Life is Grand


I apologize for not writing in a very long time, but I’ve had too much going on.  A few new developments in my life…some good, some not so good.

First, my medications from Germany got held up since early September.  UPS and Canada Post are having difficulty delivering packages with alcohol contents because they think it is a bomb.  Canada Customs no longer allows anything with alcohol get through without a lengthy delay, so I’m waiting for a friend to bring my tinctures back home with her.  She’ll be back in early November.   Thats 2 months without medicine.

My last “report” from my urine sample (in August) said I was toxic/acidic and to come back to Germany for an intensive treatment.  Then I had an MRI which evidently shows cancer in my soft tissue (para-spinal) at C6 (bottom of my neck) and some new spots in my lower back (L2-S3). 


My radiation guy wants me to participate in a clinical trial where he would radiate that neck area with two really high dose treatments.  Trouble is there is a 10% chance of it fracturing my neck.  


I was told not to worry, they would take good care of me and would put my neck in a brace. 

I asked him if there was a chance that I would become a paraplegic and he kind of skirted the issue and said…”Yeah”.   Well, guess what?  As Maria O’Kane would say…I don’t like that plan.” 

Another alternative is to do 5 low dose radiation treatments but I don’t think its as effective.  “But wait a minute,” I said to my dr.  “I thought the last time I talked to you, I reached my maximum radiation allotment.”  “Oh no, you can have more”, he responded.  Really?

what-the-hellWell, I’m not entirely convinced I can have more radiation.  As far as I understand any more radiation and I’ve upped my chances of getting leukemia, non-hodgkins and various other cancers.

Besides, I think my thyroid has been fried from the last set of radiation treatments on my neck as there were many nodules found throughout my last ultrasound.  My family dr just told me that if I live to old age, I will need to be put on thyroid medication because of what they already did to me.  Why didn’t anyone inform me of that before?  Plus I think there is a part of my lung that got fried too. I need my voice to sing in choir at church.  Not planning on doing anything on my neck at least until after Christmas Concert. 

I know this may seem like a long shot, but I’m hoping that what they think is cancer in my neck is inflammation from going to a chiropractor in August.  It really hurt from all the adjustments and I had a bump on the side of my neck.  So I bought some special cream/oil and the bump went away.  

trustNow I have to convince my onc. to redo the MRI at his hospital instead of the other one because I want a second opinion.  My reasons are that they screwed up too many times before for me to believe them.  Remember when I thought I was getting C5 radiated and then they told me it wasn’t what they thought it was?  Remember the two times they said it was in my bone marrow and it wasn’t?  I had to have a bone marrow biopsy to prove them wrong.  And how about that blood test that indicated I was pregnant when I wasn’t.  Oh and how about the time I was told the cancer spread to my lungs and I was going to have to get it drained in 3 weeks if I didn’t go on chemo.  Didn’t happen.  Seasonal allergies.


Sometimes I don’t know how I stay sane.  I don’t know if I’m right or wrong this time.  Time will tell.  My tumour markers from my recent blood test are normal.  What gives?  Counting on some little piggy stem cells to fix me up.

So I booked my ticket to Germany.  Bobo is going with me.  And we are going to see the Christmas Markets again!  Yippee! 

In the meantime, I’m going to the Naturopathic College and getting weekly Vitamin C IV’s because that treatment shrank my tumours before.

So what else is happening besides having to worry that my neck may break? 

I’m coaching a junior boys volleyball team at school.  I also am starting to teach adults with cancer at Art For Cancer Foundation.  I volunteer as a guest artist.  This week I participated in a video for this charity organization.  I’ll link it to my blog so you can see it when it comes out.  Got my hair done in time for my interview.  Finally found a real, organic hair dye from the States called “Hairprint” which I like.  Thanks Stella!  I finally used it.  Don’t look like a granny anymore!


Next I’m venturing in some new interesting territory.  I applied for a scholarship for an Advocacy Training Workshop for The Canadian Breast Cancer Network.  I didn’t think I would be selected because I wrote my application at 3:00 in the morning the day before it was due, but guess what?  They want me!

Not entirely sure what it involves yet.  All I know is that I’m getting free food and a night at the Pantages Hotel in Toronto.  They are going to teach me how to become an effective communicator.  And I think I get to share my views on what its like to be a metastatic cancer patient to a room full of big wigs and perhaps the media too.  Not sure they are going to like what I have to say, but oh well, too bad.  This could be fun.  It’s interesting what life throws at you.  Life is grand.  


