Results are In

Thursday April 28

imageIt’s rainy again. I’m back at the clinic. This morning I had my lampadina. Feeling great. Lots of energy.

WisteriaMary and I spent the evening at the Caracalla Spa. It was way less crowded than in the day time. I’ve been trying to convince her to go to Friederichbach spa with me (only women on Thursday), but I’m not sure she is going for it!  No clothes allowed.

imageThis morning I had 2 shots in the butt (stem cells) and ozone therapy. My vein collapsed 1/2 way through the ozone treatment and Mariann asked me if I was Catholic. I said, “Why? Are you going to give me my last rites?  She said, “No, if you are Jehovahs Witness we can’t restart the IV in the other arm”.

imageSo we had to call Dr Sommer to try to get another IV deep in a vein in my other arm (which I’m not really suppose to use because I have no lymph nodes there due to a mastectomy). It worked. I’m now having Vitamin B17 (amygdalin) and C therapy.

imageI told NDr Christina I had a vegan chocolate bar for her, but only if she got the IV in my arm right the first time. She was unhappy my vein collapsed. She really wanted the chocolate bar (luckily I had 2 chocolate bars in my purse, one for her and one for Dr Sommer too).

imageAt least I didn’t have to get stabbed nine times in one day like last week. The big bruise on my hand has gone away after using some type of wound healing cream called Traumeel. It works so well, I bought it at a pharmacy so I could use it at home.

imageSo I got my test results on Tuesday. Everything appears good at this time. My energy is up. My brain/hypothalamus is now working, however my pituitary gland is still struggling a bit. The cancer is dormant. My immune system is operating at 80%. And I need to detox (it’s at 38%, down from 45% when I came). So I’m getting some medicine to take home with me to help me with that, plus injections because my lymph node system is not up to snuff either.  Otherwise, I think I’m doing really well.

imageDon’t think I’m going to tell my oncologist I’m here in Germany again. I don’t need the added stress. Dr Sommer told me it would not be necessary to get tested at home for another 6-9 months. That’s good enough for me.

image image imageI’m suppose to be arriving in Canada on Saturday night, but apparently some of the airport workers are on strike yesterday and today. Good thing I have insurance! They may be footing the bill for food and accommodations if I need to stay longer!
imageAfter my treatment tomorrow morning, Mary is making me breakfast and then we are heading to Frankfurt.  I went to pick up the rental car on the side of the road near a castle where our apartment landlord said it was free.  Well guess what?  It wasn’t free. I got not one but two parking tickets.  Mary said it was too bad I have to come back, otherwise we could just not pay them!

On the bright side, at least they didn’t tow us.  I would have had to phone up the rental car company and tell them it was stolen and a darn good thing I paid $600 extra for car insurance!

Finally got to see the Baden Baden Roman Ruins yesterday.  See pics below.  This is where Roman Soldiers set up shop to recuperate in the healing thermal waters.

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Look Who’s Driving the Bus

Look Who’s Driving the Bus

  Dear Friends, I’ve been busy doing all sorts of fun things lately and haven’t had much time to write. Tried to do a quick update, but had to relearn to put pictures in my posts because they changed the … Continue reading

Another Year Without Christmas Shoes

Well, I survived another Christmas. My husband asks me every year if he needs to run out to buy me Christmas slippers yet. Ha ha. He’s got Christmas Slippers part one and two if you want to watch it. Just don’t ever return them.

Unfortunately I have been sick for about 3-4 weeks. The wet, damp mouldy weather we’ve been having is making me cough up a lung as I’m allergic to mould. Today is the first day it’s actually snowed which I’m hoping is going to help. Either that or I’m going to have to go somewhere hot where there is salt water. I’ve got to find a way to dry up my lungs.

I had a blood test over a week ago and got some really bizarre results. (low wbc and rbc, low hemoglobin, low hemocrit, high LD, high B12 and high ferritin. I’ve been getting cramps in my legs and I cant walk up a flight of stairs without being out of breath and having fast heart beats. The nurse at my Drs office told me to go back and redo the blood tests because my blood coagulated and it probably wasn’t accurate. I asked her to put the requisition into the lab and I would go the next day. I went, the requisition wasn’t there. They called up to the office. The secretary said she didn’t know anything about it and the nurse wasn’t coming in until the afternoon. I left. Got a phone call from the nurse later telling me she forgot to put in the requisition but she would do so now. Too late been there twice. Didn’t feel well enough to go back again. So I don’t know what’s going on with my blood work.

