Go Figure

Good News.

I just got ALL my test results from my CarePath nurse which I requested and I’m glad I did because I got some new information.

I always ask for a copy of my report/scans when I leave my doctors office. In January, I was given only one page, that my brain wasn’t bleeding.  Just like I thought…my cavernous hemangioma was occupying some land in my right cerebellum.

What I didn’t get (or was told) at that appointment was that that thing in my neck that they wanted to zap (cancerous para-spinal tissue) was GONE!  Just like my German doctor said…It wasn’t cancer .

Remember?  Here they wanted me in a clinical trial to get rid of “the cancer” near C6  (2 high dose treatments that had a 10% chance of breaking my neck).

Go figure.

So what is a poor slop suppose to do if they didn’t have this same service as me where You can request ALL your documents?  How do they know if they were giving all the facts?

Makes you wonder.

P.S.  I still have an interesting tale to tell you, but I’m waiting for the right time to spill the beans.

 

 

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Dr. Phobia

4 moodsI’m convinced I have a mental illness.  I call it Doctor Phobia.  It generally happens when I have to go get results and I’m kept waiting and waiting and waiting a long, long time for an appointment.  I am on time.  I am early actually.  But they (referring to my Dr’s) are NEVER on time.  Not my family Dr, not my Oncologist, and not my Radiation guy.  In fact, you know how they say “Patience is a Virtue”.  I do not have any of that when I have to sit in waiting rooms wasting whatever time I have left on this earth.  Besides, I’ve got a MILLION other things I’d rather be doing rather than sit there.

So todays story goes like this.  I had a radiation appointment at 10:30 on Wednesday.  I was suppose to go to a staff meeting at lunchtime to fill the teachers in on our Spring Concert, which, by the way, I am directing.  When I got to my appointment, I asked the secretary if he was on time because I really needed to go somewhere else at 11:00.  She said there was only one person ahead of me.  I’d probably see him by 10:45.  I went downstairs, had a drink, got myself a sandwich.  Went back and waited.  At 11:00 I asked when I’d see him.  She said there were two people ahead of me.  Wondered about that one since I was told at 10:15 there was only one person ahead of me. Now there were two?   Hmmm.  Pondered what I was going to do.  Should I stay or should I go?  If he tells me I’ve got more cancer I wasn’t going to do anything differently anyway.  I was still going to go to Germany.  

So the new me, decided to ditch the doctor’s office.  I knew Maria O’Kane would have been proud of me.  She used to tell me it was fine to be late and cancel if you didn’t want to go!  She had guts!

I wasn’t sure if it was the right decision, but I had things to do and I really didn’t want to stick around while the meter was running at $4.75 per half hour.  So I asked the secretary to get him to phone or email me the results.  She told me to phone the nurse’s hotline and ask for them.  I did.  Three times.  They said they couldn’t do anything for me…I had to phone for my records.  I emailed my Carepath nurse and asked her to get my results for me, but she’s on vacation. 

Then I started stewing about how was I going to find out.  First I don’t want to know the results.  Then I’m obsessed about getting them.  So I phone his secretary and told her to tell him I was going back to Germany next week and I had to know by Monday what vertebraes had cancer in them so I could point them out to my doctor to get more stem cell injections. 

He just phoned. Apparently I’m fine.  Nothing showed up on the MRI.

laugh

He sounded really, really surprised.  “How are you feeling?” he kept asking me.  “I feel great”, I told him.  I don’t think he could believe it since the last time I saw him I was yellow, my bone marrow was lite up like a Christmas tree on the MRI and my hemoglobin was so bad I needed a transfusion.  But all is good now.  He said, “Okay, how about we do another MRI in 2 months?”  “Sure”, I answered. 

YIPPEEEE!

Italy here I come.  Germany, you too. 

Thanks for all the prayers family and friends. You know who you are!!!

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P.S.  I had my Vitamin C I.V. today.  My Naturopathic doctor could not believe my hemoglobin level went from 78 to 126 so quickly without a blood transfusion.  I think she wants a bottle of the stuff I got from Germany to try it on her patients!

I will try to blog my escapades with my friend/colleague Mary when and if we get wi-fi as we are travelling across Italy.  I can’t wait.  Ciao for now!

U know Ur in Trouble When the Dr Calls!