Dr. Phobia

4 moodsI’m convinced I have a mental illness.  I call it Doctor Phobia.  It generally happens when I have to go get results and I’m kept waiting and waiting and waiting a long, long time for an appointment.  I am on time.  I am early actually.  But they (referring to my Dr’s) are NEVER on time.  Not my family Dr, not my Oncologist, and not my Radiation guy.  In fact, you know how they say “Patience is a Virtue”.  I do not have any of that when I have to sit in waiting rooms wasting whatever time I have left on this earth.  Besides, I’ve got a MILLION other things I’d rather be doing rather than sit there.

So todays story goes like this.  I had a radiation appointment at 10:30 on Wednesday.  I was suppose to go to a staff meeting at lunchtime to fill the teachers in on our Spring Concert, which, by the way, I am directing.  When I got to my appointment, I asked the secretary if he was on time because I really needed to go somewhere else at 11:00.  She said there was only one person ahead of me.  I’d probably see him by 10:45.  I went downstairs, had a drink, got myself a sandwich.  Went back and waited.  At 11:00 I asked when I’d see him.  She said there were two people ahead of me.  Wondered about that one since I was told at 10:15 there was only one person ahead of me. Now there were two?   Hmmm.  Pondered what I was going to do.  Should I stay or should I go?  If he tells me I’ve got more cancer I wasn’t going to do anything differently anyway.  I was still going to go to Germany.  

So the new me, decided to ditch the doctor’s office.  I knew Maria O’Kane would have been proud of me.  She used to tell me it was fine to be late and cancel if you didn’t want to go!  She had guts!

I wasn’t sure if it was the right decision, but I had things to do and I really didn’t want to stick around while the meter was running at $4.75 per half hour.  So I asked the secretary to get him to phone or email me the results.  She told me to phone the nurse’s hotline and ask for them.  I did.  Three times.  They said they couldn’t do anything for me…I had to phone for my records.  I emailed my Carepath nurse and asked her to get my results for me, but she’s on vacation. 

Then I started stewing about how was I going to find out.  First I don’t want to know the results.  Then I’m obsessed about getting them.  So I phone his secretary and told her to tell him I was going back to Germany next week and I had to know by Monday what vertebraes had cancer in them so I could point them out to my doctor to get more stem cell injections. 

He just phoned. Apparently I’m fine.  Nothing showed up on the MRI.


He sounded really, really surprised.  “How are you feeling?” he kept asking me.  “I feel great”, I told him.  I don’t think he could believe it since the last time I saw him I was yellow, my bone marrow was lite up like a Christmas tree on the MRI and my hemoglobin was so bad I needed a transfusion.  But all is good now.  He said, “Okay, how about we do another MRI in 2 months?”  “Sure”, I answered. 


Italy here I come.  Germany, you too. 

Thanks for all the prayers family and friends. You know who you are!!!


P.S.  I had my Vitamin C I.V. today.  My Naturopathic doctor could not believe my hemoglobin level went from 78 to 126 so quickly without a blood transfusion.  I think she wants a bottle of the stuff I got from Germany to try it on her patients!

I will try to blog my escapades with my friend/colleague Mary when and if we get wi-fi as we are travelling across Italy.  I can’t wait.  Ciao for now!

Oh Crap, Now What?

Dear Life what the hell ru trying to do to me

Well, the results are in and now I really don’t know what to do.

Apparently the tumour in my right lung is 2mm bigger than it was in August.  In 2013, they saw something there.  On Jan. 2015 it was .9 mm.  In August it was 1.9 cm.  Now it’s 2.1 cm.

I don’t see my oncologist until the end of January.  I could always go back on that horrible drug capecitabine that burned my feet so bad I couldn’t walk.  Or I could ask to get hooked up to a picc line for a couple of hours on Taxol (chemo IV) which will make all my hair fall out, including my:

1.  eyelashes (so I will cry if it’s windy)

2.  my eyebrows (I never was that great at drawing them back in)

3.  my nostril hairs (nothing to catch the snot) and

4.  let’s not forget all my pubic hair (free Brazilian wax).

And let me remind you that Taxol was the drug that stopped my heart on my 2nd treatment.   Fancy going to my grave prematurely because of it rather than cancer.

Hmmmm.  Choices, choices.  Risks Vs Benefits.  Wait.  Wait.  I think I’ve made up my mind.

I think I’ll stick with Germany.  I could always go back in the summer and try some curcumin IV if things start to progress again, but frankly, I think I’m pretty stable now.