On Christmas Eve I had my family coming over at 4:00. I also had to get my two shots in the stomach by CCAC at 2:40. I figured I had plenty of time to pick up the sushi dinner I ordered at Niji’s and the halibut and chips from Fish Joy. But I was wrong. I spent 2 1/2 hours running from one clinic to another one and back to the first one because they lost my file and none of the nurses could give me the shots. I was so desperate I told them I would shoot them into myself… just tell me how to do it. “I can’t do that,” I was told. I was pissed. Spoke to the supervisor on the phone who told me to return to clinic #1 one because that was the only place that had an experienced nurse who could give me the Zoladex (40 degree angle, 16 gauge large metal needle with a hollowed out inside with a pellet). And you know who the experienced nurse was? The same goof I had in clinic #2 I was trying to avoid because he needed two try’s to get it in me in September. Are you kidding me??? I told him, “Please don’t take this the wrong way, but I think that before Princess Margaret Hospital outsources its patients to get these needles, they should train you to do it first. This is ridiculous. I don’t want to be tortured.

My oncologist is going to get an earful when I see him. I never want to deal with this Nursing (?) company ever again. I’m certain that this clinic was the same bunch of idiots who sent a nurse to my house 5 years ago to change my picc line with bloody gloves!

And I now I find out from a friend of mine that they can give you one three month shot of Zoladex. If my oncologist only wants to see me every 3 months, then why can’t his nurse (who knows what she is doing), give it to me? I told him the problems I had been having trying to get this shot. Why didn’t he suggest the 3 month needle instead or something else that the CCAC is equipped to deal with? WTF?

And now to my next problem. Decided I’d better try and get the results of my MRI from Carepath in case I ended up in the hospital. I was feeling pretty rotten. So rotten that I didn’t make it to rehearsal or Christmas Eve service at my church which I have been singing for over 25 years.

The good news is that the tumours I got zapped at T8, T9 are stable (you could have fooled me because I still wake up in pain like someone shot me in the back every morning). There is also evidence of 2 cysts in my neck at C7, C8. But the bigs news of the day is that the technician wrote that there is metastatic cancer throughout my bone marrow OR I have developed something called myleofibrosis….which when I checked on the internet is some sort of blood cancer/leukaemia brought on from too much radiation. In other words, my spinal cord may have been fried and I have some sort of scar tissue which is causing me not to produce enough red and white blood cells.

Now I have been down this road before when I came back from treatment in Germany and I was told I had cancer throughout my bone marrow and I didn’t. I’m not about to have another bone marrow biopsy to prove them wrong again. I will just wait it out.

I’m betting the technician has never seen little piggy stems cells at work and doesn’t know what to call what he is seeing in my bone marrow. My appointment with the radiation guy is at 3:00 on Wednesday. Maybe I’ll get some real answers then.

Heigh Ho, Heigh Ho, It’s Off To Emergency We Go

Friday, December 4, 2015

Sunrise PicHaven’t been blogging because I have been insanely busy lately.  All is good.  Coached boys volleyball team.  Went to a workshop at Art For Cancer Foundation and painted this sunrise picture.

WellspringGot a ticket on Tuesday near Sunnybrook (they changed the no parking sign to no stopping which I didn’t notice).  I’m contesting it.  Hoping the judge will be nice and reduce the fine at least.  I went to a free cooking course at Wellspring and didn’t want to pay the $24 parking fee for 2 1/2 hours.  Unfortunately that wasn’t my only problem that day.  The cooking course was pretty much all raw vegetarian and a bit of cheese.  I’m lactose intolerant (makes me cough up phlegm) and my German dr told me my stomach intestines were inflamed and I should only eat cooked veggies.  Boy was he right.   My tummy hurt for a couple of days.  Lost a couple of pounds too.  Because I wasn’t eating much I figured I needed some nutrients so I asked my daughter to make me a veggie juice on Thursday night and then I felt really horrible after that.  Didn’t make it to my cancer support group meeting because I felt so ill.

At 3:45 in the morning, my dear friend who is staying with me thought she was having a heart attack.  She came to the right place.  Pulled out my heart monitor.  Everything was high (systolic, blood pressure, pulse…mentally recorded time and rates).  Gave her as aspirin (remember the time).  Phoned tele-health….was not happy that they have a ten minute recording about getting your stupid health card before you even get a chance to talk to anyone.  Got dressed.  Out the door and into the car with cell phone and ill friend in tow.  Destination…Sunnybrook, Trauma and Heart Attack Central.  I decided to take her there because I was afraid that if I called an ambulance that they would take her to Scarborough General (30 seconds away from my house), a fate worse than death, and I valued her life. 