So early this morning before I even got out of bed, I got a phone call from my family doctor. Oh.., that can’t be good I thought when I heard her voice. It’s not the secretary.

“Ahhh, I got your blood work back and it looks like you need a blood transfusion,” she said. “However, the problem is that every place where you can get this done is closed today and I don’t even think they can do it for you if you went to emergency.”

“It’s my lucky day,” I thought. I’m not going to emerg today. Happy New Years!

“So how low does your hemoglobin have to be when you need a transfusion?”, I asked.

“The low 80’s,” she answered.

“What am I at?, I questioned her.

“78…. I’m surprised you are still walking.” she responded.

“Well I wasn’t walking last week and I turned yellow, but I’m better now.”

“What do you want to do?”, she asked me.

What can I do? I’m going to party? Everything is closed until Monday and that’s when I’m suppose to have a CT Scan. So I’m going to do nothing right now. I don’t really care anyway. I’ll send Germany an email and tell the dr to send me something. This happened to me before.
“Just don’t get cut until then,” she said, “And get into hospital if you start bleeding for any reason”.

“Even a hemorrhoid?”, I asked.

“Even a hemorrhoid”, she answered.
WTF? Now I’m going to be shitting blood too? I don’t think so!  Holy crap!

By the way, did you happen to get the results of my latest MRI?, I asked her.

“No,” she said.

Well, apparently I have extensive metastatic disease throughout my bone marrow again.

She didn’t say much after that. I think my doctors are more worried than I am.

I had a nice burger yesterday hoping to get my hemoglobin up. I’m eating more now, but I now weigh the same amount I did when I was in university. Bobo says I’m getting pretty skinny. My scale says so too.

The conversation in the car went really well on our way to the market.
Who wants to give me some blood?, I asked.

Aughhhhh! No way, cried my brood in the back.
“I will”, said Bobo, my universal O type donor husband.
“Good”, I said. We just need two needles and a tube and we can attach ourselves to one another! True love!

Happy New Year Folks. I need to drink some blood tonight. I’m turning into Dracula’s wife tonight!
Cheers to 2016!

Held Hostage at Sunnybrook Parking Lot

Wednesday, Dec. 30, 2015

I had one hell of a really awful experience today at Sunnybrook Hospital.  I lost it.  Here is my story.

I went to see my radiation doctor today.  I could see he was really concerned about me and told me I was looking a little bit darker and yellower.  I told him that was nothing.  Last week I was really yellow, but I was feeling better now.  He ordered some urgent blood tests and told me he was going to get in touch with my oncologist because there was evidence of metastatic disease in my bone marrow.  I told him that happened the last time I went to Germany and it wasn’t.  He didn’t look convinced and asked me if I wanted to have a chest x-ray done right now because of my coughing and I told him no because it was getting better.  And besides why bother when I was going to have a CT scan next week anyway.   

stressedSo I went and got my urgent blood work done and was anxious to get out of there because I parked my car at the Rip Off Money Sucking Sunnybrook Parking lot because I’ve been having problems walking lately and couldn’t make the trek from a side street.  Bobo was with me and we started putting in the $14.25 fee into the machine.  It ate $5 and wouldn’t acknowledged that I paid.  I pushed the help call button.  No one answered for a while and I started getting ansy.  I pushed the help button about 10 more times until someone answered.  I told the lady the machine ate my $5.  She said she would send someone to help me.  So what happens.  Nobody comes. 

I push the button again.  I told her no one was coming, I had 2 kids at home alone and I wanted to leave.  She said someone was coming.  Well, no one came for over 15 minutes.  I asked a nearby security guard if he could help me.  He said he could not.  I pushed the button again and again and again.  I think by that time the woman was ignoring me so I gave up.  Cancelled my transaction.  The machine gave me $9.25 back.  Still missing my $5.  Took the card and decided to take it up with the parking lot attendant.  Spoke to the valet parking lot attendents.  They told me they couldn’t help me, but to get into my car and drive to the other attendant who should address the situation.  Well, you know what happens when I get to him?  He wouldn’t let me out of the parking lot.

special kind of stupid

By then my nerves were shot.  I told him that the machine ate my money, here was the rest of the money ($9.25) and I wanted to go home.  He said I couldn’t leave until he spoke to his supervisor.  Well he was on the phone for a VERY long time and there were a lot of angry people in cars behind me who also wanted to leave.