I just spoke on the phone with my friend who is a nurse.  She said that sometimes when technicians are reading a CT, there may be a shadow making a spot look bigger than it is. That makes me hopeful that my results aren’t that bad.  My CT Scan also mentioned a spot or two on my left lung that was unchanged in this interval.  Sigh.


I had my junior girls volleyball try outs today and I must say, they are looking good.  Had a big fat juicy gluten free burger for dinner to get my hemoglobin levels up.  Tomorrow I’m going to go for my vitamin C IV in the morning (more oxygen) and then I’m going to revisit my salt cave in the afternoon.  Maybe all that salt in my lung will shrink and kill the damn tumour.  I wonder if anyone has studied that?  News Bulletin….Salt Kills Cancer.

I found a giant natural salt cave in, where else?  Germany.  Gotta add this to my bucket list.  You can sleep there overnight!  Check this out.  You even take a little kiddie train through the mountain to get to the salt cave. Who wants to come?


And now some special messages…..

Rumours have it that a Great Big Baby Shower was in the works for me at work.  Thanks guys, you truly are the best, really… (smirk!)

McLandress….loving those pictures of you lapping up the life of luxury in South Africa.  I have a job for you.  Can you get in a jeep and make your way up and down the east/west coast of Africa and every time you make it to another country, log into my blog so I can see it light up?  I’m not asking for much.  You are already over there.  Just don’t drive in the ebola territories.  I don’t want you getting hurt.  And watch out for the animals. (P.S.  I got Kenya, Uganda, and South Africa covered…you’re in charge of getting the rest).

Bobo….if you are reading this post.  I know you don’t like washing dishes until the next morning but really, if you are eating fish for dinner, the stuff REALLY needs to be washed right way or it gets quite SMELLY in the house.  So unless you want me to puke tomorrow morning, please, please, please, wash anything touched by a fish immediately upon consumption.

Sandy….good luck on your operation tomorrow.  Let me know if you want anything…a visit, some grub.  I promise it won’t be gluten free unless you really want it.  My kids won’t eat it, so I don’t expect you too either.  I can do take out too, if you’d rather.  But I don’t know where you live (you may not want me to know where you live).  If you do, just call (but not on my cell phone, it’s dead and still lost in this house somewhere) or email me. Luv you.  Hope you aren’t in the hospital long.  Same day service works best.  I’d get out of there quickly if I were you.

Doug….I’m bringing that cup I won with the bell on it next Thursday….. expecting good service!  My birthday is coming up.  Don’t forget my cupcake!  Ha Ha Ha!

Frick and Frack…no I am not having a baby even if you do want one.  Stop encouraging me.  It ain’t happening despite what the blood test results say.

Life boring without me



Miracles Happen, Right?

IMG_2225Tuesday, January 5

Would you believe that I still have no results pertaining to my lung yet?  I was checking all day, scared of what I might find.

Saw my surgeon.  He is a good guy. Asked me how I was doing.  I’m okay, I told him, but it looks like I have mets in my bone marrow again… although I don’t really believe it because this happened to me before when I came back from my cancer treatment in Germany.

Oh?  Why did you go to Germany?

Now there’s a loaded question.  This is what I told him.  Hmmm…it might be because they almost killed me three times here.  Or maybe it was because the hormone treatments stopped working and they told me they couldn’t do anything for me anymore except manage the pain.  That’s when I decided to high tail it outta here because at least over there they thought they could keep me alive for many years to come.

“Well it looks like Dr Sahgal is happy with your progress,” he said.  “Nothing going on in your spine.  Your bones are growing back and your hardware is good.”


“Yes but my oncologist is not happy with me right now because I’m not doing what he is telling me to”, I replied.

“How did you find out about this place?”, he asked.

“My friend knew someone who went there”, I told him.

Short and sweet and I was out of there with an appointment scheduled for next year.

Before I saw him,  I was talking to the nurse in the room by myself (she was the one that nicknamed me “The Screamer” after my surgery).   I asked her if she would mind looking for my chest CT scan on her computer because it wasn’t appearing on myUHN.  I had results for my pelvis and abdominal scans, but nothing has been reported about my lungs.  I was worried because I have been coughing lately and I was told in August that I had a tumour at the bottom of my right lung.  She checked.

Thank heavens PMH actually did the scan which included the lungs.  That was a relief because I would have gone on some kind of Italian rampage if someone messed that up and I had to go do this again. I really don’t need more radiation considering I’m maxed out.  The nurse went through the slides and said, “I’m no technician or anything but I don’t see anything”. Meanwhile, I was peering over looking for white spots on my lung scans too and didn’t see anything either.