Why not Scarborough General?   I dunno.  Maybe it’s because of the time I stayed there overnight and they didn’t bother giving me a nurse after surgery.  Maybe it’s because of the time I had heart problems and I arrived at the ER and there was nobody there and I waited 15  minutes for a triage nurse to appear at her post…that’s when I got back into the car and went to Mt Sinai.  Maybe it’s because I had a mammogram there 13 years ago and no one bothered phoning me to tell me there was something suspicious there.  Or maybe it was because the last time I went there ER Doctor told me that the next time I had an emergency, not to come here because they didn’t know what to do with me.   Anyhow, I think you see my point. 

imageDid you know that at 3:55 a.m. in the morning you can go 100 mph on Lawrence and get all but one green light? Meanwhile, my friend was talking to good ole tele-health and answering questions.  I knew, as I was driving, that she hit 5/6 red flags for a heart attack (chest pain, pain in back, shortness of breath, nausea, and sweating).   That nurse was SLOW!  Holy cow.  By the way she essentially told me to shut up and to let the patient answer the questions.

imageBy the time the tele-heath nurse finished evaluating her…..”You need an ambulance”…. she tells us after she has painstakingly punched into the computer all of my friends responses,  I was less than 4 minutes away from Sunnybrook.  So I told her just to send the information to them as we were nearby.   She told me to drive cautiously en route.  Too late for that, chickie!

Now, you would think (after watching ER and Greys anatomy shows on TV) that someone would be greeting us at the ER door, but you would be wrong.  It seems to me that they don’t care as much if you’re having heart attack symptoms than if you are having a stroke (in which case you have a 4 hour timeline to get some injection in you to break up the clot or you could possibly face permanent damage and they could face a law suit).  Two people ahead of us.  Triaged fairly quickly, then registered by 4:10.  Told my friend we were in it for the long haul because they would need to get her blood work done and wait 4-6 hrs later to check the troponin levels to see if in fact she had a heart attack.  She called a replacement for work.  Guess what time she got the blood work done?   7:10.  Just in time for a shift change at 7:30. 

imageWe met an interesting man in the second ER waiting room.  He shared his medical problems with us.   I was amused as he kept asking us for our opinions on his condition (he was having problems with his heart, he drinks and smokes, and his friend wouldn’t let him buy the heart drugs his doctor prescribed him). 

imageI could tell my friend was getting exasperated by him and wanted to thump him in the head, particularly when he started discussing his hemorrhoid problems.  Oh how I wish my husband was with us!  I could just imagine how that conversation would have ended up.  Sometimes you get some interesting entertainment whilst in the waiting room.  My friend emailed me and told me he was missing a few screws upstairs.

Shortly thereafter, he was called for a review with a doctor.  It lasted less than 4 minutes and he was discharged. I don’t think he even got a prescription for his hemorrhoids!  He was told to go see his family doctor.  It was just after 8:30.

My friend got her first set of blood work back.  Normal, thank heavens.  But we still had to wait for the other one (troponin) and they wanted to do a chest X-ray.  By 11:00, my friend was really tired of being there.  I told her, “Don’t worry, they have to get you out of here in 8 hours from the time you arrived or they have to admit you.  Anything more than 8 hours also requires an extra billing to OHIP who requires an explanation as to why you are still there waiting for a diagnosis.   Sure enough, a resident quickly told her at 12:00 that she did not in fact have a heart attack or a pulmonary embolism and she was free to go.  Right on time.  “That’s what my friend told me,” she answered. 

734376_591741964188594_1624691723_nDrove my friend to her worried sister.  She was going to take the bus, a very long 3 hour bus ride and her back was still hurting her so off we went in my car.  I spent the night with them.  We had delicious Thai food for dinner.   It was very nice spending some quality time with the two of them.  Their apartment is so cool.  They have giraffes in their living room with Santa hats on all their heads!  She should be an interior decorator.  I’d hire her! 

Drove home the next morning.  Will try to catch up on sleep tonight.