Saint....I-Have-My-Limits

Then I lost it.  I told him to give me the phone, I wanted to talk to his supervisor.  At this point I told her that the stupid machine ate my money at the Odette Center and I paid for my parking and if she didn’t get this guy to open the damn gate I was going to ram my car through it.

The parking attendent took back the phone and the driver behind me gets out of his car to find out what the problem was….at which I yelled back that the people here are stupid idiots and the bloody machine ate my money and these people wouldn’t let me out.

So my husband told me to park the car in the lane so no one could get out and we would walk back to the Odette Centre and wait for that special someone to arrive to open up the machine to get my $5 back to prove we paid the $14.25.

So I turned off the car.  But I couldn’t get out of the car because it was too close to the booth.  I thought I was going to loose my mind.

calm punch ppl in face

Then I told the attendant to phone the police.  Call 911, I was being held hostage in Sunnybrook Parking Lot.  I really wished I had my phone at that time because I would have done it.  Then my husband threw another $5 at the attendant to pay for the rest of the $14.25 and then told him that he just stole another $5 from us and he wanted to charge him with theft when the police arrived.

I think that scared him because he opened the gate. 

But I wasn’t going to let that rest.  This had gotten past the point of sanity.  I was LIVID.  I told him I wanted his name and his supervisors name and phone number because I was going to lodge a complaint.   

I phoned her a little while ago.  She agreed that what happened to me was not acceptable and she would phone me tomorrow morning and find out what went wrong.   

I don’t know who owns these stupid parking lots at the hospital, but I, for one, am tired of being gouged $4.75 every half an hour.  It’s not like terminally ill cancer patients have a choice in the matter of where they can park.  We are stuck for hours waiting for doctors appointments and scans while the meter keeps on ticking.  Someone is getting rich on the behalf of ill people.  It is not right.

And why is it okay to keep people hostage in parking lots after they have paid?   If the machines don’t work, hire human beings WITH BRAINS who can THINK when a problem arises or here is an idea…..make PARKING FREE at hospitals.    

Hey, I know.  Get the drug companies to pay for hospital parking.  They are making over $270,000 per patient in 5 years.  Two patients should cover it.

Another Year Without Christmas Shoes

Well, I survived another Christmas. My husband asks me every year if he needs to run out to buy me Christmas slippers yet. Ha ha. He’s got Christmas Slippers part one and two if you want to watch it. Just don’t ever return them.

Unfortunately I have been sick for about 3-4 weeks. The wet, damp mouldy weather we’ve been having is making me cough up a lung as I’m allergic to mould. Today is the first day it’s actually snowed which I’m hoping is going to help. Either that or I’m going to have to go somewhere hot where there is salt water. I’ve got to find a way to dry up my lungs.

I had a blood test over a week ago and got some really bizarre results. (low wbc and rbc, low hemoglobin, low hemocrit, high LD, high B12 and high ferritin. I’ve been getting cramps in my legs and I cant walk up a flight of stairs without being out of breath and having fast heart beats. The nurse at my Drs office told me to go back and redo the blood tests because my blood coagulated and it probably wasn’t accurate. I asked her to put the requisition into the lab and I would go the next day. I went, the requisition wasn’t there. They called up to the office. The secretary said she didn’t know anything about it and the nurse wasn’t coming in until the afternoon. I left. Got a phone call from the nurse later telling me she forgot to put in the requisition but she would do so now. Too late been there twice. Didn’t feel well enough to go back again. So I don’t know what’s going on with my blood work.

On Christmas Eve I had my family coming over at 4:00. I also had to get my two shots in the stomach by CCAC at 2:40. I figured I had plenty of time to pick up the sushi dinner I ordered at Niji’s and the halibut and chips from Fish Joy. But I was wrong. I spent 2 1/2 hours running from one clinic to another one and back to the first one because they lost my file and none of the nurses could give me the shots. I was so desperate I told them I would shoot them into myself… just tell me how to do it. “I can’t do that,” I was told. I was pissed. Spoke to the supervisor on the phone who told me to return to clinic #1 one because that was the only place that had an experienced nurse who could give me the Zoladex (40 degree angle, 16 gauge large metal needle with a hollowed out inside with a pellet). And you know who the experienced nurse was? The same goof I had in clinic #2 I was trying to avoid because he needed two try’s to get it in me in September. Are you kidding me??? I told him, “Please don’t take this the wrong way, but I think that before Princess Margaret Hospital outsources its patients to get these needles, they should train you to do it first. This is ridiculous. I don’t want to be tortured.