Now wouldn’t that be something if the 1.9mm intelligent doubts, stupid confidencetumour they found in August and spots on the fissure line disappeared just like the thing on my pancreas?

Miracles do happen, right?


That afternoon….I decided to try something new today to alleviate my bronchial asthma problem.  I visited a salt cave.

Several years ago when I experienced this same yearly nagging cough in the fall (rain + leaves = mould), my allergist told me the only way to get rid of it is to go to somewhere hot with a beach and breathe in the salt water air.  Sounds enticing.

Well although I would love to escape right now, it ain’t happening due to the fact that my family dr seems to think I need a blood transfusion and I’m not exactly rich.  Btw, I phoned Germany for some hemoglobin help and it should be on its way.  Plus I stopped taking my German drugs temporarily until my white/red blood counts improve.  There was also some mention about giving me a neupragena (sp?) shot ($3,000-4,000 a pop) on my Sunnybrook blood test results but no one has phoned me about that one yet.  That prescription certainly will give me lots of air mile points for my next trip, as a patient usually needs 3-4 shots to get their counts up. Although I think I would decline that proposed strategy because I’m sure it comes with some interesting side effects which I could do without.  I get to visit my family dr next week.  Can’t wait to discuss the sudden disappearance of “my baby.”

IMG_2211The salt cave was wonderful on my lungs.  I spent the first 1/2 hour coughing up a storm.  I felt rather bad for the gentleman in the cave with me and my older sister.  He certain didn’t get a quiet session because I was coughing up a lung.  Felt really good.  Salt is so healing.  Wish I had know about this before when I suffered with bronchial asthma.  I can’t use a puffer because I’m allergic to ventolin, alupent and its whole medicinal family including it’s cousins.  The cave was a little bit cool so I wore my white alpaca babushka hat which I bought from Germany.  My friend Doug calls me the Snow Queen whenever I where it.  The cold weather lately sure warranted it.


Wednesday, January 6

Still no lung news.  I phoned the CT Scan place….got a recording, what else.  Maybe if I’m in a bad mood, I’ll nag them and call them every 5 minutes tomorrow.  Fill up their answering machine with 20+ calls.

Today I went to The Art For Cancer Foundation and made the  winter scene above.  It was challenging.  I enjoyed painting it, but my back sure could use a rest.  Time for bed.


Below are the benefits of going into a salt cave, should you ever decide to go.  The one I went to was in Mississauga.  There is one near York University, in Niagara Falls, and The Windsor Arms Hotel.  I didn’t realize it increases your hemoglobin level too!  Next time you’re sick or have a respiratory ailment you may want to check it out.  Prices range from $17 (Groupon) to $50 for an hour session depending where you go.


U know Ur in Trouble When the Dr Calls!

So early this morning before I even got out of bed, I got a phone call from my family doctor. Oh.., that can’t be good I thought when I heard her voice. It’s not the secretary.

“Ahhh, I got your blood work back and it looks like you need a blood transfusion,” she said. “However, the problem is that every place where you can get this done is closed today and I don’t even think they can do it for you if you went to emergency.”

“It’s my lucky day,” I thought. I’m not going to emerg today. Happy New Years!

“So how low does your hemoglobin have to be when you need a transfusion?”, I asked.

“The low 80’s,” she answered.

“What am I at?, I questioned her.

“78…. I’m surprised you are still walking.” she responded.

“Well I wasn’t walking last week and I turned yellow, but I’m better now.”

“What do you want to do?”, she asked me.

What can I do? I’m going to party? Everything is closed until Monday and that’s when I’m suppose to have a CT Scan. So I’m going to do nothing right now. I don’t really care anyway. I’ll send Germany an email and tell the dr to send me something. This happened to me before.
“Just don’t get cut until then,” she said, “And get into hospital if you start bleeding for any reason”.

“Even a hemorrhoid?”, I asked.

“Even a hemorrhoid”, she answered.
WTF? Now I’m going to be shitting blood too? I don’t think so!  Holy crap!

By the way, did you happen to get the results of my latest MRI?, I asked her.

“No,” she said.

Well, apparently I have extensive metastatic disease throughout my bone marrow again.

She didn’t say much after that. I think my doctors are more worried than I am.

I had a nice burger yesterday hoping to get my hemoglobin up. I’m eating more now, but I now weigh the same amount I did when I was in university. Bobo says I’m getting pretty skinny. My scale says so too.

The conversation in the car went really well on our way to the market.
Who wants to give me some blood?, I asked.