Tuesday, December 8, 2015

sidewalk fall leavesHi.  Not feeling so great.  My wacky cough is back.  I usually get this in the fall because I’m allergic to mold….too many dead leaves on the ground.  I don’t do well when it rains either.  Get headaches and feel like total crap. 

Also was a bad girl because I ate cheese last week.  Not a good idea when you are lactose intolerent.  I don’t fart.  I just cough up a lung. 

Waiting for the snow to come so I can feel better.  Either that or I’m going to have to drive somewhere hot with salt water to dry out my lungs (that’s what my allergist told me years ago). 


Wonder if a sauna would help.  Sigh…..

Wednesday, Dec. 9

Currently hooked up to vitamin C I.V.  Hopefully will start feeling better soon.  Blood pressure was pretty low when I started.  Had my chest/cough checked.  It’s clear, so it’s not bronchitis.  Damn cheese!  Damn mouldy leaves.   My cousin says she loves it when I swear in my blogs!

Frankenmuth, Michigan

September 12, 2015

Sorry I haven’t been blogging all summer, but it’s hard to do when you have kids! Life has been a bit of a roller coaster ride.

Road tripI had planned on going to New York in July/August and on a driving trip to PEI and Cape Breton, but my plans were kiboshed because of 2 new tumours growing on T8 and T9. I knew something was up in June…just didn’t feel right. There is also something going on in my lung/diaphram and pancreas but I’m not sure what it is because I haven’t seen my oncologist to find out what he thinks….that’s a whole other story.

Wasn’t sure how I was going to make out doing the drive by myself. So I took the kids to Science North in Sudbury (4 hours away) to see how I would fair. Did okay, but sure was glad to get back and get on my biomat. My back really hurt.

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IMG_0266IMG_0279Then I underwent a week of radiation.  Bobo had the last week in August off, so we went to a niffty little German Bavarian Christmas town in the States called “Frankenmuth”. It houses the largest Christmas Store in the world….the size of a football field. And it really is that big.

IMG_0283Of course, we had to go there and check it out. Here are some of the pics! If you get a chance, you really must drive out there and check this place out, especially if you love Christmas! Took us about 4 1/2 hours to get there (via Sarnia border crossing).  Oh, and if you have kids there are 2 indoor water parks (The Bavarian Inn for smaller children and The Zehnders for older kids) which I am sure they will love.

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Now if water parks and Christmas Stores aren’t your thing, the little town is quite adorable and you can go for long picturesque walks and look around, shop at the quaint little boutiques or even go on an old fashion boat.  Something for everyone…even your cats and dogs.

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IMG_0412And if you are tired, and need a little push around the Christmas Store, they even have a wheelchair available to pick up!  Could have used a self-serve motorized one for myself though; Frack decided to take me for a quick ride, here, there, and everywhere!  He got a kick wheeling me around!

Lung X-Ray Results

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I went to see my oncologist yesterday for my 2 shots in the stomach and my much anticipated x-ray of my lungs.

Last month when I ended up in the ER with chest pains/breathing problems, I had a CT scan.  The technician reported that there was “probable evidence” of metastatic breast cancer invading my lungs.  My oncologist said that within 3 weeks it would most likely spread and I would probably have to have my lungs drained of fluid.  My family doctor,  foreshadowing  my steady demise, told me she thought I should get back on chemo. (like my oncologist said I should).  My benefits team of doctors also warned me that there were mets in my lungs and told me to get back on Tamoxifen to see if that would make a difference.  Meanwhile, I was sitting tight thinking that they were all wackos (my husband concurred).  I mean, I know that they are concerned that I’m not doing conventional treatment, but boy they really jump on the cancer bandwagon when something looks different on a scan.  I mean, it can’t be something ordinary.  It has to be cancer!  How about allergies or some other explanation?  Nope.  Cancer.  Three against one.

IMG_0657IMG_0656I felt better after seeing my radiation oncologist last week.  My spirits were buoyed when he told me there was no evidence of mets progression in my spine. It now became three against two because he was impressed that I was doing so well and he wanted to know what I was doing in Germany.  I told my family doctor that it didn’t make sense that my spine was fine and all of the sudden there was metastasis growing in my lungs.  She said cancer can go anywhere it wants.  That’s fine and dandy lady, but isn’t it probable that it would be advancing in my spine too?  I decided my family doctor is really not too bright.  I mean, I didn’t go to medical school or anything like that, but really?  This whole thing seriously did not make any sense to me.  And besides, I’m still shaking my head at her last stupid comment when I had an ear infection (in February) and she told me I should get my face x-rayed because the cancer may have spread to some bone near my ear.  My oncologist practically had a heart attack suppressing a burst of laughter when I told him that one!  I could see tears in his eyes and even he told me that maybe it was time to a get a new family doctor because cancer doesn’t work that way.