My oncologist is going to get an earful when I see him. I never want to deal with this Nursing (?) company ever again. I’m certain that this clinic was the same bunch of idiots who sent a nurse to my house 5 years ago to change my picc line with bloody gloves!

And I now I find out from a friend of mine that they can give you one three month shot of Zoladex. If my oncologist only wants to see me every 3 months, then why can’t his nurse (who knows what she is doing), give it to me? I told him the problems I had been having trying to get this shot. Why didn’t he suggest the 3 month needle instead or something else that the CCAC is equipped to deal with? WTF?

And now to my next problem. Decided I’d better try and get the results of my MRI from Carepath in case I ended up in the hospital. I was feeling pretty rotten. So rotten that I didn’t make it to rehearsal or Christmas Eve service at my church which I have been singing for over 25 years.

The good news is that the tumours I got zapped at T8, T9 are stable (you could have fooled me because I still wake up in pain like someone shot me in the back every morning). There is also evidence of 2 cysts in my neck at C7, C8. But the bigs news of the day is that the technician wrote that there is metastatic cancer throughout my bone marrow OR I have developed something called myleofibrosis….which when I checked on the internet is some sort of blood cancer/leukaemia brought on from too much radiation. In other words, my spinal cord may have been fried and I have some sort of scar tissue which is causing me not to produce enough red and white blood cells.

Now I have been down this road before when I came back from treatment in Germany and I was told I had cancer throughout my bone marrow and I didn’t. I’m not about to have another bone marrow biopsy to prove them wrong again. I will just wait it out.

I’m betting the technician has never seen little piggy stems cells at work and doesn’t know what to call what he is seeing in my bone marrow. My appointment with the radiation guy is at 3:00 on Wednesday. Maybe I’ll get some real answers then.

Heidelberg

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Wednesday, October 14

This mornings therapy included two shots in the butt, one in the stomach and two in the back. Ouch! Little piggy stem cells…. get to work.

Also made use of their bio photon machine on my back and stomach. Got out of there pretty quick today so I started looking into renting a car for the weekend. I’m going to try to get to a really cool castle, but it’s a bit far and resides on two cliffs with a wooden walkway in between. Can’t wait to see that, even if it is 2 hrs away.

 

 

Today I visited a place that would knock your socks off. Heidelberg. It was stunning.image

 

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I, unfortunately, know very little about the history behind this place because I didn’t feel up to standing and listening to a guide speak in broken English. Back is again sore from walking from the marketplatz and through the old part of town.  Beautiful alley to the castle with unique ornate buildings and lovely little shops.  Bet you it’s gorgeous at Christmastime.  Needed to get on a funicular to get all the way up the side of the mountain.  I’m sure you could probably hike up there, but I was in no shape to attempt it.

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Just how did they build this thing in the early 1200’s? The manpower involved boggles the mind. Must have been thousands of people trudging up rocks up the cliff.  And they didn’t have machinery.  Can’t believe what I’m seeing is real.

imageApparently a bomb from France knocked off a huge chunk of a turret from the castle which looks to be at least 10 ft thick.  Wonder if anyone got killed from the section of the wall that came down!  The Germans decided to leave the ruins the way they were….if you think about it, who’d want to fix it nowadays and how would they do it?  I overheard a tour guide say something about a guy named Noble who decided to give dynamite a try.  Worked a couple of times but wasn’t too sure of the process even though the Chinese had been detonating things for years.  Nobles brother was handling some dynamite at some point and blew himself up which devastated his family.  That’s all I know.  Wonder if it’s the same Noble who won the Peace prize.  Did he have a brother who detonated himself?

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Got home late. First train was late.  Missed connection.  Got on the next one and slightly dozed off.  Woke up.  Saw sign inside train saying Baden Baden.  Raced off the train.  Once outside, realized it was unfamiliar territory.  Quickly asked woman nearby if this was Baden-Baden.  She said,” Rastatt”.  Train doors closed.  Bye bye train.

