the Ottomans?)… Only 400 came back alive.

Another tidbit of info…during time of famine, the king gave everyone free beer and sausages (Octoberfest) so they wouldn’t rebel and kick him out of power.  He had a sickly son who died at 25.  No heir to the throne except a cousin and by then the people didn’t want a King and choose to become a republic.

Didn’t have enough time to see Ludwigs Favourite Castle unfortunately.

Explored the gardens and pumpkin festival in the time I had, which I enjoyed.

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Lichtenstein Castle

imageSo they gave me a brand new Audi. Crazy fools. I maxed out on the insurance so I don’t have to pay anything when I return it if there is a dent or I smash up their car (my fault or someone else’s).

I barely got out of the driveway and it stalled on me…at least that was what I thought. But actually, it goes all quiet when you stop the car and starts up again when you take your foot off the brake. Very strange.

imageDriving along the highway was beautiful as all the colours of the leaves are changing. Reminds me of the Don Valley Parkway, but it’s miles and miles of fall colours as far as you can see. Mountains full of yellow, orange, and red leaves. And the best thing is that you can drive as fast as you want in some lanes (or 120km in others). I was averaging 140 in the middle lane. At one point I was going 160, and cars were still passing me on the left side. Yet I felt completely safe.

Feeling a bit like Thelma minus Louise. Brand new car that smells new, driving, driving driving FAST. I got some amazing pics of Lichtenstein. I wish I could post them but the wifi is not working at all in this room. And I had to let the water run for 15 minutes to get hot water for a shower. Bummed out about the wi-fi. Can’t watch The Truth About Cancer Series #4 and I wanted to see it. Not sleepy yet either. Only thing I can do is write my notes to you.  Oh look a TV. Maybe it works (mine at home gets one Italian station). Wouldn’t have survived the Middle Ages or anything pre-pioneer.

Backs feeling much better. No horrible pain when I wake up. It’s been 5 months of pain every morning. Thank you little piggy stem cells. Keep up the good work.

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There were three enormous pictures of the Duke who had an uncanny resemblance to my cousin Pina’s husband Frank.  In fact, I would say he was a dead wringer for the Duke.  He should go up there one day and tell them he’s an ancestor and I’m sure they’d let him in for free.  Jeepers, dress him up like the Duke and he could even lead the tours!

 

imageWhile I was there, a lovely damsel and a gentleman were being photographed.  So I asked them if I could get a pic with them.  I thought that was pretty neat that you could get all dressed up in medieval attire for photographs.  At first I thought it was a professional photography session, then I thought it was engagement photos, and then I realized they were actually a bride and groom about to get married in a little chapel off to the side.  They changed their outfits…she was in a red dress, he was in black/white…kind of looked like an Octoberfest outfit.

Wonder if Bobo would go for it on out 25th Wedding Anniversary?   Remember that clause about I was never allowed to take a photo of him again after the wedding?  Think after 25 years he’d forget?  Not bloody likely.

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imageAnyhow, I saw the bride being escorted by her father to a little building/chapel where all the guests were sitting, as I peeked through the windows.  I took a picture!  And entertained a lovely young couple (who I got to take pics of me, and I took pics of them).  We had a good time coming up with where would be the best shots!  Nice couple.

 

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imageHad lunch at a cafe across the street.  Had some bizarre meal…looked like fried long thin gnocchi with sauerkraut  on top.  All the other dishes had meat and I’m trying to abstain from eating pork (free radicals).

 

 

I found my car and told the GPS to go to the hotel and it took me to the middle of no where (trees/mountain…and said you have reached your destination…NOT). Fortunately my little GPS in my brain managed to drive in the right direction until I found a nearby town I recognized from a Google map I saw the night before. Stopped the car and painstakenly put in the hotel address once again (I had the guy at the rent a car place to do it for me initially and I thought I was all set). Wrong. Got a bit concerned because there were trees everywhere, and many, many deer signs, and it was starting to get dark.

imageimageWhy does this always seem to happen to me?

 

Then I remembered if I got into a collision with a deer, it was paid for by insurance and it wasn’t even my brand new car…so I went merrily on my way (smirk)!

 

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There was another wedding awaiting me at the hotel Jagerhaus in Esslingen Au Neckar.  Each guest was given a white balloon to release in the air while the bride and groom got red heart shaped balloons.  It was neat to see them all float away.

I ate dinner with two young guys drinking beers and their dog.  The dining room was completely packed for the wedding and seating was limited so I got to share my table in the adjacent restaurant.  Another dog came in and the one under my feet yelped and everyone in the restaurant jumped.  The waitress gave the dog his own water bowl.  Too funny!

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imageimageMy room was on the top floor and had beams running across the ceiling.  I liked it but was upset I didn’t have wi-fi and it took 15 minutes to get the water running hot!

Oh well, at least I got some much needed sleep!

Needles, High Tea and Then Spa Time!