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IMG_0655 IMG_0654 IMG_0653So as I was waiting to see my oncologist for my x-ray results, I got an email from myUHN account (a new program which informs you when your test results are in).  Bonus!  Now I get to know what’s going on before he even comes into the room.  Scanned it quickly.

The cardiac pericardial silhouette is normal. There is a small nodular opacity in the right lower lung better visualized in the chest CT.There is mild linear fibrosis in the lung apices. (that’s scarring from radiation)

There is no other significant abnormality seen in the lungs.

There is no significant abnormality seen in the mediastinum.

There is no pleural effusion.

SMIRK!  So there is nothing really going on my lungs.  “Oh, this is going to be a good appointment,” I chuckled to myself.

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Now, do you think he would admit that I was stable and that whatever I was doing in Germany was working for me?  Nope!  He just picked up the box of zolada (shot that stops my periods/estrogen which I’ve been on for years and I still had progression while on it) and said, “Oh this must be working for you and you must have a really slow growing cancer”.  “Yeah, sure,” I thought.  “I’ve been diagnosed with a very aggressive form of DCIS and it magically has disappeared.  I haven’t been on conventional medication for a good 1 1/2 years and I’m doing okay!   A big part of me wanted to tell him that the snake venom was doing the trick, but I kept my big mouth shut.  However, one day it’s going to come out!  And I can’t wait to see his face when I tell him that!  I will need some sort of video recording device to capture the moment.  And I want my husband there so we can laugh about it for many years to come.  

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And then my onc. burst my little bubble some more by saying that this test wasn’t as good as the CT Scan (which shows more).  Hang on there bud.  Wasn’t I told that I suppose to be chock full of mets in 3 weeks and shouldn’t I be having my lung drained by now?  

IMG_0649“So what do you want to do now?” he asked me.  “Nothing”, I told him.  I’m having some issues with my heart which I need to address.  Right now, I’m staying off everything.  He told me the tamoxifen may have contributed to the fluid build up around my heart.  I really don’t think it was that…I’m quite certain it’s from the overdose of stuff that naturopathic dr gave me a week before the heart problems started.  I’m having an echo done on Monday and I’ll be sporting a 24 hour holter monitor on Monday.  I investigated everything I was taking (vitamins/supplements) and have come to the conclusion that everything I was on was interacting with each other.  So now I’m off pretty much everything until things settle down. 

IMG_0648I feel much better today and my new shipment of injections/drugs have arrived from Germany.  My oncologist nurse told me I lost too much weight (10 pounds due to gluten-free, sugar free, dairy free crappy diet) and there was not much stomach fat to stab me with the needles.  I told her that I like seeing my toes when I look down.  She shook her head at me and told me to be careful, cancer patients need all the nutrients they can get from food.  

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So I went to an All You Can Eat Buffet after that appointment to celebrate!  Food, here I come!

I started juicing more at home too.  Still can’t walk up a flight of stairs without huffing and puffing…will know what my heart’s ejection fraction is some time next week.  I know it’s not normal, but I hope it rebounds for the better soon… I’ve got places to go and people to see!

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P.S.  Frick came in 4th place for Javelin throwing in the East Toronto Finals at Birchmount Stadium and will be going on to the City Finals on Tuesday.  That girl’s got a good throwing arm.

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I met someone at the Naturopathic clinic who has breast cancer and was basically told she was incurable and was going to die.  Like me, she is not doing conventional treatment.  She went to Tijuana and The Issel’s Foundation ($70,000) and managed to shrink her tumour from about 8 cm to  0.7 cm.  However, her disease is now progressing.  Told her about Germany.  Guess where she is today?  Yup.  Flew to Baden-Baden and begins treatment Monday.  I really hope Dr. Sommer can help her as her oncologist here is the same as mine.

Wouldn’t that be something?  More arsenal for alternative treatment in Germany when two of us are sporting good results, don’t you think?.  Wonder if I can find and ship some more of his patients to Germany.

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By the way, I think I should give you his address in case any of you are in a pickle and need alternative treatment.