Aughhhhh! No way, cried my brood in the back.
“I will”, said Bobo, my universal O type donor husband.
“Good”, I said. We just need two needles and a tube and we can attach ourselves to one another! True love!

Happy New Year Folks. I need to drink some blood tonight. I’m turning into Dracula’s wife tonight!
Cheers to 2016!

Held Hostage at Sunnybrook Parking Lot

Wednesday, Dec. 30, 2015

I had one hell of a really awful experience today at Sunnybrook Hospital.  I lost it.  Here is my story.

I went to see my radiation doctor today.  I could see he was really concerned about me and told me I was looking a little bit darker and yellower.  I told him that was nothing.  Last week I was really yellow, but I was feeling better now.  He ordered some urgent blood tests and told me he was going to get in touch with my oncologist because there was evidence of metastatic disease in my bone marrow.  I told him that happened the last time I went to Germany and it wasn’t.  He didn’t look convinced and asked me if I wanted to have a chest x-ray done right now because of my coughing and I told him no because it was getting better.  And besides why bother when I was going to have a CT scan next week anyway.   

stressedSo I went and got my urgent blood work done and was anxious to get out of there because I parked my car at the Rip Off Money Sucking Sunnybrook Parking lot because I’ve been having problems walking lately and couldn’t make the trek from a side street.  Bobo was with me and we started putting in the $14.25 fee into the machine.  It ate $5 and wouldn’t acknowledged that I paid.  I pushed the help call button.  No one answered for a while and I started getting ansy.  I pushed the help button about 10 more times until someone answered.  I told the lady the machine ate my $5.  She said she would send someone to help me.  So what happens.  Nobody comes. 

I push the button again.  I told her no one was coming, I had 2 kids at home alone and I wanted to leave.  She said someone was coming.  Well, no one came for over 15 minutes.  I asked a nearby security guard if he could help me.  He said he could not.  I pushed the button again and again and again.  I think by that time the woman was ignoring me so I gave up.  Cancelled my transaction.  The machine gave me $9.25 back.  Still missing my $5.  Took the card and decided to take it up with the parking lot attendant.  Spoke to the valet parking lot attendents.  They told me they couldn’t help me, but to get into my car and drive to the other attendant who should address the situation.  Well, you know what happens when I get to him?  He wouldn’t let me out of the parking lot.

special kind of stupid

By then my nerves were shot.  I told him that the machine ate my money, here was the rest of the money ($9.25) and I wanted to go home.  He said I couldn’t leave until he spoke to his supervisor.  Well he was on the phone for a VERY long time and there were a lot of angry people in cars behind me who also wanted to leave.


Then I lost it.  I told him to give me the phone, I wanted to talk to his supervisor.  At this point I told her that the stupid machine ate my money at the Odette Center and I paid for my parking and if she didn’t get this guy to open the damn gate I was going to ram my car through it.

The parking attendent took back the phone and the driver behind me gets out of his car to find out what the problem was….at which I yelled back that the people here are stupid idiots and the bloody machine ate my money and these people wouldn’t let me out.

So my husband told me to park the car in the lane so no one could get out and we would walk back to the Odette Centre and wait for that special someone to arrive to open up the machine to get my $5 back to prove we paid the $14.25.

So I turned off the car.  But I couldn’t get out of the car because it was too close to the booth.  I thought I was going to loose my mind.

calm punch ppl in face

Then I told the attendant to phone the police.  Call 911, I was being held hostage in Sunnybrook Parking Lot.  I really wished I had my phone at that time because I would have done it.  Then my husband threw another $5 at the attendant to pay for the rest of the $14.25 and then told him that he just stole another $5 from us and he wanted to charge him with theft when the police arrived.

I think that scared him because he opened the gate. 

But I wasn’t going to let that rest.  This had gotten past the point of sanity.  I was LIVID.  I told him I wanted his name and his supervisors name and phone number because I was going to lodge a complaint.   

I phoned her a little while ago.  She agreed that what happened to me was not acceptable and she would phone me tomorrow morning and find out what went wrong.   

I don’t know who owns these stupid parking lots at the hospital, but I, for one, am tired of being gouged $4.75 every half an hour.  It’s not like terminally ill cancer patients have a choice in the matter of where they can park.  We are stuck for hours waiting for doctors appointments and scans while the meter keeps on ticking.  Someone is getting rich on the behalf of ill people.  It is not right.

And why is it okay to keep people hostage in parking lots after they have paid?   If the machines don’t work, hire human beings WITH BRAINS who can THINK when a problem arises or here is an idea…..make PARKING FREE at hospitals.    