Got home….eventually.  Sigh.

Still had a great day!

 

 

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Fry the F**kers!


Looks like a have one or two new tumours giving me grief (T8-9).  My radiation doctor doesn’t really want to radiate it, saying I’ve had too much radiation.  He thinks I may qualify for a clinical trial on Photodynamic Therapy.  Small surgery, put some chemo/dye at the site, blow up the cancer cells with light/oxygen and cement the leftover hole in the bone. 


NutellaI was suppose to go have a CT Scan on Friday night at Sunnybrook to see if I fractured my spine during my Laser Quest escapade.  Still hurts.  I asked the secretary and the guy who phoned me about the scan to make sure that they also put in a requisition to check my liver/lungs while they were at it because I did not want to have more CT scans when I could do all three at once.  Needless to say,  I arrived at Sunnybrook only to be told that they were going to only check my spine.  I told the lady that I had an appointment to check all 3 areas at Toronto Western on August 5th and I’d rather keep that appointment instead.  So I left.  One CT scan is the equivalent to 500 x-rays.  Figured with this move I saved myself from an extra 1,000 x-rays and an additional dose of radiation dye.  Don’t think my radiation guy is going to be happy with me though when I see him on Wednesday.


In the meantime, I  have decided to try to blow up the tumour myself using Far Infra-Red Rays.  I bought this thing called a Biomat (by Richway).  It was not cheap.  I have been researching about it since I recently discovered it on a metastatic cancer website (Inspire).   Many lung cancer patients were getting good results after buying one.  Helped with pain management, got rid of the mucous in lungs after a couple of sessions and reduced/stabilized  tumour growth.  People felt better after using it.  Some hospitals in Japan are beginning this technology as well.

Biomat Pic.

Cancer patients typically have low body temperature (mine is 95 degrees celcius, when it should be 98).  I have been using a heating blanket/pad to combat feeling cold which is not good as it gives off electromagnetic waves (bad for the good cells in your body).  The biomat releases Far infrared rays (which cancer hates) and it’s good for your healthy cells.  It penetrates 6 inches deep into the body and also provides you with negative ions, improves your blood circulation and digestive system, and detoxes your body.  For every one degree you increase you core body temperature, it can make your immune system work more effectively.  For cancer patients it makes sense  that if you can improve your immune system, you have a better chance at living longer. 

Now that I’ve been using it for a couple of days, I am finding that I don’t feel like I’ve been shot in the back when I wake up….it’s more a feeling of being punched between the shoulder blades.  My digestive system has improved.  My body temperature is at 96.4, instead of 95, which still isn’t normal (98) but it’s on the right track.  I also have a lot more energy and feel better.  For some strange reason, my allergies seem better too.

Newest immunotherapy techniques involve giving patients a vaccine like polio (without the paralysis part of the disease) to stimulate the body to cause a fever.  If you can get a temperature of 104 for 20 minutes, you can kill cancer cells. 

Found a case of a breast cancer patient who got rid of the mets in her spine by going on the biomat over 2 months for 30 minutes each day at 158 degrees fahrenheit, the highest setting.

So my objective right now is to get my core body temperature to normal and at some point, to fry the fuckers.

And I’m going back to Germany in October.  Was hoping I’d be there for Octoberfest to try some beer and sausages, but apparently that event takes place in September.  Go figure.

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her-side-of-the-bed

Funny Story…..

The day I brought my Biomat home and put it on the bed, our cat Jumper decided it was hers and lay on it.  Every time I went near her to get her off, she smacked me with her claws, which she never has ever done before.  I had to call for reinforcements….Bobo!  “Get her off my biomat”, I implored.  Man, she was not happy when he finally managed to scoop her up and move her.  Decided this new thing on the bed was hers.  Odd, don’t you think?  