Cell Vital Clinic (cellvital@freenet.de  (or) info@cellvital.net)  Telephone:  011 49 7221 39 19 49

Dr. Daniel Sommer

Lange Strasse  72

Baden-Baden, Germany

Web-Site:  www.cellvital.net

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Todays paintings were created by our grade 1 students (with the help of the grades 7/8’s because they were having trouble cutting out their fish with scissors) in the style of Eric Carle.  I have tremendous respect for grade 1 teachers because I think it’s one of the hardest grades to teach.

  

I Couldn’t Make This Up If I Tried

IMG_0275I’m having a weird week.  Hmmm where do I start?

IMG_0279Took something called Jut-U-SinR8 recommended by a the quack in Etobicoke and ended up in the ER with a convict, 5 security guards, and a room full of screaming kids and other sick people.  This is what happens when you live in Scarborough.  Decided not to stay.

 

IMG_0276IMG_0373Found a cute paramedic around the corner, showed him my heart monitor results and asked him if it was safe to get my husband to drive me to Mount Sinai (because the last time I came here with heart trouble they told me not to do that again)  or should I be enlisting in his ambulance services?  He said, “Oh, that is not good…. but I think your husband has enough time to get you there”.  Good enough for me, I thanked him and escaped.  Luckily, my racing heart startied to show signs of improvement and I told my husband, “What the heck, just take me home (where  left the kids alone).

IMG_0393IMG_0363The next day I went back to the quack and told him I didn’t have heart problems before I came here and now I was leaving with two.   All I got was 1/2 my money back.  Asshole.

 

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IMG_0466IMG_0461Went to the Naturopathic Clinic today for my Vitamin C infusion and was rejected due to my recent heart problems.  Brought out my meds from Germany and all my supplements and guess what I learned today?

 I’m taking snake venom!

How do you like them apples?

IMG_0468IMG_0459I’m currently waiting for my results on my MRI from Monday.  That was the best appt ever.  No one was scheduled for any MRI’s because they were on stand by for Victoria Day Week-end Trauma patients.  There weren’t any, so I went right in and was finished in 45 minutes.  Bonus.

 

IMG_0456IMG_0474So if I don’t have any increases in existing bone tumours, I would like to think the snake venom is working and whatever they saw in my lungs isn’t anything to be concerned about.  If, however, I have some new spots on any of my bones, I am going to have to come up with a different game plan.  Hopefully the spots they zapped in January with radiation are dead/stable.

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Snake venom doesn’t taste too bad, you know.  I mean, if you think about it, I’ve been given mustard gas (amongst other chemical warfare, I’m sure), thalidamide, and rat poison (and those are the ones what I know about).  It’s a wonder I’m not dead already.

I couldn’t make this up if I tried.

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Hope you like the photos of the spring flowers in our garden.

 

My Newest Paintings and A Brush With Spiderman

Thursday, March 15


Yellow BunnyYesterday I drank so much water (16 glasses), my urine was no longer yellow. My tongue was white and I have developed a SERIOUS shortage of saliva. I’m hoping the cause is from the strong antibiotic I was on and still not because of my radiation treatment. My ear has also started to hurt again. My family Dr. is on vacation and her secretary told me I may need to go back on antibiotics.

 

Purple BunnyMy former principal hooked me up to a new friend, whom I will name Katie. Katie, like me, is also a mets. breast cancer patient and does a lot of researching. However, her mets are in her liver which she has kept stable until recently for about 2 years by naturopathic means. She is a fountain of knowledge and I am so blessed to have this new connection. I could talk to her on the phone for hours. We are able to bounce ideas with each other and learn from one another. I never met anyone else like this. And I owe her big time….

 

google when sickI have been getting a bit jittery over the last 2 – 3 weeks because my medications from Germany have essentially run out and I’m waiting for more. I got a letter from the German Dr. saying my metabolism has improved, my kidneys are light/insufficient (?), there is calcium in the urine, and I have an inflamed intestine. My prescriptions were sent to the pharmacy, but I haven’t received a call for my VISA number yet for them to ship it here. I hope it doesn’t get caught up for a month in customs again. Meanwhile, I’m thinking my immune system is still run down because of the radiation treatment. What if I can’t get rid of this ear problem?

HousesappreciationKatie suggested that I go get Vitamin C I.V., which I heard of, but never tried. So off I went to the Robert Shadd Naturopathic Clinic on Leslie St./Sheppard and gave it a shot yesterday.  Last night I started having a headache when I went to bed and prayed to Brother Andre, like one of my good friends told me to do.  Some time during the night I had one hell of a fever. “Thank heavens, my immune system is back to work”, I thought as I drifted off back to sleep.

