Looks Like I May Not Need to Fry My Neck After All

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My test results are in and it looks like I’m not going to have to fry my neck after all.

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I told Dr Sommer my radiologist wanted to do 2 high dose treatments on my neck and showed him my test results.  He read the report and said they do not know what’s in there.  Just like what my friend Karin (who is a nurse) said.

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He said my intestines are toxic and if we get that under control the inflammation/problem in my neck should disappear and so should the problems I’m having with my eyes.  It’s all connected to the intestines.

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I asked if it was my cavities in my teeth that was causing the toxicity.  He said no it was something I’m eating.  Later Bobo put two and two together (I essentially eat only organic food at home) and came up with the fact that I’ve been eating smoked salmon every week and that might be the cause.  Other than that, maybe I should get our water tested when I get home.  I need to figure this out.

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So today I had 4 shots in my butt to help my liver, spleen, gallbladder, intestines and brain.  Then I had to drink something akin to Alka Seltzer to soften my stool for my first of four colon hydrotherapy cleanses.   Once again I’m full of (toxic) shit!

Trying to con Paul into having one too on Friday.  Let u know how that goes!

Btw, Santas coming to town in a hot air balloon on December 6!

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God Help Me

Friday, November 4, 2016

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Today I am out of sorts.  This generally happens to me when I have to go see my oncologist and today was no different.

Bobo came to me.  Together we try to figure out the insanity that transpires during my appointments.  My 9:45 appointment began at 11:15.

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He, my oncologist, sent me his newest guppy to figure out what I was doing.  She was a real b#*@! and I didn’t like her.  I actually argued with her and I’m proud of myself for sticking up for myself. She was telling me I’m fine and my oncologist wouldn’t have to see me for 6 months.

“Hang on,” I said.   “I have a report saying I have cancer in my neck which should be radiated in a clinical trial and some new spots in my pelvis from L2-S3.   How is it I am fine?”  I think they are trying to get rid of me.

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She also said that they wouldn’t be doing my monthly injections at the hospital any more.  Go to CCAC.  “Well that’s nice,” I responded.  “Find me someone who knows how to inject the needle in Scarborough and I will go.  And good luck with that….I don’t enjoy being tortured.”  Asked her who I go to to complain about this.  I think she was shocked I said this.  Too bad.  I tired of explaining my life to new people every time to go there.

I told her I wanted to see my oncologist because I wanted a second opinion of an MRI from another hospital.    She told me he was busy.  I insisted.  She left us for a bit.

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So in he waltzed, late, with a parade of young hopeful oncologists (3 from Brazil, 1 from some other country).  “Oh this is going to be fun”, I thought.  “I have an audience, students…my specialty.”   I told him the reason why I wanted another MRI at a different hospital was that I wasn’t convinced about what I was told about my neck.  After all, they messed up before on a tumour on C5 and then told me it wasn’t what they thought it was during the pre-op. radiation treatment.  I went to a chiropractor and had my neck painfully adjusted and maybe it’s just inflammation.  He downplayed the previous C5 neck error.  I must say I had the students hooked though.  They laughed when I told them I wasn’t going to be zapped for nothing.

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My oncologist told me that the hospital MRI machines were different and what specific part my radiation dr was looking at may be different then theirs and what was the point in doing it again?   He said if I wasn’t symptomatic (feeling pain), so it didn’t matter if I decided not to do anything right now.  He then told me that my cancer was slow growing and even if I did nothing (which apparently the treatment in Germany counts as nothing to him), it would be slow.  He is in complete denial that my “alternative” treatment is slowing the progression of the disease.  Grrrr.

I find his explanation of my condition fascinating as I am young, pre-menopausal (spreads faster than in older patients), and was diagnosed with a INVASIVE DCIS breast cancer.  Invasive.  Hmmm.  What does this word mean?  The Oxford Dictionary describes it as Tending to spread VERY QUICKLY and undesirably or harmfully.  For example:  ‘patients suffering from invasive cancer’.

Enough of the bullshit.  Bobo said my onc is having difficulty accepting the truth that the treatment I’m doing in Germany works.

So essentially the appointment concluded with…. no MRI or monthly shots at PMH.   And he doesn’t want to see me for quite a long time.  He is going to Mexico for a few weeks (and not to check out cancer treatments in Tijuana because he doesn’t believe in that “stuff”) and I’m not scheduled to see him until Feb.  But when I got home my appointment was emailed to me and now I’m not scheduled to see him until March.  That’s 5 months away. That’s a long time.  