Friday, Oct 16

Ozone therapy, iron/ artesunate IV and more needles today. Then I signed myself up for 3 sessions of colon hydrotherapy. Today I had my first. Honestly felt like a new person after that. But I felt very sorry for poor Pamela as I truly stink when I get that done. Got the rest of the gas I had been accumulating out. I would need a gas mask to do her job. Mind you, the smell wasn’t nearly as bad as the first time I had it done two years ago…all I could smell was the chemo drugs I had been taking that had been residing in my gut for several years. My tummy feels so good now.  Happy!

I went for high tea in a French Patisserie shop with Marcella for lunch. Enjoyed the company but was disappointed with the platter they served us. Only tomato, cucumber and cream cheese sandwiches with the crust still on it cut into triangles. Who does that? And the bread was not very fresh. The scone was so tiny… 2 cm in length and height. How can you classify that a scone? Top that with two tiny pastries covered in fondant which I can’t eat (sugar). The only good thing in there was 3 raspberries on a tart the size of a quarter. They must think they are serving munchkins or something. Sorry I didn’t get a pic of it… Just visualize a tea party for dolls and that’s what we got to eat.

I went to the Caracalla Spa and spent some time with my new Canadian friends Marcella and Rick. The water was so healing and warm. Massage was just what I needed. Haven’t had a lot of sleep…maybe this will help.

Sorry no pics allowed at the spa.  Nudies on the second floor.  Privacy issues.  You know what I mean.

Heidelberg

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Wednesday, October 14

This mornings therapy included two shots in the butt, one in the stomach and two in the back. Ouch! Little piggy stem cells…. get to work.

Also made use of their bio photon machine on my back and stomach. Got out of there pretty quick today so I started looking into renting a car for the weekend. I’m going to try to get to a really cool castle, but it’s a bit far and resides on two cliffs with a wooden walkway in between. Can’t wait to see that, even if it is 2 hrs away.

 

 

Today I visited a place that would knock your socks off. Heidelberg. It was stunning.image

 

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I, unfortunately, know very little about the history behind this place because I didn’t feel up to standing and listening to a guide speak in broken English. Back is again sore from walking from the marketplatz and through the old part of town.  Beautiful alley to the castle with unique ornate buildings and lovely little shops.  Bet you it’s gorgeous at Christmastime.  Needed to get on a funicular to get all the way up the side of the mountain.  I’m sure you could probably hike up there, but I was in no shape to attempt it.

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Just how did they build this thing in the early 1200’s? The manpower involved boggles the mind. Must have been thousands of people trudging up rocks up the cliff.  And they didn’t have machinery.  Can’t believe what I’m seeing is real.

imageApparently a bomb from France knocked off a huge chunk of a turret from the castle which looks to be at least 10 ft thick.  Wonder if anyone got killed from the section of the wall that came down!  The Germans decided to leave the ruins the way they were….if you think about it, who’d want to fix it nowadays and how would they do it?  I overheard a tour guide say something about a guy named Noble who decided to give dynamite a try.  Worked a couple of times but wasn’t too sure of the process even though the Chinese had been detonating things for years.  Nobles brother was handling some dynamite at some point and blew himself up which devastated his family.  That’s all I know.  Wonder if it’s the same Noble who won the Peace prize.  Did he have a brother who detonated himself?

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Got home late. First train was late.  Missed connection.  Got on the next one and slightly dozed off.  Woke up.  Saw sign inside train saying Baden Baden.  Raced off the train.  Once outside, realized it was unfamiliar territory.  Quickly asked woman nearby if this was Baden-Baden.  She said,” Rastatt”.  Train doors closed.  Bye bye train.

Got home….eventually.  Sigh.

Still had a great day!

 

 

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Fall In Baden-Baden

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Today was a beautiful fall day to take pics in and around Baden-Baden.   Thought I’d make the most of it because it’s suppose to be sunny for only 3 days, and then rainy for the two weeks I’m here!  I’m hoping they are wrong!  Just like Vancouver!

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I met some people at the clinic from Canada who live right around the corner from my sister.  There names are Marcela and Rick.  We fast became friends.  They have a car and today we went on a ride on a cable car to Merkur Mountain and had a cup of tea, ice cream and hot chocolate.  I’m their new tour guide!

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Almost killed led myself on this crazy slide…it was the fastest one I e ever been on in my life!

Then we drove to Rastatt Residential Palace which was constructed by an army general named Margrave Ludwig Wilhelmina of Baden-Baden.  This castle was suppose to be a replica the one I saw in Versailles, France.  Unfortunately it was closed on Mondays, so we didn’t see much of the inside.  The whole little town was quite lovely and all the buildings were a salmon colour.  All in all, a productive day!

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Tomorrow I meet with the dr to discuss my treatment plan.  Today was all the tests and blood work.  Again my blood was black…not goot!

It’s 5:00 in the morning and I’ve been up since 1:00…I had a decaf coffee today! Why did I do that?  Oh yes! I smelled the aroma of delicate roasted coffee beans and decided I must try one! I don’t think it was decaf. My appt is at 11:00. I really should go back to bed. I only had 2 hours of sleep tonight.  Gute Nacht!