Cherry BlossomsStill had a headache this morning when I work up, but I felt different. I felt cured of whatever ailed me. The heavy sinus feeling in my head was gone. I’m still thirsty, but not nearly as bad a yesterday. That’s a good sign. I have to go back every week of Vit. C for 5 more weeks. Hopefully it will blow up any cancer cells running amuck in my system and improve my immune system.

mini cherry blossum

Spent the morning painting and reminiscing about my friends Michelle Baskie (who passed away of pancreatic cancer) and Maria O’Kane (esophageal cancer). I miss them both so much and think of them often.

 

tenantLast night I looked for information about another person who died on the week-end of metastatic breast cancer. She was diagnosed with breast cancer in her bones at the same time as me  (fall of 2012). Her name was Lisa Bonchek Adams. The similarities between the two of us are eery. Most of the meds we took were the same and she had the same tumour/gene markers (Pi3K). We both had problems with our heart because of chemotherapy and I think I started reading about her because we were both featured in the same Toronto Star article about 2 years ago. I didn’t really read her blog regularly as it had a way of upsetting me and made me feel like I was doomed.  I saw on the news the other day that Lisa passed away last week-end. Her cancer spread to her bones, liver, lungs, and finally, her brain.   I think, I know actually, that I would have been in the same boat had I not gone to Germany for treatment there, no matter what my oncologist thinks and says about it (quackery).

cceb279a36216f145ab2ab856f28e9f5Gotta go to get my shots tomorrow and defend my position as to why I am doing “Nothing” about my cancer. I’m going to tell him that Lisa is dead and I’m not.  I think I made the right choice.  Besides, what drugs is he on thinking that I’ll go back on the feet burning drug Xeloda?  Katie told me she had a heart attack on that drug.  I’ve had 3 separate heart issues because of chemotherapy and he wants me on that one?  Other options being offered are intravenous, loose your hair ones.  I’m going to try everything else I can think of first.

Purple LadyI have gone to a few of “Art For Cancer Foundation” workshops over the last couple of weeks and tried some new projects. I like learning new things, even if they are a bit out of my element like this purple lady I painted. That’s also where I learned to paint the “Cherry Blossom” ones and the surrealistic homes above. I like going there because I learn new things and I have a finished piece of artwork by the time I leave. I also painted some Easter Bunnies (when I was sick at home) which I found on pinterest so I could practice how to do them before I taught them to a grade 2 class after March Break. I love pinterest and found lots of things I want to try out, when I have time. Next week I’m planning to work on my blog and write about my escapades in Germany at Christmas time.  That was quite an adventure.  One last painting to show you….

Purple Winter Sky

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images-2Friday, March 13

You won’t believe what happened to me after I visited my friend Wanetta who works at CAMH.  I was returning to my car.  The light was green, but I only had 8 seconds to get across the street.  Should I do it?  “Yeah,” I though, “I’ll make it, but I’d better RUN.”  So I did.  I’m running across the street and almost made it in 6 seconds when, low and behold a giant man in a Spiderman costume comes
barreling down the street on a skateboard.  “Holy Shit”, I thought, “I’m going to get hit by Spiderman”.  I stopped dead in the 3rd lane.  “WHOA, Missy”, he calls to images-3me in a very LOUD, Authoritative Voice.  You should NEVER JAY WALK!  “What?  What?  What are you talking about?  I HAVE A GREEN LIGHT, buddy!”, I yelled back.  “Oh…”, he answered. Well you never know, I may not be able to use my special powers to save you?”  WTF?  Special Powers?  Is this really happening?  I made safely to the sidewalk, glancing at Spidy beside me.  He had the whole get up on, mask, suit, and skateboard.  “How the hell can you see?”,  I’m thinking…..” You are going to have to save those special powers for yourself riding on the street on that thing in that get up!”

As I made it to my car I quickly pulled out my ipad.  I gotta get a pic. of this guy and put it on my blog.  But unfortunately, Spiderman disappeared as quickly as he appeared.  My Hero….not.unnamed

Feb. 13, 2015

I am NOT having a good day.