Hey, I know.  Get the drug companies to pay for hospital parking.  They are making over $270,000 per patient in 5 years.  Two patients should cover it.

Another Year Without Christmas Shoes

Well, I survived another Christmas. My husband asks me every year if he needs to run out to buy me Christmas slippers yet. Ha ha. He’s got Christmas Slippers part one and two if you want to watch it. Just don’t ever return them.

Unfortunately I have been sick for about 3-4 weeks. The wet, damp mouldy weather we’ve been having is making me cough up a lung as I’m allergic to mould. Today is the first day it’s actually snowed which I’m hoping is going to help. Either that or I’m going to have to go somewhere hot where there is salt water. I’ve got to find a way to dry up my lungs.

I had a blood test over a week ago and got some really bizarre results. (low wbc and rbc, low hemoglobin, low hemocrit, high LD, high B12 and high ferritin. I’ve been getting cramps in my legs and I cant walk up a flight of stairs without being out of breath and having fast heart beats. The nurse at my Drs office told me to go back and redo the blood tests because my blood coagulated and it probably wasn’t accurate. I asked her to put the requisition into the lab and I would go the next day. I went, the requisition wasn’t there. They called up to the office. The secretary said she didn’t know anything about it and the nurse wasn’t coming in until the afternoon. I left. Got a phone call from the nurse later telling me she forgot to put in the requisition but she would do so now. Too late been there twice. Didn’t feel well enough to go back again. So I don’t know what’s going on with my blood work.

On Christmas Eve I had my family coming over at 4:00. I also had to get my two shots in the stomach by CCAC at 2:40. I figured I had plenty of time to pick up the sushi dinner I ordered at Niji’s and the halibut and chips from Fish Joy. But I was wrong. I spent 2 1/2 hours running from one clinic to another one and back to the first one because they lost my file and none of the nurses could give me the shots. I was so desperate I told them I would shoot them into myself… just tell me how to do it. “I can’t do that,” I was told. I was pissed. Spoke to the supervisor on the phone who told me to return to clinic #1 one because that was the only place that had an experienced nurse who could give me the Zoladex (40 degree angle, 16 gauge large metal needle with a hollowed out inside with a pellet). And you know who the experienced nurse was? The same goof I had in clinic #2 I was trying to avoid because he needed two try’s to get it in me in September. Are you kidding me??? I told him, “Please don’t take this the wrong way, but I think that before Princess Margaret Hospital outsources its patients to get these needles, they should train you to do it first. This is ridiculous. I don’t want to be tortured.

My oncologist is going to get an earful when I see him. I never want to deal with this Nursing (?) company ever again. I’m certain that this clinic was the same bunch of idiots who sent a nurse to my house 5 years ago to change my picc line with bloody gloves!

And I now I find out from a friend of mine that they can give you one three month shot of Zoladex. If my oncologist only wants to see me every 3 months, then why can’t his nurse (who knows what she is doing), give it to me? I told him the problems I had been having trying to get this shot. Why didn’t he suggest the 3 month needle instead or something else that the CCAC is equipped to deal with? WTF?

And now to my next problem. Decided I’d better try and get the results of my MRI from Carepath in case I ended up in the hospital. I was feeling pretty rotten. So rotten that I didn’t make it to rehearsal or Christmas Eve service at my church which I have been singing for over 25 years.

The good news is that the tumours I got zapped at T8, T9 are stable (you could have fooled me because I still wake up in pain like someone shot me in the back every morning). There is also evidence of 2 cysts in my neck at C7, C8. But the bigs news of the day is that the technician wrote that there is metastatic cancer throughout my bone marrow OR I have developed something called myleofibrosis….which when I checked on the internet is some sort of blood cancer/leukaemia brought on from too much radiation. In other words, my spinal cord may have been fried and I have some sort of scar tissue which is causing me not to produce enough red and white blood cells.

Now I have been down this road before when I came back from treatment in Germany and I was told I had cancer throughout my bone marrow and I didn’t. I’m not about to have another bone marrow biopsy to prove them wrong again. I will just wait it out.

I’m betting the technician has never seen little piggy stems cells at work and doesn’t know what to call what he is seeing in my bone marrow. My appointment with the radiation guy is at 3:00 on Wednesday. Maybe I’ll get some real answers then.

Treatment Plan



Treatment Plan

Got very little sleep last night.  Hopefully I will recuperate soon from the jet lag.

Spoke to Dr Sommer and Mariam this morning and started therapy right away.