Visions of Spending My Summer Vacation In Jail

July 6, 2015

bail money“I’m going to jail,” I proclaimed to Bobo after receiving an email from my accountant.  “That’s good”, responded my husband, the eternal optimist….”free medicine when you are in jail “.  Good point….never quite thought of jail in that way.

eggsRevenue Canada is auditing me once again.  Really?  Can’t they pick on someone else for once?  Why me?  The last time they audited me I had to prove I gave birth to two children and they both went to daycare.  Seriously, can they not connect to another government computer to see that my children actually exist?  Now Revenue Canada wants proof that I went to Germany for Cancer Treatment.  All this for a little over a lousy $2,000 I got back for my tax return.   Oh Crap if I have to pay any of it back.

hairSo guess what I have been doing over the last couple of days?  Pouring through past receipts, visa statements, medical records, etc.  to come up with everything I spent on transportation (flight/train), accommodation, prescriptions, food, and treatment.  I’ve got 30 days.  That’s how I started my summer vacation.  Hmmpf.

This morning I woke up in excruciating back pain in which I could barely breathe.  “I am so not going to make it until my MRI next Friday”, I thought.  May have to park myself at an ER today.  It felt like someone shot a big hole between my shoulders. On a scale of 1-10, it was a 20.  Time to call an ambulance?  Phoned my radiation guy who told me to come in.  Explained to him that I am crazy, did something stupid (played Laser Quest at my sons birthday party)  and have been seeing stars ever since.  “Possibly fractured,” he said. 

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my own little worldI also told him I ran out of snake venom from Germany over a month ago and perhaps the cancer may be back.  His eyes and mouth opened wide in shock at the mention of the snake venom.  “Yeah, that’s right.  Snake venom.  Poisonous Snakes will kill you if they bite you, but its harmless if you ingest it…yet it prevents cancerous tumours from getting a blood supply.  That got his attention.  Big grin too.  Gotta luv da guy.

Now I would never be able to have this same conversation with my oncologist, who I imagine would just throw his hands in the air, tell me it’s quackery once again, and kick me to the curb side, because nothing but conventional medicine works.  I would oh so like to prove him wrong.  I would get such smug satisfaction in that.  I told him I was having considerable back pain lately.  The only thing I got out of him on Friday was that it, the cancer, was probably everywhere by now and I need another CT scan at the end of July.  I’m waiting to see what next weeks MRI shows before I agree to attend that one.  It happens to be scheduled on the same day as my visit to St. Annes Spa…..I won their Spa Lotto Contest for a free hydrotherapy session.  So guess where I want to be on July 30th?  Not exactly jumping through hoops to get the radiation equivalent amount of 500 X-rays when I just had that one done in April.  Besides didn’t my soothsayer doctor also tell me that I would be back to drain cancerous fluid from my lungs by now?  Did that happen?  Nope.  Well then?  Why spoil a potential beautiful day at the spa for a CT scan?  Maria O’kane got it right when she told me to “Do What You Want.  Don’t want to go to an appointment, then don’t go.”   “Fuck the doctors, they know shit”, she used to tell me.  Sometimes you just get to the point when you get sick of being told what to do and need some rest and relaxation time so you don’t go mentally insane from the bullshit.

And so the saga continues. 

old ageI asked the x-ray technician what happens if I have a fracture.  He said, “Spinal Decompression”.  “Oh shit,” I thought. “…does that mean two metal rods to hold up my back?” I asked him.  “Yup”, he answered.  “How ’bout cement?  Can they do that instead?”, I asked.   “Depends,” he answered.  “Damn those Laser Quest battery packs.”  “Damn me for being such a big kid and wanting to do things I should not be doing”.

He went to look at the film.  “Oh, you already have two metal rods in there near T 12”.  “That’s right, and it was so enjoyable the first time that I never want to experience it again.”  I think I’d rather get radiated.

My doctor phoned me a couple of hours after I got home…lucky for me it’s not a fracture causing me this grief. Spared another set of rods!   That’s a relief.

Perhaps my new back pain was due to another one of my stupid (?) moves in which a truck dumped three 2×4’s in front of my car on Bayview Avenue the other day, blocking traffic.  Me, clearly insane, put on my hazard lights, and hopped out of my car in an attempt to move them to the side.  Too heavy.  Moved them a couple of inches until two men told me to step aside so they could take them to the curb.  Thank heavens for the good Samaritans.  The driver realized his load was on the street, parked his truck, and ran back to get it.  Jumped back into my car and continued on my journey when the wood was safely removed.

