Oh My Bleeding Brain, Not!

Had a spinal MRI on December 23rd.  So at my appointment on the 28th of December, I was told my cancer in my neck/spine seemed to be stable, but my brain was bleeding.

That made me think…hmmm had that test on December 23rd, if my brain was in fact bleeding, shouldn’t I be dead?  Something is wrong here.

I told my radiation dr that it was probably the hemangioma I had in my brain which was found when I had a stroke.  He felt “better” about that, but he still ordered me an emergency MRI which I had on Monday, 17 days later because he had not seen it on any of my previous scans.

The results?  My brain is not bleeding.  They just noticed my cavernous hemangioma on this prior scan and it hasn’t grown or changed since 2012 when I had my stroke.

Oh, and I don’t have any brain mets either.  Glad to hear that there isn’t anything in my brain but what was always in there in the first place.  However,  I really am not happy I had to have that MRI because the contrast dye they give you goes through the blood-brain barrier and I’m not sure how to get it out!  Who knows what chemicals I’ve got lurking in my bloody brain now?  EEEK!

Thank God they found nothing because I was really concerned they were going to take my drivers license away and I don’t think I could handle that.  I would go nuts.

I was already plotting what I was going to do if I got bad news.  I was going to start a Go Fund Me campaign, get on a plane, and go right back to Germany for a different cancer therapy… probably a month of Curcumin IV (I’m pretty sure that goes through the blood brain barrier).  But I’m stable and don’t have to think about it now.  I’m convinced your prayers helped and you know who you are!

I have decided on thing though.  I don’t ever want to do chemo (taxol) again because I know it will kill me and I don’t think radiation is the answer either as I’ve maxed out.

I am done with that.  The answer is elsewhere.  I can’t do treatment here.  It doesn’t work for me.  Grateful I am doing well.  Big relief.  Sigh.

I don’t see any doctors for 3 months now.  Thank heavens.  I can do without the stress.  No more scanxiety till April.  Hurray!

 

 

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Held Hostage at Sunnybrook Parking Lot

Wednesday, Dec. 30, 2015

I had one hell of a really awful experience today at Sunnybrook Hospital.  I lost it.  Here is my story.

I went to see my radiation doctor today.  I could see he was really concerned about me and told me I was looking a little bit darker and yellower.  I told him that was nothing.  Last week I was really yellow, but I was feeling better now.  He ordered some urgent blood tests and told me he was going to get in touch with my oncologist because there was evidence of metastatic disease in my bone marrow.  I told him that happened the last time I went to Germany and it wasn’t.  He didn’t look convinced and asked me if I wanted to have a chest x-ray done right now because of my coughing and I told him no because it was getting better.  And besides why bother when I was going to have a CT scan next week anyway.   

stressedSo I went and got my urgent blood work done and was anxious to get out of there because I parked my car at the Rip Off Money Sucking Sunnybrook Parking lot because I’ve been having problems walking lately and couldn’t make the trek from a side street.  Bobo was with me and we started putting in the $14.25 fee into the machine.  It ate $5 and wouldn’t acknowledged that I paid.  I pushed the help call button.  No one answered for a while and I started getting ansy.  I pushed the help button about 10 more times until someone answered.  I told the lady the machine ate my $5.  She said she would send someone to help me.  So what happens.  Nobody comes. 

I push the button again.  I told her no one was coming, I had 2 kids at home alone and I wanted to leave.  She said someone was coming.  Well, no one came for over 15 minutes.  I asked a nearby security guard if he could help me.  He said he could not.  I pushed the button again and again and again.  I think by that time the woman was ignoring me so I gave up.  Cancelled my transaction.  The machine gave me $9.25 back.  Still missing my $5.  Took the card and decided to take it up with the parking lot attendant.  Spoke to the valet parking lot attendents.  They told me they couldn’t help me, but to get into my car and drive to the other attendant who should address the situation.  Well, you know what happens when I get to him?  He wouldn’t let me out of the parking lot.

special kind of stupid

By then my nerves were shot.  I told him that the machine ate my money, here was the rest of the money ($9.25) and I wanted to go home.  He said I couldn’t leave until he spoke to his supervisor.  Well he was on the phone for a VERY long time and there were a lot of angry people in cars behind me who also wanted to leave.

Saint....I-Have-My-Limits

Then I lost it.  I told him to give me the phone, I wanted to talk to his supervisor.  At this point I told her that the stupid machine ate my money at the Odette Center and I paid for my parking and if she didn’t get this guy to open the damn gate I was going to ram my car through it.

The parking attendent took back the phone and the driver behind me gets out of his car to find out what the problem was….at which I yelled back that the people here are stupid idiots and the bloody machine ate my money and these people wouldn’t let me out.

So my husband told me to park the car in the lane so no one could get out and we would walk back to the Odette Centre and wait for that special someone to arrive to open up the machine to get my $5 back to prove we paid the $14.25.

So I turned off the car.  But I couldn’t get out of the car because it was too close to the booth.  I thought I was going to loose my mind.

calm punch ppl in face

Then I told the attendant to phone the police.  Call 911, I was being held hostage in Sunnybrook Parking Lot.  I really wished I had my phone at that time because I would have done it.  Then my husband threw another $5 at the attendant to pay for the rest of the $14.25 and then told him that he just stole another $5 from us and he wanted to charge him with theft when the police arrived.

I think that scared him because he opened the gate. 

But I wasn’t going to let that rest.  This had gotten past the point of sanity.  I was LIVID.  I told him I wanted his name and his supervisors name and phone number because I was going to lodge a complaint.   

I phoned her a little while ago.  She agreed that what happened to me was not acceptable and she would phone me tomorrow morning and find out what went wrong.   

I don’t know who owns these stupid parking lots at the hospital, but I, for one, am tired of being gouged $4.75 every half an hour.  It’s not like terminally ill cancer patients have a choice in the matter of where they can park.  We are stuck for hours waiting for doctors appointments and scans while the meter keeps on ticking.  Someone is getting rich on the behalf of ill people.  It is not right.

And why is it okay to keep people hostage in parking lots after they have paid?   If the machines don’t work, hire human beings WITH BRAINS who can THINK when a problem arises or here is an idea…..make PARKING FREE at hospitals.    

Hey, I know.  Get the drug companies to pay for hospital parking.  They are making over $270,000 per patient in 5 years.  Two patients should cover it.