Find a cureWent to the oncologist today and got my shots in the stomach. When I left, I got the feeling he was not on board with my decision to continue doing the treatment in Germany which he claims is “quackery.”  Take a deep breath.  Too bad, so sad, it worked for 10 months and I’m going to keep doing it.  I’d rather do that, than have my feet burn off with chemo.  I also talked to him about going to the naturopath to get intravenous vitamin C.  He said, “It’s not proven to be effective”.  My husband said that there are lots of books and journals in Germany that say what they are doing works.  Doc. said there weren’t enough case studies done.  I asked him what it was going to take to do that.  He said it will never happen because you can’t patent something like vitamin C….it’s not profitable.  Bunny:snowmanYou need lots of money to do trials with lots of people.  If the big Pharma companies have nothing to gain, it will never happen because of the expense.  There you go folks.  Find your own medicine.  Plants aren’t profitable because you can’t patent them.  Synthetic drugs are the only one’s that “count” in our world even if they have toxic side effects.  Nothing else matters because someone is getting rich from this.  It is disheartening.  It is disgusting really.  Not a good day.

hairy cat fabioSo today I am itchy.  My neck is itchy.  My back is itchy.  And guess what… my pelvic region/crotch/groin is also very, very, itchy (and I don’t want to scratch there because I don’t want any weird looks from people).  There has been very little hair there since my chemo treatments five years ago and now I can safely say that what was left of my scarcely populated pubic hairs has now been successfully fried with radiation.  And my skin looks burnt brown.  Apparently I’m not suppose to have any kind of sun exposure on any of my newly “radiated” parts for at least a year; doubt that will happen any time soon (unless I decide to put nudist colony on my bucket list).  Nahhhh.   Well, at least I don’t have to worry about spending money on a brazilian wax job; it’s already been done for free thanks to medical care.  Had to buy some $50 medicated ointment for my newly parched skin.  Big pharma makes more money.  Argh!!!

Had to drag the kids to the hospital today because it was a P.A. Day.   Frick and Frack are used to it.  It’s happened before.  They refuse to go to the “Magic Castle” place where kids go while their parents have their treatments.  My kids prefer to play on their computer gadgets during my visits.  As long as I feed them pancakes from McDonald’s or buy them breakfast at Druxy’s, they are happy.

imgresdonating bloodI saw an old friend from Gilda’s Club who was getting blood work done and oddly enough, two other friends “found” me at PMH because they “recognized my white, furry, hat” and decided that, yes, that was really me.  One of them recognized “The Hat” from my Germany Pics.  I thought that was really funny.  I taught one of her children many years ago.  Another person I ran into was from my Thursday night Christian Cancer Support Group.  She said she spotted me from a mile away because of my “Hat”.  Glad I had it on!   My daughter told me that the elderly people in the waiting room at the blood lab were eying my hat too when we were in there.  Poor people.  They probably didn’t have any hair because of chemo. and needed a warm hat.  It was bloody cold outside today (- 18 or -32 with the wind chill or something like that).  My alpaca kept me toasty and warm!  I think it is quite possibly the best purchase I have ever made.  Especially today.  The city of Buffalo (just south of us) had  lots of snow earlier this week and now are experiencing this really cold, bitter weather, so the kids all got to stay home today.  They really should invest in some of these kinds of vehicles to get their kids to school! snow days

Wincrazy

Meanwhile some f*$#$ squirrel decided to jump into my chimney to keep warm last night and it cost me over $500 to pay someone to climb on my roof, install a trap door, and cover all the grates (5) up there.  Damn squirrel!   I could have bought him a couple of alpaca hats and thrown them on top of my roof for that much.  He’d have had his own cosy, furry nest.  Now I need to go back to the casino in Niagara Falls to win some more money on the slot machines.

When I got home I searched for today’s “blood work results” on my computer since they weren’t ready at the time of my appointment.  My platelets are low and white blood cell count is red flagged.  Everything else seems to be okay.  I suspect these new developments are because of my radiation treatments, although I’m not sure what to do about it except eat seaweed and soak in himalayan salts.

ebola flight

 

Guess I’m also going to have to protect myself from sick people at the moment.  Would this be considered extreme?  How ’bout I bag myself every time I go out ’til my counts go up?

 

Cat Scan

Gotta have a CAT scan in April.  Bit concerned about that since I couldn’t take my German injections while I was doing radiation treatments for 3 weeks.

 

I figure there may be some growth in my bones because of this.  My doctor however is thinking it may have spread to my liver, lungs, or brain because I’m not “on” conventional treatment.

I would like to prove him wrong….again.