Wonder if this new pain has anything to do with that German vitamin (?) capsule I’ve been taking.  The (?) means I don’t really know what is in it.  Again.  Here, let me type in the ingredients.  If any of you read German, let me know what you come up with. Looks like vitamins to me, but who knows?

Ammoniummolybdat

Tri magnesium citrat

Eisen II gluconat

Zinkorotat

Mangangluconat

Kupfersulfat

Natriumselenit

Selen ion

Time for more oxycocet and a soak in the tub.

wierd

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July 7, 2015

gratitudeFeel surprisingly good today.  Back is not great, but it’s manageable without pain meds.  Didn’t take the Vitamin Capsule.  Hmmm.  Wonder if whatever is in that German capsule likes to attack radiation sites?   My neck and pelvis was hurting yesterday too.  

Got another phone call from Sunnybrook. My MRI has been bumped up once again to this Sunday.  My radiation doctor is a saint. 

Just a thought….If nothing (cancer) shows up on the MRI, how am I going to explain this one? Hi, I was in excruciating pain for nothing…no fracture, no cancer…just a German vitamin capsule.  Hmmmm……I may be so in the dog house.  

Suggestions for a lovely gift basket?

And The MRI Results Are IN!

Good news! Just got my MRI report. My many tumours in my spine are ALL STABLE!

HURRAY!

 

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The Snake Venom is WORKING!

 

 

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Doesn’t taste too bad…kind of like an alcoholic drink! Just got to get my head around it now that I know what it is.  Crap I was shitting my pants all day today with worry.

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So the plan now is, get off everything except what the German guy is going to send me (I’ve almost run out).  And make necessary adjustments next month when I get my lung x-rayed.  I’ve been on the snake venom for 3 months and nothing has increased in size in my bones since January, so this is very good news.  I can always go back on the tamoxifen later as I have a 3 month supply.

snake-RattleSnakeHopefully my heart will stabilize too without all the extra stuff I was taking which seems to have been interacting with one another.  I should have known better.  However, I’ve been through this road before with my heart, and know what I need to do (exercise/eat) myself back to health.

 

I Couldn’t Make This Up If I Tried

IMG_0275I’m having a weird week.  Hmmm where do I start?

IMG_0279Took something called Jut-U-SinR8 recommended by a the quack in Etobicoke and ended up in the ER with a convict, 5 security guards, and a room full of screaming kids and other sick people.  This is what happens when you live in Scarborough.  Decided not to stay.

 

IMG_0276IMG_0373Found a cute paramedic around the corner, showed him my heart monitor results and asked him if it was safe to get my husband to drive me to Mount Sinai (because the last time I came here with heart trouble they told me not to do that again)  or should I be enlisting in his ambulance services?  He said, “Oh, that is not good…. but I think your husband has enough time to get you there”.  Good enough for me, I thanked him and escaped.  Luckily, my racing heart startied to show signs of improvement and I told my husband, “What the heck, just take me home (where  left the kids alone).

IMG_0393IMG_0363The next day I went back to the quack and told him I didn’t have heart problems before I came here and now I was leaving with two.   All I got was 1/2 my money back.  Asshole.

 

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IMG_0466IMG_0461Went to the Naturopathic Clinic today for my Vitamin C infusion and was rejected due to my recent heart problems.  Brought out my meds from Germany and all my supplements and guess what I learned today?

 I’m taking snake venom!

How do you like them apples?

IMG_0468IMG_0459I’m currently waiting for my results on my MRI from Monday.  That was the best appt ever.  No one was scheduled for any MRI’s because they were on stand by for Victoria Day Week-end Trauma patients.  There weren’t any, so I went right in and was finished in 45 minutes.  Bonus.

 

IMG_0456IMG_0474So if I don’t have any increases in existing bone tumours, I would like to think the snake venom is working and whatever they saw in my lungs isn’t anything to be concerned about.  If, however, I have some new spots on any of my bones, I am going to have to come up with a different game plan.  Hopefully the spots they zapped in January with radiation are dead/stable.

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Snake venom doesn’t taste too bad, you know.  I mean, if you think about it, I’ve been given mustard gas (amongst other chemical warfare, I’m sure), thalidamide, and rat poison (and those are the ones what I know about).  It’s a wonder I’m not dead already.

I couldn’t make this up if I tried.

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Hope you like the photos of the spring flowers in our garden.