On a positive note…no appointment anxiety.  That could be a good thing.  Right?

So how do I feel about this?  I feel like trash.  Taken out to the curbside.  No one is monitoring my monthly blood work.  Some gumba in Scarborough that doesn’t know how to stab me in the stomach properly to give me my 16 guage needle will be administering it for 5 months.  I have no idea what is really going on in my body (neck, lungs and lower back) and if I should be alarmed.  One guy says I’m fine.  The other one wants to zap me.  I think I’m going to get Bobo trained to give me the shot in the stomach if this CCAC thing doesn’t work out.  Help!

At this point, I just want to run to Germany.  

I booked one night in a castle on one of the week-ends I’m there!  

The way I see it.  You Gotta have Fun while you still have a neck and can walk.

God help me.  I’m really feeling tired of dealing with this crappy disease.

Day 7 Venice: Gondola Ride, Here We Come!

Venice Day 7
imageYou have to check out these locks on our apartment doors. Am I missing something or is the security measures a little bit excessive?  Seven locks?

Lord help us if there is a fire in this place. I might as well jump out a window before I could figure out how to get out of this place with all these locks.

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I cut my hair before I went on this trip. This is what happens after you wash it.

Just so you know. I look like a troll.

I do not give anyone premission to take this or any other photo or written work on my blog to use for there own purposes.  I hereby claim my own copyright.

All I need is for this photo to go viral.  (Well…at least I could make some money off of it so I could travel some more and pay for my cancer treatment!).  That would be good.
imageMary booked us first class tickets on a train to Venice. We got peanuts and an orange juice for the extra bucks.

 

imageWe took a sort of hop on hop off water boat and started exploring. Our first stop was called Ca’d’Oro. The gallery was small and had the most beautiful balcony. I got some great pictures there. The light reflecting from the floor was really neat. I think Mary should get these pics of her framed!

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I think I want to take a photography course. Loved the way the light shone on the floor in all those cool patterns.

One of my favourite paintings at this place.

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We travelled on the Grand Canal again and got off at Santa Maria Della Salute (mother Mary’s Church). Salute means health. I was in the right place to say a few prayers for me, some sick friends and those who passed. The church was built in honour of the Virgin Mary for casting out the plague in Venice.

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Next on my list for sights to visit was the Punta Della Dogana. I really wanted to get this next shot for my post, but atlas it was not meant to be. Apparently the flying donkey with his head stuck in the hole of wall can only be seen after this Sunday. I’ll be in Germany by then. Disappointed I didn’t get to see the real McCoy,  but what can you do?  You must go on, despite disappointments. So for your viewing pleasure, here is a picture out of the book (Fodors 25 Best – Venice) which Bobo gave me before we left. Thank heavens for the book or I wouldn’t have found my way around Venice and I wouldn’t have known about the jackass without it. And for you, my loyal readers, here’s a pic of it from the travel book.

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We made our way to the Basilica di San Marco where we were swarmed by pigeons!  I laughed.  If my cousin Bru was here with me she would be running in the other direction screaming her head off.  After watching a scary Alfred Hitchcock movie about birds, she has a thing about black birds.

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Time to eat! Decided it would be a good idea to try some Seafood! Yum!  A white wine with a seafood platter for two and an order of Rigatoni with Gorgonzola Sauce (Mary’s new favourite cheese).

Simply Delicious!!!

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After that, I was in a rush  to fulfil a lifelong dream of mine… to take a gondola ride in Venice.
It was a rip off, but I was on a quest and I was determined.
We were the last gondola out because the weather was starting to change.

Alex, our driver, was a bit Standoffish, I think.  He wanted $80 euros ($120 cdn) for 1/2 hour.  For an extra $60, he would provide us with a commentary about the buildings (like where Galileo lived).

Forget that.  Already saw where Michelangelo lived and it wasn’t that exciting.  Galileo would have to be there alive, in person, for me to really want to pay an extra $60 bucks for it.

The sea was getting choppy and it was getting really windy.  It was hard for him to maneuvere the boat and we had to lean sideways to go through a narrow bridge.  Out gondola was elaborate (black and gold) and was used for special occasions…like people getting married.  A sunset gondola ride would have been lovely, but we had to get back on our train to get to our Florence apartment.

Wait I forgot to eat a gelato today.

It’s 9:00 p.m. Not too late to get one!  That’s on my bucket list too…one gelato every day while I’m in Italy!

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Cheers from Venice everyone!