He basically said my kidneys need to detox, something is wrong with my lymphatic system and nervous system and my blood needs more oxygen.  I saw it was black in the test tube yesterday, so that was no big surprise.  Not enough oxygen.  Need to breathe more!

imageSo today I had a little piggy stem cell shot in the ass to reboot my DNA like a computer, had an artesunate IV (to kill cancer cells…apparently 95% effective in my case…I had this before), and two sessions with a bio photon machine (infra red rays?) to stimulate good cells.

Oddly enough I don’t need colon hydrotherapy this time.  My colon is good.

Felt much better after the ozone therapy…. Breathing better too.

imageHe thinks that the pain I’ve been getting may be my gall bladder, although there is no indications of a problem in any of the tests I’ve had.  Ever since I had the treatment today I’ve been farting like crazy (and I’m not generally a farter).   And these are very loud honking farts! Thank heavens no one has been around me when they erupted! I went on a very long walk to Lichtenthal Abbey.  Farted all the way and still my tummy is doing some fine gurgling noise. Maybe the pain on my right side was built up gas and it’s ready to blow!  I think it may have been the air plane food.  I don’t do well with that.  Aren’t  you glad you aren’t here ? 😄. Mind you, they aren’t the silent deadly farts like the ones my husband dishes out. Mine don’t smell. They are just embarrassing and painstakingly loud.

Anyhow that’s the scoop for today. Ill be posting pics of my long walk when I get out of the shower. Booked a massage at the Caracalla spa on Thursday. That’s going to be nice.


The #1 thing to do in Baden Baden on Trip Advisor was walk through Lichtentaler Allee.  I wanted to go see the rose garden and stumbled upon the Allee.  Here are some of flowers I saw…they have rose and dalia gardens.









I walked to the Lichtental Abbey, which was really very far.  But I was determined to see if I could spot any nuns in there.  My aunt is a nun.








The scenery was so incredibly beautiful.  Several months ago I saw an amazing picture of a road that had the most magnificent trees lining the street (on Pinterest) and I thought WoW, I would love to be there and see that.  A tunnel made of giant trees and its in Germany too.  Well, low and behold, there is  one in Baden-Baden and I was walking through it.  So neat!  I almost quit when I got to the Rose garden because my back was getting sore.  But I forged ahead to the Abbey and was so glad I made it there because I never would have seen those oak trees if I didn’t keep going.  Was well worth it!


















Lake Louise, My Bucket List Place To Go!


A motor coach picked me up at the Rimrock for our drive to Lake Louise.  The scenery was quite beautiful, but I wasn’t able to get a lot of high quality pictures because of the glare from the bus window.

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There is some interesting information about the Spiral Tunnels, if you want to read about it below, or maybe not.  Prime Minister John. A. McDonald asked British Columbia to join the rest of Canada (as the U.S.A wanted B.C. to themselves).  B.C. agreed to join Canada, but only if their province was connected to the rest of Canada via Rail.  MacDonald promised them this, but he had a huge problem when tackling this particular mountain grade where the spiral tunnels reside. Many trains derailed because it was so steep when they first tried to build it.  None of the locomotive engineers wanted that route because they were afraid impending disasters (it was suppose to be a 2 grade and it was a 4).  Then the railway got an idea (from I think Switzerland) to make a kind of figure 8 inside the mountain so that the grade would be gradual.  Can you spot the two places the train comes out of at different levels?  It worked.





Later we went to a lovely lake called Emerald Lake.  It was so pretty and tranquil there.IMG_3088 IMG_3091 IMG_3094 IMG_3096 IMG_3101 IMG_3110 IMG_3116








Our next stop was Kicking Horse Pass.  From what I remember from the train ride, a few men went on a gold mining expedition.  One guy’s horse got away so he went after it from behind…which is apparently a big no no.  The horse reared and kicked him hard right in the chest.  By the way, he was the expeditions doctor.  The rest of the men, thinking he was dead, dug a hole to bury his body.  After they put him in the hold and started burying him, the guy woke up.  Probably scared the hell out of them, wouldn’t you say? And that is the story of why it’s called Kicking Horse Pass!

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Couldn’t believe my eyes when I finally got to Lake Louise…a real piece of heaven on earth.

This was our hotel…The Fairmont Lake Louise.  I swear I got the best room in the house!  What a view!








Took a stroll near the lobby and wondered if that dentist from the States had been here (Cecil’s hunter).



IMG_3236 IMG_3260I was finally here!  The place I oh so wanted to visit on my bucket list!  I was not disappointed.  Decided when I booked this trip that I was going to go to the best restaurant there called the Fairview for dinner…good thing I made reservations in advance because they were fully booked.


I had lunch in the Oak Room and then went walking around the lake.  It was such a beautiful blue colour.  I think it gets that turquoise colour because it is run off water from the glaciers, whereas spring run off gives a different bluey colour.  Hope I got that right.  May be the reverse!


I decided I was going to go outside and explore my new surroundings.

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IMG_3352There were people canoeing on the Lake.  I really wanted to go out and row to the mountains, but I knew that would put way too much strain on my back because my bones were still mushy from the radiation treatment I just had.  I was sad.  I thought about asking someone to row the boat for me, but I didn’t want to be an interloper.  So then I just went for a walk.  I saw a sign that said, “Paradise Look-Out”.  That sounds like a beautiful place to see.  I’ll do that instead.  Where’s Bobo when you need him?


IMG_3403imageLittle did I realize how long and how steep the hill was to the look-out.  I can’t begin to tell you how difficult and how painful it was to get there.  I prayed to Claire’s mother (who told her to go to Lake Louise with her sister) to make it to the look-out because I didn’t think I was going to make it.  It took a very, very long time, but eventually I made it and believe me I needed an oxycocet when I got to the top…but I was glad I reached my destination.

That’s when I wanted to sing the song, “I’m on Top Of The World” by One Republic!








I then walked to the other side of the Lake, to gather some rocks for Bobo (I collect them from wherever I go).  Apparently you can walk up to Six Glaciers from there, but I think it takes several hours to do so and I was not in good enough shape to attempt that and didn’t have enough time (dinner reservation at 6:45). However, I did manage to get pretty far down the other side of the lake when I decided to get back to the hotel for my evening soiree dinner!  Here are some of the scenery from the north side of Lake Louise.

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Finally time for dinner.  I couldn’t wait.  For the first time in my life I was going to buy the best thing I could find on the menu and I wasn’t going to care how much it was going to cost me because I was Finally in Lake Louise (which was on my bucket list) and I was going to make the most of it.


I chose a 3 course meal which consisted of a cold Heirloom Tomato Soup, Lamb with Vegetables, and Raspberry and Dark Belgian Chocolate Sorbet for dessert.  And it was DIVINE.

The soup was utterly fantastic.  The waiter came and decorated my plate with different droplets of oils and pesto, and little herbs with round leaves.  Each section of my plate was filled with scrumptious tasty little morsels of fun!  Then when you picked up a spoonful of soup and put it into your mouth, you got a glorious different taste every time.  It was fabulous. Loved it.

The waiter recommended I get the lamb cooked medium.  I agreed as I figured he knew best and it too was absolutely delicious.  And I know I really shouldn’t have had the dessert as it was full of sugar, but for today, I was just going to forget about feeding the cancer sugar and I just wanted to feel like a normal human begin who could eat whatever they wanted.  And I ate it.  And it was ohhhh soooo goooood!  Went to bed very happy.  Tomorrow, Banff and a crazy helicopter tour I signed up for, then Calgary.

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Welcome To Vancouver





Continued from this (Saturday) morning…..

You won’t believe this.  So I get off the bus and a short homeless man with really big nostrils comes right in my face and begs for money while the bus driver tells him to get lost. The bus driver then  tells me to wait for a taxi under an overcrowded awning with about 50 people in there and then starts yelling at the homeless man again.  I figured it was time to disappear and quickly grabbed my bags and started heading towards where I thought was the general direction of my hotel and lo and behold I then see a naked tattooed guy in a diaper right in front of me.

Welcome to Vancouver!

Eventually made it to my new hotel…The Residence Inn Marriot and got stuck in the elevator.  It refused to take me to my floor. Momentarily had a panic attack when the doors closed and I wasn’t going anywhere.  Eventually someone came on board and told me I had to use my hotel card to operate the elevator. Duh!

Went to the Vancouver Aquarium where I’m happy to report that I this centre does not take wild animals out of their natural habitats.  It’s the only one like that in the world.  Purely a non profit charitable agency too.  All their exhibits are cast offs from other aquariums where the animal/fish were being “let go”.  Most would not be able to survive in the wild or they were too injured.  Some of their animals get nursed back to health and then they are let free in the wild if they get well enough. One of their dolphins, Helen, was injured after she got tangled in some nets.

Anyhow, here are some pics of the Vancouver Aquarium.  I met up with a couple for dinner that I met in Whistler so I was in good company tonight!  Tomorrow it’s suppose to rain again.  We are going on the hop on hop sightseeing bus in the rain.  Weather is suppose to be better on Monday.


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